I'm interested in conversations about and I want to talk about

Know exactly what you want?

Show search

Notification

Error

The million dollar question

Email this conversation Print this conversation

User

Posted 28 Feb 2025 at 09:39

Keep strong Phil. You are in inspiration to us all, mate.

User

Posted 28 Feb 2025 at 09:49

Hi Phil thanks for the update sounds like they're looking after you like royalty, Take care and get plenty of rest between travelling, cheers daveh

User

Posted 19 Mar 2025 at 07:32

Hi all

Little update...Single kidney stent fitted yesterday with nephrostomy at the Royal Marsden Chelsea had to leave house at 4am for a 9am appointment,had overnight stay and hoping to have nephrostomy removed today and let home,had to postpone 2nd round of cabizitaxel until next week I felt I couldn't cope with 3 nights in London and chemo,still coping physically but I'm getting no younger and putting on weight.

Will keep you updated as always,Phil

User

Posted 19 Mar 2025 at 07:51

Phil, some said the other day ,it's the disease that keeps giving, hope things start to improve soon.

Thanks Chris

User

Posted 19 Mar 2025 at 08:25

Hi Phil, I had to Google that. Hope it all goes smoothly and that you're back home soon.

Good luck,

Kev.

User

Posted 19 Mar 2025 at 09:49

Hi Phil. Why can’t stuff go smoothly for once. What have we done to deserve this ?

Shame you’ve got to come back down again next week for the cabazitaxel. But you know your own body and what you can take .

Hope the nephrostomy can be removed today and you can get back home to recuperate.

Take care buddy,

thinking of you 👍

Phil

User

Posted 19 Mar 2025 at 11:36

Hi Phil, we're thinking of you just rest as much as you can, once this is sorted hopefully it will be easier going from then, take care
Good luck DaveH

Edited by member 19 Mar 2025 at 11:36 | Reason: Not specified

User

Posted 21 Mar 2025 at 08:02

Hi all

Well kidney stent has been in a couple of days and hopefully settling in to it's new home,was booked in to have 2 fitted(as per consultants instructions) but only had right side fitted as the radiologist did not warrant the left stent to be inserted...who am I to argue with that...still peeing a little blood but drinking plenty of water to keep flushing it through,pain wise it's varys from visit to visit to the loo but it's bearable.

2nd chemo which was postponed a week due to stent being fitted booked in for next Thursday so will update after that.

Take care guys Phil

User

Posted 28 Mar 2025 at 08:16

Hi all

Day after 2nd dose of Cabizitaxel after postponing a week due to kidney stent insertion,Rosey cheeks,slight metal mouth and still effects of intravenous steroids but coping for now.

Kidney stent now settled in and managing.

Will keep updated as always....keep the faith all and make that effort to get out of bed.

All the best Phil

User

Posted 28 Mar 2025 at 08:28

Hi Phil,

You are doing great! Really hoping the cabazitaxel dies it's job for you and as you say by accessing it this way there may be other options available to you going forward.

Sending you my very best wishes

Melissa x

Mrs MAS

User

Posted 28 Mar 2025 at 11:16

Best wishes as ever buddy. You’re a trooper 💪🤛

User

Posted 28 Mar 2025 at 12:16

Best wishes Phil hope all goes well.

ann

User

Posted 28 Mar 2025 at 13:12

That's good that only one stent was fitted, keep on keeping on, Phil!

User

Posted 30 Mar 2025 at 11:36

hi Phil thanks for the updates, one of my managers said to me if we are marching we're not fighting so keep on marching, just grab rest when you can, thinking of you take care DaveH

User

Posted 30 Mar 2025 at 16:46

Good to get an update from you Phil, good luck with the rest of the chemo.

Derek

User

Posted 17 Apr 2025 at 18:37

Hi All

Update time....A long 2 days at Royal Marsden London,had nuclear medicine,contrast dye,steroids,cabizitaxel and more pumped into me and too boot a 5hr drive home!!!but I'm back to tell the tale.

All bloods are in the green only red/white blood cells are abnormal which is to be expected...OH and PSA is abnormal but down from roughly 345 at end of March to 193 today...at least it's going down....for now.

No what to expect over the coming days with steroid crash,metal mouth and fatigue but hopefully this time next week I'll be back in action.

Will update again on next infusion with test results of MRI,full body x-ray and CT scan, unless they contact me earlier with abnormalities with them!!!but I'm hoping not.

Take care all...Phil.

User

Posted 18 Apr 2025 at 10:23

Hi Phil. Good to hear you survived another session at the RM. Hope the side effects aren’t too bad. Metal mouth is the worst thing ever…!

Good to see your PSA dropped . Hopefully the scans all show good news.

See my oncologist next Thursday. Fingers crossed my PSA has stayed down… Considering I finished chemo in September I was expecting worse at this stage.

So take care buddy. Thinking of you 👍

Phil

User

Posted 18 Apr 2025 at 12:17

Cheers Phil

Hoping everything goes well for you next week.

User

Posted 23 Apr 2025 at 12:52

Cheers Phil thanks for the update glad to hear your numbers are going the right way, and best of luck for your next session

User

Posted 23 Apr 2025 at 16:24

Cheers Dave

As predicted,a week after infusion things have now settled down,but it was a rough weekend,the wife will testify to that.

Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.