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The million dollar question

User
Posted 17 Nov 2023 at 08:25

Thanks for your response guys much appreciated will keep you updated.

User
Posted 20 Nov 2023 at 13:47

Well another stone out and another stent fitted,a lot of teeth grinding when going to the toilet as you can imagine,hoping to have the stent pulled out tomorrow,that will make me eyes water,mri scan on spine and onco appointment next month,will keep you updated.

Regards Phil 

User
Posted 20 Nov 2023 at 14:43

Good luck with the stones and scans phil

User
Posted 20 Nov 2023 at 15:20
Well done Phil. Best of wishes. Youโ€™re an inspiration mate
User
Posted 20 Nov 2023 at 15:52

Well done Phil. Life is certainly making it difficult for you. Hope the stent removal goes well and also the upcoming scan and consultant appointment.

Please keep us updated. We’re all rooting for you ๐Ÿ‘

Phil

User
Posted 20 Nov 2023 at 19:37

Do your best to keep as many teeth as you can Phil.

 

Good luck mate.

 

Jamie.

User
Posted 20 Nov 2023 at 21:50

Thanks Phil.  You're a fighter - that's for sure.

 Best of luck with all the tests and medical treatments.

Best wishes,

JedSee.

User
Posted 15 Dec 2023 at 08:57

Hi all it's update time.

Firstly I'd like to thank you all for your feedback and support,onco appointment was yesterday PSA has doubled in 6 weeks to 26.4 so the dreaded chemo (docetaxel)will start in 3-4 weeks time,for anybody starting there journey and reading this I got a good 16 months out of enzalutamide and if wasn't for my kidney failure and stones during this period QOL would have been pretty good I'm also not feeling to bad all things considered and am off the Tenerife for Xmas for a great time before treatment starts.

If anybody could give me feedback on experiences on docetaxel it would be much appreciated 

Have the best Xmas you can guys and keep fighting the fight and try to be positive.

Regards Phil 

User
Posted 15 Dec 2023 at 09:55

Hi Phil. So sorry to hear this. I’ve no experience of Docetaxel but as I’m not far behind you I’ll also be interested in others experiences. 
I’ve been on Abi for 6 months and it’s working, albeit very slowly and last result was  same as previous one so I’ve just had an upper body scan and bone scan next week to see what’s going on. ๐Ÿ˜ฌ.
Thank you for your support to myself and others and I hope you can find the inner strength to keep fighting. 
Have a fantastic time in Tenerife and get some much needed sun . 

Thinking of you ๐Ÿ‘

Phil

User
Posted 15 Dec 2023 at 10:13

Hi Phil, hope your chemo treatment goes well for you.  You’ve certainly been through the mill with having kidney failure and stones as well as PCa diagnosis and treatments.  My husband Keith was diagnosed with PCa in September 2019 when he was put on HT Prostap injections, followed by chemo (Docetaxel), as it was suspected the cancer had spread to his right hip.  It turned out this ‘apparently’ was not the case and most probably an old injury. I did document his experience of Docetaxel, It’s a bit longwinded as I was in complete shock at the time of writing.  Following chemo he then had Radiotherapy. To be honest the HT has had more of a lasting impact on him mentally and physically.  Fortunately, following all treatments, his PSA has remained undetectable.  Further PSA test next week and we are keeping our fingers crossed the result remains still undetectable. Always an anxious time.  Keith’s only sibling/Brother passed away in October and this has really ‘knocked him sideways’, and again brings home our vulnerability.  I am busy making plans for holidays next year and we have our family and grandchildren to love and enjoy.

So pleased to hear you are off to Tenerife for Christmas, hope you have a very enjoyable time.  All the best going forward.

Ange x

User
Posted 15 Dec 2023 at 12:12

I had six sessions of Docetaxel last year and wasn’t sick at all. I felt a bit tired in the afternoons and half my hair fell out but it grew back.

I wouldn’t worry about it too much.

User
Posted 15 Dec 2023 at 17:18
Phil youโ€™re a true champion in my eyes and a bit of a stoic hero. I know you must be creased inside. A few of us are steps behind you and watching in interest but with true support and strong wishes. Enjoy your holiday and Xmas and keep in touch. Mucho respect to you brother. Sending strength ok
User
Posted 15 Dec 2023 at 17:52

"Not feeling too bad all things considered" and even just the thought of Tenerife all sound good to me Phil.

Much love my man and warmest festive wishes to you and yours.

 

Jamie.

 

 

User
Posted 15 Dec 2023 at 22:01

Hi Phil,

Sorry to hear the news about the need for further treatment. 

Have a great holiday and hope the treatment goes well in January.

Best wishes,

JedSee.

User
Posted 18 Dec 2023 at 15:07

Keep punching Phil, new treatments / trials coming up, never give up the fight mate!

User
Posted 22 Dec 2023 at 13:29

Hi Phil, just wanted to reiterate that you have made so many good friends on this forum who are all thinking of you.

It’s a difficult journey and sometimes we do feel a bit alone with our feelings. You try to put on a brave face when all you want to do is crawl into a corner and cry. 
All your friends on here understand that and will be sending you love and hugs . 

I just had my last counselling of my 12 sessions and I can tell you there were a few tears. 

Hope you have the most amazing time in Tenerife over Christmas. We’ll all be waiting here when you get back , just don’t gloat over your nice tan… 

Take care

Phil

User
Posted 29 Dec 2023 at 18:56

Hi Phil,

I went went through 6 cycles of docetaxel 2 years ago.  Certainly not fun, but manageable.  Hair loss started after the 2nd cycle.  Not a big deal since I'm bald, but I did have to shave my beard.  Fatigue was worse the week after an infusion.  The  fatigue also compounded during treatment.  Felt quite tired and weak by the end of treatment.  Fortunately, never had nausea.  Did have a loss of appetite, probably because of "metal-mouth".  Makes everything taste metallic for some guys.  My energy level started to come back after a few weeks.  I'm doing ok now.  Have been on Eligard/Lupron and Abiraterone since chemo.  Just one guys experience.

You're going to do fine.  Hope you're enjoying the holidays.  

All the best in 2024!

Ed

 

User
Posted 10 Jan 2024 at 08:42

Hi all

Thanks again for all your info,kind thoughts and support,well the day has come after most of you probably know after being diagnosed in April 22 APC with bone mets PSA 2100 Gleason 4+4 T1M1

Off to hospital this morning to start 1st course of chemo(docetaxel) it doesn't feel real I knew this day would come when I was diagnosed and here it is,and yet my QOL the last month has been pretty good,i will be in touch with updates.

Stay strong guys regards Phil 

User
Posted 10 Jan 2024 at 09:32

Best of luck Phil. Hoping you cope with it well and it does its job. 
thinking of you ๐Ÿ‘

Phil

User
Posted 10 Jan 2024 at 10:05
Best wishes Phil. Stay strong brother ๐Ÿ˜Ž๐Ÿ’ช
 
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