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The million dollar question

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User
Posted 28 Feb 2025 at 09:39

Keep strong Phil. You are in inspiration to us all, mate. 

User
Posted 28 Feb 2025 at 09:49

Hi Phil thanks for the update sounds like they're looking after you like royalty, Take care and get plenty of rest between travelling, cheers daveh

User
Posted 19 Mar 2025 at 07:32

Hi all

Little update...Single kidney stent fitted yesterday with nephrostomy at the Royal Marsden Chelsea had to leave house at 4am for a 9am appointment,had overnight stay and hoping to have nephrostomy removed today and let home,had to postpone 2nd round of cabizitaxel until next week I felt I couldn't cope with 3 nights in London and chemo,still coping physically but I'm getting no younger and putting on weight.

Will keep you updated as always,Phil 

User
Posted 19 Mar 2025 at 07:51

Phil, some said the other day ,it's the disease that keeps giving, hope things start to improve soon. 

Thanks Chris 

User
Posted 19 Mar 2025 at 08:25

Hi Phil, I had to Google that. Hope it all goes smoothly and that you're back home soon. 

Good luck, 

Kev.

User
Posted 19 Mar 2025 at 09:49

Hi Phil. Why can’t stuff go smoothly for once. What have we done to deserve this ? 

Shame you’ve got to come back down again next week for the cabazitaxel. But you know your own body and what you can take . 

Hope the nephrostomy can be removed today and you can get back home to recuperate. 

Take care buddy, 

thinking of you πŸ‘

Phil

User
Posted 19 Mar 2025 at 11:36

Hi Phil, we're thinking of you just rest as much as you can, once this is sorted hopefully it will be easier going from then, take care
Good luck DaveH

Edited by member 19 Mar 2025 at 11:36  | Reason: Not specified

User
Posted 21 Mar 2025 at 08:02

Hi all 

Well kidney stent has been in a couple of days and hopefully settling in to it's new home,was booked in to have 2 fitted(as per consultants instructions) but only had right side fitted as the radiologist did not warrant the left stent to be inserted...who am I to argue with that...still peeing a little blood but drinking plenty of water to keep flushing it through,pain wise it's varys from visit to visit to the loo but it's bearable.

2nd chemo which was postponed a week due to stent being fitted booked in for next Thursday so will update after that.

Take care guys Phil 

User
Posted 28 Mar 2025 at 08:16

Hi all 

Day after 2nd dose of Cabizitaxel after postponing a week due to kidney stent insertion,Rosey cheeks,slight metal mouth and still effects of intravenous steroids but coping for now.

Kidney stent now settled in and managing.

Will keep updated as always....keep the faith all and make that effort to get out of bed.

All the best Phil 

User
Posted 28 Mar 2025 at 08:28

Hi Phil, 

You are doing great! Really hoping the cabazitaxel does it's job for you and as you say by accessing it this way there may be other options available to you going forward.

Sending you my very best wishes 

Melissa x

 

Edited by member 04 Jun 2025 at 18:46  | Reason: Not specified

Mrs MAS

User
Posted 28 Mar 2025 at 11:16
Best wishes as ever buddy. You’re a trooper πŸ’ͺπŸ€›
User
Posted 28 Mar 2025 at 12:16

Best wishes Phil hope all goes well.

ann 

User
Posted 28 Mar 2025 at 13:12

That's good that only one stent was fitted, keep on keeping on, Phil!

User
Posted 30 Mar 2025 at 11:36
hi Phil thanks for the updates, one of my managers said to me if we are marching we're not fighting so keep on marching, just grab rest when you can, thinking of you take care DaveH
User
Posted 30 Mar 2025 at 16:46

Good to get an update from you Phil, good luck with the rest of the chemo.

Derek

User
Posted 17 Apr 2025 at 18:37

Hi All 

Update time....A long 2 days at Royal Marsden London,had nuclear medicine,contrast dye,steroids,cabizitaxel and more pumped into me and too boot a 5hr drive home!!!but I'm back to tell the tale.

All bloods are in the green only red/white blood cells are abnormal which is to be expected...OH and PSA is abnormal but down from roughly 345 at end of March to 193 today...at least it's going down....for now.

No what to expect over the coming days with steroid crash,metal mouth and fatigue but hopefully this time next week I'll be back in action.

Will update again on next infusion with test results of MRI,full body x-ray and CT scan, unless they contact me earlier with abnormalities with them!!!but I'm hoping not.

Take care all...Phil.

User
Posted 18 Apr 2025 at 10:23

Hi Phil. Good to hear you survived another session at the RM. Hope the side effects aren’t too bad. Metal mouth is the worst thing ever…! 

Good to see your PSA dropped . Hopefully the scans all show good news. 

See my oncologist next Thursday. Fingers crossed my PSA has stayed down… Considering I finished chemo in September I was expecting worse at this stage. 

So take care buddy. Thinking of you πŸ‘

Phil

User
Posted 18 Apr 2025 at 12:17

Cheers Phil

Hoping everything goes well for you next week.

User
Posted 23 Apr 2025 at 12:52
Cheers Phil thanks for the update glad to hear your numbers are going the right way, and best of luck for your next session
User
Posted 23 Apr 2025 at 16:24

Cheers Dave

As predicted,a week after infusion things have now settled down,but it was a rough weekend,the wife will testify to that.

User
Posted 08 May 2025 at 15:53

Phil, Just keep  on marching  numbers seem scary  to me but at least gong down,  with my distant memories of chemo you're a marvel man  being able to  cope with the travelling also, take care, gentle hugs to you both DaveH 

User
Posted 09 May 2025 at 08:00

Hi all,quick update.

Another day in london done yesterday for 4th infusion of cabizitaxel,still feeling on a bit of a high with intravenous steroids,so the next few days are usually the worst,scan & x ray results from my last visit 3 weeks ago were no "progression of disease"blood tests were all good,PSA i normally get in a few days time on the app.

Me and the wife got emotional at the consultation,but he's a good consultant who told me he's here to help and will do his upmost to keep me well,which reassured me.

It's a roller coaster 🎒 of a ride.all the best.

Phil 

 

 

User
Posted 09 May 2025 at 09:08

Hi Phil. You really are a trooper , not only having Cabazitaxel monthly but also having to travel down to London for it . 

It’s good to hear you’ve got a good relationship with your consultant. That really helps. Sometimes you need a little outpouring of emotion or it all gets locked in. 

Pleased to hear that so far the treatment is helping. Let’s hope that continues. 

Take care, thinking of you πŸ‘

Phil

User
Posted 19 May 2025 at 08:26

Welcome to our world Joe 

User
Posted 19 May 2025 at 08:57

Let’s hope the Hormones do the trick for him πŸ‘

User
Posted 31 May 2025 at 08:31

Hi Guys

Hope you are all well,just a little update,5th chemo(cabizitaxel)session done a few days ago,usual side effects,fatigue,metal mouth glowing face,hopefully will pass in a few days,sorry im not to medically informative I just say at as it is and hopefully blokes like me read my thread and see its not all over when you get diagnosed with stage 4.

More scans and x-rays booked in a few weeks will update then.

Stay stronger πŸ’ͺ guys 

Regards Phil 

User
Posted 31 May 2025 at 08:38

Hi Phil,

Thanks for the update, mate.

I've said it before, and I'll say it again. You and a few others on here, dealing with Stage 4 disease, yet still finding time to post to help others, are my cancer heros. 

Edited by member 31 May 2025 at 08:41  | Reason: Typo

User
Posted 31 May 2025 at 09:08
Best wishes as ever Phil. Super-trooper πŸ€›πŸ’ͺ
User
Posted 31 May 2025 at 09:10

Phil, 

Youre doing great, just saying hello and that I'm thinking of you and wishing you well.

Take care 

Melissa x

Mrs MAS

User
Posted 31 May 2025 at 10:01

Hi Phil thanks for your update, 5 down you're a marvel, reading your update it sounds like a new normal for you both, keep on marching 

User
Posted 31 May 2025 at 12:13

Keep on keeping on, Phil - all the very best to you and your family.   

User
Posted 31 May 2025 at 12:18

Cheers 🍻  guys 

User
Posted 31 May 2025 at 17:53

Hi Phil. Can’t believe it’s your 5th already. Pleased you are managing to get through the side effects. Good luck with the scans and X-rays . 

Take care 

Phil

User
Posted 20 Jun 2025 at 08:12

Hi guys

Little update...had consultation and 6th infusion of cabizitaxel over the last few days,consultation was mixed result's,in a nutshell it could be better but it could be worse,will monitor and see what the next scans and x-rays say in 8 werks.Gearing up for the next few days with side effects from chemo,off to local hospital today for pre-assesment on kidney stent will be a nice change to travel for 20mins rather than over 3 hrs.

Take care all and stay strong πŸ’ͺ 

User
Posted 20 Jun 2025 at 09:51

Hi Phil. Sorry to hear things aren’t going exactly to plan. Hopefully the scans and x-rays will show some improvement. Seems like ages to wait for 8 weeks. 

Good luck with the stent today. Hope that all goes well. 

Spoke to one of my team yesterday and she said it’s good my PSA has come down to 54 from 56. Must admit last time I heard it was 48. But it’s bouncing around that level. Anyway she said all good for the next radium in 2 weeks.

Thinking of you buddy . Everything crossed for you …πŸ‘

Take care 

Phil

User
Posted 20 Jun 2025 at 10:01

All the very best, Phil - hope the chemo has had a positive effect and it doesn't hit you too hard over the next few days.

User
Posted 20 Jun 2025 at 11:39
Lets hope its just a blip, thinking of you, keep well hydrated with this hot weather if you can with after effects of chemo

Again take care

DaveH

User
Posted 11 Jul 2025 at 08:10

Hi all

Little update.....7th cycle of Cabizitaxel given yesterday,lower back pain seems to have eased a little so hopefully the drug is working,should have my latest PSA results soon so will post on my next update,woke up this morning like I've been lying under a sunbed all night with my Rosie cheeks so side effects are as expected.

Have signed me and my son up for chris hoys tour de four in September in Glasgow so hoping to get there,have raised over £500 for prostate cancer UK so far so am well pleased with that.

Take care all and stay πŸ’ͺ strong.

User
Posted 11 Jul 2025 at 09:27

Hi Phil. 

I've been watching out for your update. 

Cycle 7 done and dusted, hope it has had a positive effect on your psa.

And signing up for the Chris Hoy event. Blimey what troopers you and your son are. 

Keep on keeping on Phil 

Love Melissa x

Mrs MAS

User
Posted 11 Jul 2025 at 11:14

Blimey Phil, that’s very brave of you doing the Chris Hoy Tour. Very best of luck πŸ‘

Good to hear your back pain has eased and hopefully the treatment is doing something good.

Fingers crossed for your next PSA . 

Cheers

Phil

User
Posted 11 Jul 2025 at 14:18
Respect Phil. Nothing but admiration for you πŸ’ͺ
User
Posted 11 Jul 2025 at 18:52

Only doing 20mins on static bike in the velodrome,may have attempted the 30 miler on me e/bike but getting that upto glasgow would have been challenging.

User
Posted 12 Jul 2025 at 14:14

Phil you're a glutton for punishment, traveling a distance for chemo and now just to cap it off doing 20 miles on a static bike 'respect' talk about using every day to its limit, I'm tired just thinking about it. One more thing if you want a donation just drop me a link, take care and keep strong 

 

Edited by member 12 Jul 2025 at 14:16  | Reason: Not specified

User
Posted 13 Jul 2025 at 15:11

Well impressed Phil. As mentioned slip us the link to the donation page. 

That’s a fair old journey up to Glasgow. Hope it all goes to plan. Be very cool to ride the static bike inside the velodrome. I’ve been to the last session of a six day event at the London Velodrome a few years ago and it was a magic event. You can feel the energy bouncing round in there. Music from Ministery of Sound 🚲 🎢 … 

I’m looking at getting Chris’ book for a read. I’ve read Kevin Webbers book and it was an interesting read. 

Take care

Phil

User
Posted 14 Jul 2025 at 08:29

https://www.gofundme.com/f/my-tour-de-4-fundraiser-to-fight-cancer-vd6rs?utm_campaign=fp_sharesheet&utm_content=amp14_t2&utm_medium=customer&utm_source=streaming_widget&lang=en_GB&attribution_id=sl%3A2fb6dfd4-eeeb-4f45-a46c-c8327cbebd3d&ts=1752478036

User
Posted 14 Jul 2025 at 23:28
Done! Keep up the good work phil
User
Posted 16 Jul 2025 at 09:36

Ditto. πŸ‘

User
Posted 16 Jul 2025 at 15:27

Thanks guys over 700 now much appreciated πŸ‘ πŸ’  πŸ‘ 

User
Posted 22 Jul 2025 at 09:43

Done βœ”οΈ. 
Good luck Phil .

User
Posted 22 Jul 2025 at 10:11

Originally Posted by: Online Community Member

Thanks guys over 700 now much appreciated πŸ‘ πŸ’  πŸ‘ 

Unlike my todger, it's still on the rise.πŸ‘†

I reckon you'll do over a grand! Well done, mate!

Edited by member 22 Jul 2025 at 11:39  | Reason: Typo

 
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