I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error
«<678

The million dollar question

Email this conversation Print this conversation
User
Posted 28 Feb 2025 at 09:39

Keep strong Phil. You are in inspiration to us all, mate. 

User
Posted 28 Feb 2025 at 09:49

Hi Phil thanks for the update sounds like they're looking after you like royalty, Take care and get plenty of rest between travelling, cheers daveh

User
Posted 19 Mar 2025 at 07:32

Hi all

Little update...Single kidney stent fitted yesterday with nephrostomy at the Royal Marsden Chelsea had to leave house at 4am for a 9am appointment,had overnight stay and hoping to have nephrostomy removed today and let home,had to postpone 2nd round of cabizitaxel until next week I felt I couldn't cope with 3 nights in London and chemo,still coping physically but I'm getting no younger and putting on weight.

Will keep you updated as always,Phil 

User
Posted 19 Mar 2025 at 07:51

Phil, some said the other day ,it's the disease that keeps giving, hope things start to improve soon. 

Thanks Chris 

User
Posted 19 Mar 2025 at 08:25

Hi Phil, I had to Google that. Hope it all goes smoothly and that you're back home soon. 

Good luck, 

Kev.

User
Posted 19 Mar 2025 at 09:49

Hi Phil. Why can’t stuff go smoothly for once. What have we done to deserve this ? 

Shame you’ve got to come back down again next week for the cabazitaxel. But you know your own body and what you can take . 

Hope the nephrostomy can be removed today and you can get back home to recuperate. 

Take care buddy, 

thinking of you πŸ‘

Phil

User
Posted 19 Mar 2025 at 11:36

Hi Phil, we're thinking of you just rest as much as you can, once this is sorted hopefully it will be easier going from then, take care
Good luck DaveH

Edited by member 19 Mar 2025 at 11:36  | Reason: Not specified

User
Posted 21 Mar 2025 at 08:02

Hi all 

Well kidney stent has been in a couple of days and hopefully settling in to it's new home,was booked in to have 2 fitted(as per consultants instructions) but only had right side fitted as the radiologist did not warrant the left stent to be inserted...who am I to argue with that...still peeing a little blood but drinking plenty of water to keep flushing it through,pain wise it's varys from visit to visit to the loo but it's bearable.

2nd chemo which was postponed a week due to stent being fitted booked in for next Thursday so will update after that.

Take care guys Phil 

User
Posted 28 Mar 2025 at 08:16

Hi all 

Day after 2nd dose of Cabizitaxel after postponing a week due to kidney stent insertion,Rosey cheeks,slight metal mouth and still effects of intravenous steroids but coping for now.

Kidney stent now settled in and managing.

Will keep updated as always....keep the faith all and make that effort to get out of bed.

All the best Phil 

User
Posted 28 Mar 2025 at 08:28

Hi Phil, 

You are doing great! Really hoping the cabazitaxel dies it's job for you and as you say by accessing it this way there may be other options available to you going forward.

Sending you my very best wishes 

Melissa x

 

Mrs MAS

User
Posted 28 Mar 2025 at 11:16
Best wishes as ever buddy. You’re a trooper πŸ’ͺπŸ€›
User
Posted 28 Mar 2025 at 12:16

Best wishes Phil hope all goes well.

ann 

User
Posted 28 Mar 2025 at 13:12

That's good that only one stent was fitted, keep on keeping on, Phil!

User
Posted 30 Mar 2025 at 11:36
hi Phil thanks for the updates, one of my managers said to me if we are marching we're not fighting so keep on marching, just grab rest when you can, thinking of you take care DaveH
User
Posted 30 Mar 2025 at 16:46

Good to get an update from you Phil, good luck with the rest of the chemo.

Derek

User
Posted 17 Apr 2025 at 18:37

Hi All 

Update time....A long 2 days at Royal Marsden London,had nuclear medicine,contrast dye,steroids,cabizitaxel and more pumped into me and too boot a 5hr drive home!!!but I'm back to tell the tale.

All bloods are in the green only red/white blood cells are abnormal which is to be expected...OH and PSA is abnormal but down from roughly 345 at end of March to 193 today...at least it's going down....for now.

No what to expect over the coming days with steroid crash,metal mouth and fatigue but hopefully this time next week I'll be back in action.

Will update again on next infusion with test results of MRI,full body x-ray and CT scan, unless they contact me earlier with abnormalities with them!!!but I'm hoping not.

Take care all...Phil.

User
Posted 18 Apr 2025 at 10:23

Hi Phil. Good to hear you survived another session at the RM. Hope the side effects aren’t too bad. Metal mouth is the worst thing ever…! 

Good to see your PSA dropped . Hopefully the scans all show good news. 

See my oncologist next Thursday. Fingers crossed my PSA has stayed down… Considering I finished chemo in September I was expecting worse at this stage. 

So take care buddy. Thinking of you πŸ‘

Phil

User
Posted 18 Apr 2025 at 12:17

Cheers Phil

Hoping everything goes well for you next week.

User
Posted 23 Apr 2025 at 12:52
Cheers Phil thanks for the update glad to hear your numbers are going the right way, and best of luck for your next session
User
Posted 23 Apr 2025 at 16:24

Cheers Dave

As predicted,a week after infusion things have now settled down,but it was a rough weekend,the wife will testify to that.

User
Posted 08 May 2025 at 15:53

Phil, Just keep  on marching  numbers seem scary  to me but at least gong down,  with my distant memories of chemo you're a marvel man  being able to  cope with the travelling also, take care, gentle hugs to you both DaveH 

User
Posted 09 May 2025 at 08:00

Hi all,quick update.

Another day in london done yesterday for 4th infusion of cabizitaxel,still feeling on a bit of a high with intravenous steroids,so the next few days are usually the worst,scan & x ray results from my last visit 3 weeks ago were no "progression of disease"blood tests were all good,PSA i normally get in a few days time on the app.

Me and the wife got emotional at the consultation,but he's a good consultant who told me he's here to help and will do his upmost to keep me well,which reassured me.

It's a roller coaster 🎒 of a ride.all the best.

Phil 

 

 

User
Posted 09 May 2025 at 09:08

Hi Phil. You really are a trooper , not only having Cabazitaxel monthly but also having to travel down to London for it . 

It’s good to hear you’ve got a good relationship with your consultant. That really helps. Sometimes you need a little outpouring of emotion or it all gets locked in. 

Pleased to hear that so far the treatment is helping. Let’s hope that continues. 

Take care, thinking of you πŸ‘

Phil

User
Posted 19 May 2025 at 08:26

Welcome to our world Joe 

User
Posted 19 May 2025 at 08:57

Let’s hope the Hormones do the trick for him πŸ‘

 
Forum Jump  
«<678
Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2025 Prostate Cancer UK