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Worry about meeting the consultant on Monday

User
Posted 19 Apr 2022 at 18:58
Hi, OH had also requested a referral to a hospital for Brachytherapy. This afternoon he got a phone call from Dr Y from that hospital out of the blue just for a chat to see if he is suitable. OH is very impressed with the speed of Dr Y's response and the long and informative chat they had. He has been told this is only a preliminary chat and he is not committed to anything.

He has been told quite firmly that there is a big difference in outcome between Brachytherapy and Brachytherapy with boost. He is not overwhelmed by the idea of CC, but if it has to be it will be.

No decision will be made if HDR or LDR as according to Dr.Y as he needs to examine OH himself to see which he would recommend.

Due to Dr. Y's speedy response, caring attitude and comprehensive Information Brachytherapy (even with 9 month CC) is now 2nd choice.

User
Posted 19 Apr 2022 at 19:06
What is "CC"? Lots of abbreviations around here, but that's a new one on me.

Thanks,

Chris

User
Posted 19 Apr 2022 at 22:38

I assume Chemical castration ? DW refers to it in her previous posts.

Thanks Chris

User
Posted 20 Apr 2022 at 05:53

When we saw Dr X at our local hospital he gave us leaflets for HT tablets and injections and the first line on the leaflet description for the injection is "chemical castration used for violent sex offenders, prostate cancer and breast cancer" 

User
Posted 20 Apr 2022 at 07:09

Yes a shame they have everyone lumped together....

User
Posted 20 Apr 2022 at 07:15
Thanks. Never come across that name for HT before!

Cheers,

Chris

User
Posted 20 Apr 2022 at 07:39

The brachytherapy option sounds interesting. I guess it’s a curative option without the need for surgery. Are the side effects lower than surgery did he say? 

User
Posted 20 Apr 2022 at 08:06

Also noted the MRNA vaccine trial has arms for those with Local prostate cancer (LPC) heading to a RP

https://clinicaltrials.gov/ct2/show/NCT04382898#contactlocation

interesting BioNTech use of this technology that we are all so familiar with now following COVID.

 

User
Posted 20 Apr 2022 at 08:15

Hi Claret, according to Dr Y there is less chance of incontinence and recurrance. (Sorry for the spelling, but English is a very difficult language for a poor foreigner) 

User
Posted 20 Apr 2022 at 08:23
It's a form of radiotherapy, so the side-effects are completely different to those of surgery. If you download the PCUK info sheets on the different treatments for PC you'll find out more about it.

Best wishes,

Chris

User
Posted 22 Apr 2022 at 08:53
Hi, I am worried as the oncologist's treatment options seem to be very intense. Our Dr X treatment is 60 gr in 20 sessions and 6 month Ht and Dr Y is suggesting LDR Brachy, 15 lots of RT and 9 month HT.

User
Posted 22 Apr 2022 at 09:10

For a not very advanced prostate cancer, 6 months of hormone therapy followed by 20 sessions of radio therapy with no further hormone therapy, does not seem overly aggressive or intense to me. In fact this is exactly the treatment regime which I received for my cancer (PSA 18.5, Gleason 4+3, T1c m0 n0).
Hermit.

Edited by member 22 Apr 2022 at 09:16  | Reason: Not specified

User
Posted 22 Apr 2022 at 12:46

Hi Hermit of Eyam, I agree with your regarding the RT, (PSA 8, Gleason 4+3, T2a M0 N0), but in comparison the Brachytherapy sounds a lot more with Brachy LDR, 15 session RT and 9 month HT.  That is the one I am regarding as intense. 

User
Posted 22 Apr 2022 at 13:45
Sounds to me as if he's making a determined effect to eradicate the cancer by combining brachytherapy with EBRT and HT. That's exactly the sort of "multi-pronged attack" on the cancer that you want to maximise the probability of a successful outcome.

Best wishes,

Chris

User
Posted 22 Apr 2022 at 14:40
You only get one chance of administering full RT and although it may be done in different ways, it's best to ensure what is given does the job rather than leave some cancer cells to survive and possibly require salvage treatment in due course. Oncologists have considerable experiance of PCa and what RT can achieve. It does not necessarily follow that a slightly less advanced case requires less RT, although sometimes a shorter period of HT may be advocated.
Barry
User
Posted 22 Apr 2022 at 20:25

Dear Desperate Wife,

I fully understand your anguish, which can almost be worse for a partner.

I, now 67, had unuilateral nerve-sparing surgery in 2018, with PSA 7.02 and Gleason 3+4 and no lymph nodes affected. I started doing pelvic floor excercises a few weeks before the operation, and - almost 4 years on - am still doing them.

My bladder control is almost better than before, except when I've had too much whiskey :)

To my great surprise, my erections were almost as good as before (they weren't great sometimes anyway), but with the help of Sidenafil they are absolutely fine.

I opted for surgery because I wanted to keep the option of Salvage Radiotherpay in my back pocket, which I'm glad of, as I am now facing further treatment, my PSA having started rising again.

 I decided against HiFU at the time, as the cancer was breaking out of the prostate, and they would have had to damage the nerve on that side anyway, making surgery a no-brainer for me.

I coped well after surgery, although my wife took time off work, but the blood thinner injections were easy, and I had to deal with the catheter myself anyway.

I went on my first foreign trip after 3 months, and felt absolutely back to my normal strength after 6 months

Every choice is personal, and - as fellow patients in a support group and the extremely helpful people on Prostatecanceruk said - once you've made your decision, it'll be right.

All the very best,

Peter

 

User
Posted 23 Apr 2022 at 06:54

Hi PeterJM, thank you very much for your positive message.  

Wish you all the best and hope your PSA behaves it self and stops rising.

Have a good weekend

DW

User
Posted 26 Apr 2022 at 06:21
as OH is now getting impatient and wants it over with he has decided to follow the advice of the urologist and go for RP first leaving RT as a back up. Now waiting for a date. I am scared. It is a major operation with lots of potential complications.
User
Posted 26 Apr 2022 at 06:49
It is major surgery, but it's a routine operation that your urologist will probably have performed hundreds if not thousands of times. You can look him up on the BAUS website and see what his success rates are - I'm sure you'll find that they're excellent.

Best wishes,

Chris

User
Posted 26 Apr 2022 at 08:54

One of the reasons, DW, I chose surgery was to get it over and done with. Also, so that I would know the final grading of the cancer that was present. There are potential complications with whatever treatment is chosen and in my case, and for many others  that have posted on here and for people that I know that do not post on here, the complications  have either been non-existent or quite minor.

 

Ivan

 
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