At last, my penile implant

User

Posted 21 Jul 2022 at 18:38

Well, who would have thought that the RMT would prevent me getting my erection? The launch date has been postponed because of the rail strike. I can't guarantee I can get to London and the hospital can't guarantee all their staff can get in.

I'll keep you all posted once launch has been achieved.

User

Posted 21 Jul 2022 at 19:05

🤦‍♀️

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 21 Jul 2022 at 19:31

Personally I have always found trains quite exciting

User

Posted 22 Jul 2022 at 00:57

The LNER train guard once had to close off a whole carriage to the rest of the passengers while I stripped naked and had gel smeared on me by the buffet car man!

I also once was running for a train (late as usual) and my very beautiful (aka expensive) stilleto heeled shoe fell between the train and the platform. Before anyone could blink, a total stranger dived down under the train and reappeared holding my shoe aloft like the Olympic torch. Guard was not happy :-/

I really like trains!

Edited by member 22 Jul 2022 at 00:58 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 22 Jul 2022 at 02:16

Was this all on the same trip? Were you completely naked or did you keep the stilettos on? What flavour was the jelly, and was it served with custard or cream?

Next time you book a train ticket, can you book one for me as well?

Dave

User

Posted 22 Jul 2022 at 07:36

I think Lyn has been dreaming again! I certainly will now!

Was it a Pendalino? Cross country? Or an old (comfortable) Inter City? If you are going to do train porn you have to give us all the info!

User

Posted 22 Jul 2022 at 11:53

🤣🤣🤣

Two different trips. I believe that in both cases, the train would have been an intercity 225 as the Azuma had not been released then.

Totally naked ... had to take my shoes off so they could remove my trousers!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 22 Jul 2022 at 13:59

Oi you guys. Start your own thread. Imagine if my mummy reads about naked women on trains lol

User

Posted 22 Jul 2022 at 16:10

Sorry Ulsterman.

Just to reassure your mum, I had been scalded by a woman passing me with a boiling cup of tea which she then tipped over me. The gel was burn gel to minimise the damage.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 22 Jul 2022 at 17:11

Never let the truth get in the way of a good story.

Dave

User

Posted 22 Jul 2022 at 17:50

How is the pain though? I am still waiting for my first erection, I finally got the tablets, 100mg×8, tried using once, nothing happened, don't know if it would work 8-9wks post surgery, still no sex. I am however hopefully.

User

Posted 22 Jul 2022 at 18:03

Lyn, my mother is much relieved on 2 counts. One, that you don't seem to be permanently injured and two, that you're not part of Dave's train fetish.

Dave is disappointed, naturally.

And my mummy.....well, now she wants to know what an AMS 700 is. I told her it's a new train we have in England that isn't operational in Northern Ireland. She said, 'Ah.'

Now that's all settled, let's get back to my penis, please.

Launch date has been rescheduled for 15.30 on Thursday of next week. The nurse specialist at UCLH phoned me and said she didn't want to delay the launch any longer. I've waited 5 years 7 months 2 weeks and 6 days since my surgery.

User

Posted 22 Jul 2022 at 18:18

All making me laugh guys !!! 😆

I hope this “ launch “ isn’t going to affect the global weather system mate. I don’t want any phallus-induced clouding ok.

Good luck 🤞

User

Posted 22 Jul 2022 at 19:12

I wonder if Andy can organise a zoom meeting for the launch so we can support you.

Thanks Chris

User

Posted 22 Jul 2022 at 21:23

We missed an opportunity. We should have organised a Mill on the Soar event and held the launch there

User

Posted 23 Jul 2022 at 00:05

NASA might sponsor the event?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 23 Jul 2022 at 06:54

Lyn, my mummy is still worried. She wants to know about the stilettos.....do you still have them? And what colour were they?

User

Posted 23 Jul 2022 at 06:59

Originally Posted by: Online Community Member

If you are referring to my post penile implant pain, it was horrendous. Even 6 weeks later, there is a bit of discomfort.

If you are referring to post prostatectomy pain, hopefully yours will settle soon.

As for erections, they will take a while, 8 weeks is very hopeful.

User

Posted 23 Jul 2022 at 08:57

Originally Posted by: Online Community Member

If you are referring to my post penile implant pain, it was horrendous.

Any indication if that was normal, or unusual?

User

Posted 23 Jul 2022 at 09:15

Andy, I was told by 2 other men who had the surgery that it was painful, more painful than their robotic prostatectomy. But they said it was manageable and they are happy with their implants.

I had extensive bruising and was in hospital for almost a week. I think it is accurate to say my experience is not the norm.

User

Posted 28 Jul 2022 at 19:50

Launch day.

Operation was a success and we had lift off.

The device is fiddly to use. It's gonna take a bit of practice.

Penis length and girth reduced, but I'll work with that which I am left.

User

Posted 28 Jul 2022 at 20:13

As my wife was asking, with penile implants, does it mean you can go all night?

User

Posted 28 Jul 2022 at 20:30

Great, Ulsterman.

So a successful kick off 💪👏.

Glad to know.

Best wishes and nights!

Lola

User

Posted 28 Jul 2022 at 22:00

I thought it had got cloudy , and keep the noise down ok 😆

User

Posted 28 Jul 2022 at 22:20

Ignore the nay sayers, crank it to 75psi and all will be restored!

User

Posted 28 Jul 2022 at 23:59

Originally Posted by: Online Community Member

As my wife was asking, with penile implants, does it mean you can go all night?

Essentially I could have an erection 24 hours per day lol

User

Posted 29 Jul 2022 at 05:03

Great news, glad it has been successful 👍

User

Posted 30 Jul 2022 at 13:33

Good news Ulsterman.

Ido4

User

Posted 31 Jul 2022 at 19:03

I know it will get easier, but the device takes some getting used to. It's not easy to use. Easier to inflate than deflate.

Flaccid penis doesn't feel quite natural. You can feel the implant. Erect penis feels natural.

Pump in the scrotum is quite heavy.

I imagine in a few weeks it'll all be alright and I'll be confident in using it. It makes me think of my first driving lessons and my driving today. I will make progress.

It is nice though knowing that I can now have an erection when I want one, for as long as I want.

User

Posted 03 Aug 2022 at 11:03

The ups and downs of the implant.

It is such a relief and a pleasure to be back in control of my erections after almost 6 years. Compared even to Invicorp, the implant is great.

I don't like the feel of the implant in my scrotum. It's far too heavy. I'll just have to learn to live with that.

My biggest problem is with deflation. I'm finding it quite awkward. But getting there.

Getting the implant fitted was a big decision. I was worried about whether I'd made the right decision. One week after launch date, I'm happily in orbit.

We're getting there.

User

Posted 03 Aug 2022 at 11:47

Hopefully they’ve saved all your sensation to reach orgasm ??

As for the weight of it , ever since my surgery I switched from boxers / trunks to normal pull-on underpants. They support everything nice down there. Are you wearing these ? Good luck

User

Posted 03 Aug 2022 at 12:08

Still good (dry) orgasms. A bit harder to achieve but that's not an issue.

And yes, I wear supportive briefs.

User

Posted 03 Aug 2022 at 14:02

Enjoy!! Great news!

User

Posted 03 Aug 2022 at 15:05

Good to hear that your magic rod has not disappointed. I did see a Youtube video where they made the inflating and deflating process seem so simple!

User

Posted 03 Aug 2022 at 16:01

Really pleased for you Ulsterman - it was a big decision

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 03 Aug 2022 at 16:10

Originally Posted by: Online Community Member

Really pleased for you Ulsterman - it was a big decision

😆 No pun intended Lyn 😆

User

Posted 03 Aug 2022 at 21:13

Originally Posted by: Online Community Member

One week after launch date, I'm happily in orbit.

We're getting there.

Well done And keep it up Rocket Man

Cheers

Bill

User

Posted 03 Aug 2022 at 23:05

Originally Posted by: Online Community Member

Really pleased for you Ulsterman - it was a big decision

😆 No pun intended Lyn 😆

😳

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 03 Sep 2022 at 16:51

wow, you have been through the ringer!

I had my implant on 16th August 2022 in Bristol, only after extensive research, and have an excellent outcome and only slight irritation from placement of the reservoir, after being released the following morning.

An initial pumped up erection for 6 weeks is the only interesting aspect so far. Going forward I have purchased a selection of underwear recommended to give room and support for the artificial enhancements.

There is a huge amount of information on franktalk (USA) about everything ED and more, including tablets, injections and implants.

take a look at this series of blogs by one of the American top specialist surgeons. https://peritourology.com/meet-the-penis-episodes/

The one thing that is always pushed is ensuring a higher volume surgeon is used.

Mike

User

Posted 04 Sep 2022 at 09:11

Thank you so much Ulsterman for your wonderful resilience, both in terms of all the pain and discomfort and also staying with this thread and keep us all informed throughout your huge investment and the literal ups and downs that came with it. I admire the way you keep your sense of humour throughout! And big thanks for all the information - real live stories unfolding somehow teach me more than reading up dry summaries online.

So glad your implant is giving you something that is much more fun than cycling!!!

User

Posted 04 Sep 2022 at 10:55

So, it's been almost 3 months since the implant was fitted. What are my thoughts?

The invicorp injections I used only produced an erection for me of 45 minutes. I couldn't use 2 injections on the same day. To me, this wasn't giving me enough control over my erections.

I was officially only get to get 5 injections per month on the NHS. That just wasn't enough.

When I used Invicorp, my penis was still very sensitive. It is definitely less sensitive with the implant.

When I used invicorp it was easy to reach orgasm. With the implant, it is a bit more of an effort.

I'm still struggling with inflation and deflation. Nowhere near as problematic as at first, but it's not as simple as 'press here'. I have a telephone consultation coming up. I'm going to ask for it to be changed to a face to face appointment and ask them to check if the implant is working properly. I think there's quite possibly something wrong with although it's most likely me not getting to grips with it.

The implant section in the scrotum is bulky and heavy. I think they could really improve on the design.

I think on reading this you can tell that I am not 100% happy with the implant. It is better than the injections overall, but if there had been an injection that acted say more like cialis, I think that would have better.

I suppose what I'm saying is that the implant does it's job but it's not a perfect solution. I think it's design could be improved upon.

I don't think I have regrets but I am somewhat disappointed. It is definitely the best solution for my circumstances but not the perfect solution. That doesn't exist yet, I know.

What would be useful would be to hear from men a bit further down the road than me who are happy with their implants. I don't want any of my reservations or experiences to put anyone off, but do do your research if you're considering this operation.

Edited by member 04 Sep 2022 at 11:10 | Reason: Not specified

User

Posted 04 Sep 2022 at 14:06

Still early days Ulsterman??

I suspect the orgasm thing is also a mental thing, I am having the best sex ever in my life but still occasionally, orgasm is elusive. I read somewhere that it is a lesser known side effect of the op.

User

Posted 04 Sep 2022 at 15:25

Very sorry mate to hear you are a bit dissatisfied. I know my path is different but I think down the line after surgery sensation deteriorates. I’m lucky enough even after 2 yrs of HT I can still get an erection and have penetrative sex , but the orgasm bit has become a bit elusive also. Not sure whether it’s physical or mental or both. But I do know despite an incurable prognosis that I still want and enjoy sex whether it be giving or receiving. It’s all good healthy fun whatever the outcome. Keep going and keep strong. Good luck

User

Posted 05 Sep 2022 at 09:35

I also had a different path, but want to chime in about "orgasm has become a bit elusive" - I am experiencing that myself and hear so many other men saying the same across a range of treatment experiences. I am exploring alternatives - what I call "mini-peaks" that can happen more frequently, almost as deliciously as the traditional orgasm and leave me pretty satisfied. Still a bit queasy about giving up on the big O but working with my new body and what pleases it.

User

Posted 05 Sep 2022 at 11:30

I had RT and HT so not quite as traumatic damage to me as an RP patient, but ED is a bit of a problem. As far as erections are concerned Avanafil has made these strong enough for penetrative sex.

Orgasms are dry but otherwise just as good as before. I know a side effect of sertraline a common anxiety drug is lack of orgasm. It is not unusual for cancer patients to be on drugs to improve mental health so it might be worth looking up the side effects of other medication you are on.

Dave

User

Posted 05 Nov 2022 at 12:55

5 month update

Think carefully and do your research if you are considering an implant. I'd probably do it again, but I do have reservations.

The pump mechanism in the scrotum is hard and heavy. I really don't like it. I'm sure they could design a more modern, less heavy pump.

The inflate/deflate mechanism is tricky to use. It is not as easy as turning the lights on and off. Once again, I wouldn't let this put you off getting an implant, but the demonstrator model they show you at the hospital is easier to use than the fitted implant. You need to be aware of that.

My penis has lost some sensitivity. It's got plastic bits in it and tubes. It does still work though. I still have good dry orgasms.

I can have an erection when I want.

Deflation doesn't always work as well as it should. I run around with a semi most of the time.

The head of my penis doesn't plump up as well as it should. The hospital prescribed muse gel to put in the urethra. Immediately the pain was intolerable. That was why I had to move to invicorp. I wonder does invicorp have a pain free urethral gel.

So, not 100% happy. Just wanting to be honest. There are improvements to be made to this device.

If I could have had unlimited invicorp injections I would have stuck with that.

In the absence of a more satisfactory solution, this is a good solution, but not a brilliant one.

User

Posted 05 Nov 2022 at 13:15

Thanks Ulsterman. Managing to get the thing in the first place was a major achievement. Balancing the pros and cons is only possible once we have a guinea pig (that's you) to try it. Prostate cancer is a life changing disease we just have to make the best of it. Clear information like this, from you this will help people in the future.

Dave

User

Posted 05 Nov 2022 at 13:57

Thanks Ulsterman for this update. Will be interesting to see how you feel about it over time. I have seen a lot of folks say that short term they wondered why they did it but longer term they were pretty satisfied.

I also have ED after non nerve sparing surgery. Plus now on HT (soon to start chemo plus RT) for persistent PSA after the op. I have access to unlimited Caverject under the Irish health system but Invicorp is not licensed here. The disadvantage of Caverject is that after sex it takes about 1-2 hours for the erection to subside and it can be painful. At those times the prospect of a deflate button on the prosthesis seems appealing.

User

Posted 05 Nov 2022 at 23:24

Great honest account ulsterman. I do wish I was reading it’s the best thing you ever did but you will really help others when considering this path. Glad there are some positives with it too 👍

User

Posted 06 Nov 2022 at 00:13

Thanks UlsterMan for the update. I am glad there are some positives to take away from it. Your account has just reinforced my belief that, this route is not something you would take lightly.

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