The million dollar question

User

Posted 25 Mar 2026 at 20:27

Hope the skin issues resolve quickly for you. Positive news on the sustained PSAdrop and the tumour shrink. Wishing you the best and you are an inspiration to us starting this daunting journey.

User

Posted 26 Mar 2026 at 08:23

Hi guys

Thanks all for your kind thoughts and messages 🙏 (big hug Mrs MAS)filling up while typing 😊 silly me..

Will update as always when I know more

Phil

User

Posted 26 Mar 2026 at 09:13

hiya Phil, good to know everything is still working and you are coping with what's entailed being on a trial.
keep on marching, gentle hugs to both of you

User

Posted 15 Apr 2026 at 09:47

Hi all....update time(these 3 weeks come round to quick)

Started cycle 9 Halda 0915 clinical trial

Cholesterol stable but still taking statins,stiff neck,aching to shoulders and lower back but coping,QOL not as good as 3 weeks ago but ok.

Consultant said that aches and pains are more likely from the treatment and statins rather than cancer progression as the imaging results from 3 weeks ago showed tumor shrinkage.

Didn't ask about PSA like I usually do I'll wait for it to come down on my app,my attitude was if it has gone up what can I do about it, its out of my control I can only go on how I'm feeling.

More imaging in 3 weeks so will update then.

All the best on your journeys guys and stay strong 💪

User

Posted 15 Apr 2026 at 09:58

Phil,

Youre doing ace. Tumour shrinkage is something to celebrate. Aches and pains likely due to the treatment is I hope also reassuring for you (I think you know what I mean).

As always wishing you the very best.

Enjoy today

Love Mrs MAS x

Mrs MAS

User

Posted 15 Apr 2026 at 12:03

Thanks for the updates Phil, you are a fighter to keep going I would have caved in a while ago, gentle hugs to you both

User

Posted 15 Apr 2026 at 16:01

Keep plugging away we are all rooting for you.

User

Posted 15 Apr 2026 at 16:18

Hi Phil.

Your courage, strength, and positive mindset are an inspiration to us all.

Good luck with your next scans, mate. 👍

User

Posted 15 Apr 2026 at 16:55

We are cheering you on Phil! Wishing you all the best!

User

Posted 15 Apr 2026 at 18:58

Respect Phil as ever. You’re holding the Olympic Torch for all of us and I hope you stay well and that it becomes available. Keep the faith

User

Posted 15 Apr 2026 at 23:47

Phil, keep going mate.

Thanks Chris

User

Posted 06 May 2026 at 13:59

Hi all,update time

Started cycle 10 of phase 1 Halda=0195 clinical trial yesterday,PSA down from 15.11 to 13.82,cholesterol stable,occasional neck and lower back ache but QOL still ok.

Been undergoing the usual ct scans,mri & x-rays today so will let you know results on next update.

Just gone 4 years since diagnosed with a PSA of 2104 and still here to tell the tale.

There is hope guys.

Stay strong all 💪 regards phil.

User

Posted 06 May 2026 at 14:06

Amazing psa down again!

I want to give you a hug

Mrs MAS

User

Posted 06 May 2026 at 15:30

Wonderful news Phil! Especially glad PSA decline is matched by OK QOL. Big cheers to you!

User

Posted 06 May 2026 at 17:28

Phil respect 💪💪😎👍

User

Posted 06 May 2026 at 20:53

Phil, sounds good.

Thanks Chris i

User

Posted 06 May 2026 at 21:11

Very encouraging - really great news and thank you for the update. 👍

User

Posted 06 May 2026 at 22:02

Thanks for the update, Phil. I hope that the scan results and other tests are good ,mate, and that things continue to improve. 👍

User

Posted 07 May 2026 at 07:44

Wow. Great news.

User

Posted 07 May 2026 at 13:30

Good news Phil long may it continue

best wishes Ann

User

Posted 07 May 2026 at 14:53

Thanks for the updates Phil, great your PSA still going down

User

Posted 07 May 2026 at 16:13

yes Phil!!!

User

Posted 07 May 2026 at 19:01

Awesome. So pleased to hear this.

User

Posted 26 May 2026 at 19:56

Hi Guys & Girls

Update time starting cycle 11 of phase 1 Halda-0915 clinical trial tomorrow(the weeks pass by to quick!!),had bloodtests today.

Cholesterol up a wee bit but consultant not yet to concerned,PSA down again to 12.14,a few aches and niggles but may have overdone it yesterday,sometimes I feel pretty good and overdo things forgetting what lurks within.

But QOL still good all things considering.

More scans etc in 3 weeks until then take care all and keep fighting the fight💪

Regards Phil

User

Posted 26 May 2026 at 20:09

Hi Phil - you warrior!

I ve been looking out for your update.

PSA down and QoL okay, this is great news again.

Hope you and your wife celebrate every little win.

Keep going

Melissa x

Mrs MAS

User

Posted 26 May 2026 at 22:58

Dear Phil,

Thanks so much for this news! I and a lot of us are looking out for your posts. So glad to see your PSA still declining and QOL sounds OK. We are cheering you and yours on!

User

Posted 26 May 2026 at 23:04

Fingers crossed for the scan results!

User

Posted 27 May 2026 at 12:30

Regards and respect as ever Phil 💪

User

Posted 28 May 2026 at 07:46

Thanks again for all your kind thoughts and messages they mean a lot.

Will update when I know more 👍

Phil

User

Posted 30 Jun 2026 at 08:40

High Guys & Girls

Update time....

Sorry for delay been waiting for full results to come down on app.

Cycle 12 (3 week cycles) of phase 1 Halda- 0915 clinical trial at the Royal Marsden...cholesterol and fasting bloods slightly up but still in green,PSA down to 11.54,QOL of life still good.

Cycle 13 dosing,MRI,CT & X-ray imaging Mon/Tue & kidney stent exchange at my local hospital Wednesday.

Will update as always in the next few weeks.

Take care all and and keep fighting the fight💪

Phil

User

Posted 30 Jun 2026 at 09:20

Hi, Phil.

Thanks for the update, mate. It must be such a relief to you and your family that things are still going in the right direction, long may it continue. Good luck with the scans and stent exchange.👍

Edited by member 30 Jun 2026 at 09:28 | Reason: Additional text

User

Posted 30 Jun 2026 at 09:57

Woo woo Go Phil!

All going the right way still.

I am so glad you got on the Halda trial, please go and celebrate another set of good results with your wife.

Love Melissa x

Mrs MAS

User

Posted 30 Jun 2026 at 12:39

Good news Phil. Hope it works.

Thanks Chris

User

Posted 30 Jun 2026 at 12:54

Great stuff

User

Posted 30 Jun 2026 at 20:45

Just thinking of you today Phil. Glad it’s still good 💪

User

Posted 01 Jul 2026 at 20:51

Thanks so much for the update. Really happy to read this good news Phil. We are cheering for you and yours!

User

Posted 20 Jul 2026 at 13:32

Hi everyone....update time

Cycle 13 Halda 0915 phase 1 clinical trial complete at the Royal Marsden in sutton.

PSA down again to 9.54

Bloods stable,awaiting imaging results from last week,will be told at next consultation next week so will update then.

Kidney stent replaced at local hospital just under 2 weeks ago which went well.

QOL fair to good

Take care guys and keep fighting the fight 💪

Phil

User

Posted 20 Jul 2026 at 13:57

Really great news about the PSA drop Phil! Hope QOL improves back to good... Wishing you and yours all the best!

User

Posted 20 Jul 2026 at 15:55

Thanks as always Phil. We are all with you. Is there a phase 2?

User

Posted 20 Jul 2026 at 16:12

Originally Posted by: Online Community Member

We are all with you. Is there a phase 2?

I don't know if they'll be a phase two.

In Star Trek, there were lots of 'phasers'. I'm sure Phil, like Capt. Kirk, will use whatever weapon is available to him, and "boldly go where no man has ever gone before!

Both even share the same goal, to eradicate any 'Klingons'. I hope that Phil's mission is successful. 👍

Edited by member 21 Jul 2026 at 09:31 | Reason: Typo and additional text

User

Posted 20 Jul 2026 at 21:26

Inspired by your strength, Phil, and like Adrian, wishing the force be with you! But in response to Will, I had read that the trial design is quite brilliant and it's a Phase1/2 trial. From what I can understand, I think it's good that Phil is actually on the Phase 1 arm (the Phase 2 is randomized, but I am not sure if that is randomized in terms of dosing or SOC but I cannot think of better SOC than Hld-0915).

User

Posted 21 Jul 2026 at 08:24

The consultants don't discuss how other people are getting on on the trial but they did say there are only 3 people on it in this country.

Luckily I bumped into another guy on ward who was on the same trial who was also doing well his PSA has not dropped as much as mine and his was older than me,but I found out he is only on one 25mg tablet where as I'm on 2 tablets,so yes I think they are trialing the dose and seeing how we react.

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