The million dollar question

User

Posted 17 Oct 2023 at 15:37

Hi guys hope you all keeping as well as you can.

Update here...been to support group today and asked about latest bloodtest results from a couple of weeks ago and scan/x-ray findings from about 6 weeks ago,I've took my time asking because there's not a fat lot I can do about the results,PSA has risen again now 8.5 !!! Up from 5.3 the month before Yet scan results have shown no further spread to my bone mets,so we will see what my oncologist has to say next week after another bloodtest result early next week,I'm hoping she'll leave me alone till the new year.

Take care everyone regards Phil.

User

Posted 17 Oct 2023 at 22:37

Sorry to hear this Phil truly mate. It’s just so testing and taxing mentally physically and emotionally , when you feel options are running low. Good luck next week and keep on doing what you’re doing , whatever feels right.

User

Posted 18 Oct 2023 at 08:44

Hi Chris

Thanks for the response I'm hoping I'll be eligible for this olaparib,I don't know if anybody outthere has any experience with this drug.

Regards Phil

User

Posted 18 Oct 2023 at 08:59

That’s tough news to hear Phil, all I can say is I hope you get whatever treatment you need to keep it at bay.

Good luck,

Derek

User

Posted 18 Oct 2023 at 09:55

Ditto what decho has said hope you will get all the treatment you need to help you going forward we are all behind you gaz 👍

User

Posted 18 Oct 2023 at 11:59

At the end of the day, feeling well is much more important than sheer psa readings. Scan results showing no further disease progression despite psa rise are more than encouraging.

User

Posted 18 Oct 2023 at 16:15

My husband was the same last year his psa was rising and scans showed no significant changes, he was put on Bicalutamide his last bloods 3 months ago there was a slight increase again his oncologist said we will wait and see what next results are before deciding if he’s going to change anything, his bloods are due Thursday and telephone appointment Wednesday 25th. It’s hard not to worry

Ann

User

Posted 18 Oct 2023 at 21:04

Thanks for your responses guys I'll take them all on board,I'm in the lap of my oncologist next week will keep you informed of results.

Regards Phil

User

Posted 25 Oct 2023 at 09:02

Hi guys

Big oncology appointment tomorrow and to be honest I'm bricking it,I know that after 14months enzalutamide is breaking down and psa is on the rise but scans show no further spread,I'm not a big fan of my oncologist I've never seen her face cause of wearing a mask and she's always looking at the screen,I know she has a difficult job and sees hundreds of people and she only sees me every 3 months but a little more tact would not go a miss,I'm hoping that olaparib is on the table rather than jumping head first into chemo

Will post again in next few days regards Phil

User

Posted 25 Oct 2023 at 11:25

Best of luck Phil, hope you can get the treatment plan you prefer.

It’s really not great when there’s no relationship with your doctor….I know lots will say as long as they’re good at what they do, but for us it makes a huge difference. Positivity has a big role to play when going through all of this and if you’re not getting that and confidence from the ones looking after you then it’s easy to let that have a negative affect.

Hope she’s having a very good day for you tomorrow 👍 x

User

Posted 25 Oct 2023 at 11:30

Hopefully tomorrow goes ok Phil nobody deserves a change in luck more than you keep us posted gaz 👍

User

Posted 25 Oct 2023 at 17:01

Phil I’m gunning for you ok. I can’t imagine ( but will obviously find out ) how you are feeling. Stay strong and it’s easy to say worrying solves nothing but it’s so true. I’d be having a few glasses of red 😎

User

Posted 26 Oct 2023 at 12:21

Hi Phil, only just seen this thread . I don’t come on the forum that often now as I sometimes need a break from thinking about PCa….

I really hope you start to get some good news soon. It’s such a s*** journey isn’t it.
My Onco got me on Abi and it is working, although I have worries about its effectiveness as my PSA is going down quite slowly. Just got to wait and see…

It’s funny how they measure treatment efficiency with PSA then tell you not to worry about the numbers. Just wish it were that easy to tell your brain …..

One thing I did was decide , with my wife, that I didn’t want to know where my new lesions were as I’d only worry more. I think it was the best move as I don’t worry about every little ache or pain.

Got everything crossed for you Phil.

Phil

Edited by member 26 Oct 2023 at 12:26 | Reason: Not specified

User

Posted 26 Oct 2023 at 19:42

Hi guys

Thanks for all your replies,onco appointment done she was a hour and a half late seeing us but she was the talkative I've seen her,PSA up to 13.5,been tested for oralib but came back negative so that's a no no,she's holding back on chemo because I'm looking so well and my scans say no more progression,so next appointment in 8 weeks,seen off the chemo demons for another 2 months anyway,I'm off to book the canaries for Xmas,stuff it 😀

Stay well all regards Phil

User

Posted 26 Oct 2023 at 20:05

Enjoy the holiday Phil you deserve it 👍

User

Posted 28 Oct 2023 at 21:40

The Canaries sounds like a great idea, Phil. We are just back from the Dordogne again - it rained all week and, when we left yesterday evening, it was snowing!!!!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 15 Nov 2023 at 08:58

Hi all

Update time,well where do I start,had a rough few weeks I've had pains in me back been walking round like a robot,thought id pulled someting,eventually went to docs yesterday,was told its an infection which has made me 1 lung slightly swollen which is pressing on me ribs put on 5 day course of strong antibiotics so hopefully be well for me hospital appointment Sunday morning to have another kidney stone removed,not looking forward to it as I no what to expect but am determined to get as fit as I can for Xmas in the canaries for my wife's sanity.

Stay as well as you can all regards phil

User

Posted 15 Nov 2023 at 11:37

Hi Phil. Hope all goes well with the antibiotics and kidney stone removal. And then you can have a magic time in the canaries at Christmas.

We are off to see friends in Spain tomorrow then in 2 weeks to Jersey for a few days. Back out there again for Christmas and back home for new year.

Gotta try to make everyday count 👍

Take care

Phil

User

Posted 15 Nov 2023 at 13:43

All the best Phil with your treatment and enjoy the canaries

User

Posted 15 Nov 2023 at 21:14

Best wishes to you too, Phil.

You've been through the mill, but you keep going.

Respect!

Jed See.

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