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The million dollar question

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User

Posted 27 Nov 2024 at 12:07

Hi phil

Had targeted radiotherapy about a month ago on one of my ribs close to my spine,it was not a big dose and was classed as preventative radiotherapy,it flared up like hell a few days after but lapsed about a week after,touch wood it's kept it away for now.

Images of my pet scan last week were unable to view and the right up of the scan was on the computer screen and I was told by my oncologist to take a "SCREEN SHOT" which I found disgusting and unprofessional!! I keep meaning to change my oncologist but I never do....it's a better the devil you know thing.so I can't comment on my spread.

I wish you well Phil....keep fighting

User

Posted 27 Nov 2024 at 16:56

Hi Phil. That’s good to know the rib radiotherapy worked ok. I might need it soon … 😳…

Absolutely awful that your Pet scan wasn’t very clear. Have they booked another scan yet ? And as for saying take a screen shot 😳🥴… Hope you get that sorted asap.

I am really lucky with my Oncologist and the hospital in general. Had a couple of issues of lack of information with all departments but I think resolved now. My Palliative Nurse has been brilliant . Very knowledgeable and gets things done. I owe her for getting me healthy again after the chemo knocked 7 bells out of me.

Yep, keep on fighting 👍, you too buddy . Too much to do yet 🏖️✈️🚢 ⚽️🍷🍺 🥘 🤣🤣

It’s our 42nd Wedding Anniversary today so as we’re out Saturday night we’re having a takeaway tonight.

Take care

Phil

Edited by member 27 Nov 2024 at 16:57 | Reason: Not specified

User

Posted 29 Nov 2024 at 12:29

Hi guys

Had the figures come through for treatment costs of 177,give or take it is £14,500 per cycle,with a PSA pet scan(extra cost) given after 2 cycles,just waiting to see if I'm eligible for treatment then an online consultation (which is free!! Yippee)in the next few weeks.

Will keep you updated regards Phil

User

Posted 29 Nov 2024 at 13:30

Best of luck Phil, with the consultation . Outrageous cost though. How can the manufacturer warrant that, and it not be available on NHS.

If you do go for it then do consider the crowd funding. 👍

Phil

User

Posted 29 Nov 2024 at 17:15

Crikey Phil that’s a lot of dosh. I’d have to weigh it up having a young son. I’d want to know figures on efficacy. But then I’m not in your shoes yet and haven’t walked in them. Just sending wishes and strength and a man hug 🤗

User

Posted 29 Nov 2024 at 23:36

Originally Posted by: Online Community Member

... an online consultation (which is free!! Yippee)...

Careful, you might find it's a timeshare salesman.😂

Dave

User

Posted 30 Nov 2024 at 05:44

Both Phils and Chris J. You are amongst my Cancer fighting Supermen You've got super powers which I doubt I'll ever have. Keep battling on boys!

User

Posted 18 Dec 2024 at 12:51

Hi all

Update time ..had zoom call today with Royal Marsden hospital in London for self funded letethium 177 treatment,it was a catch 22,basically my cancer spread wasn't enough to justify the cost of having it yet but maybe in the future the option is there.(Hopefully the treatment will be available free on the NHS then)Will wait now until 8th January for face to face appointment at the same hospital to see if I'm eligible for clinical trials where decisions will have to made which path I'm taking.

Will update then,regards Phil

User

Posted 18 Dec 2024 at 13:35

Hey Phil , try and have an epic Xmas buddy. Eat and drink what you want , enjoy the family , and then look forwards to the next one. In my thoughts ok

User

Posted 18 Dec 2024 at 13:44

Hi Phil, I'm with ChrisJ, Have yourselves a Christmas to remember. Thinking of you and wishing you all the luck in the world

User

Posted 18 Dec 2024 at 14:13

Hi Phil.

I suppose the fact that your cancer hasn’t spread enough to warrant the Lutetium is actually a tiny bit of good news…

Let’s actually hope that it doesn’t spread much or at all for a while. My consultant yesterday said the chemo does carry on working for quite a while after it is stopped.

Obviously wishing you the best of luck in January, but in the meantime have a most brilliant holiday in the Canaries. Do your best to forget all about the nasty stuff in your body and enjoy yourselves.

Cheers

Phil

User

Posted 19 Dec 2024 at 09:25

Hi all

Thanks for your messages guys,I'll certainly try my best next week and and because I'll be away I'd like to wish you all a merry Xmas and have the best day you can.

Best wishes Phil

User

Posted 19 Dec 2024 at 20:23

where are you going mate?

User

Posted 20 Dec 2024 at 08:34

Hiya Paul0

Lanzarote over Xmas....charge me batteries with a bit of sun ready for the months ahead.

User

Posted 20 Dec 2024 at 15:11

is right mate, bit of sun (hopefully) can't do any harm!

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