Hi all, thought I would share my experiences so far on here...
Diagnosed 16 months ago, T3b 4+4 Spread to local lymph nodes.
Started HT straight after diagnosis, (LHRH injections every 3 months , then additional daily Enzalutamide)
RT to pelvis in June , PSA down from 52 to 0.01
I started using cialis soon after diagnosis after reading about penile rehabilitation on here(Thanks guys!) 5mg daily and 20 mg for "event nights". This was working, but diminishing gradually up until RT, when everything went downhill rapidly...I kept taking it, and at first could manage very fragile erections, that disappeared immediately with the slightest interruption or distraction...
I managed to get a referral to the local ED clinic a couple of months ago, who recommended going straight to caverject injections, starting at 2.5 and increasing, now at 20...
the results? well, at 2.5 there was something there for sure, just a semi for about an hour, but encouraging enough to keep going... up to 10 more or less the same, but became more usable for sex... then 10 gave me a good erection for over an hour and we were able to have nearly normal sex for the first time this year, wasn't able to climax, so was all 1-0 scores, after all this time i'll take that though!!
But... Penis is noticeably shorter than before, and has a definite slight curve to it, I know that shortening is normal after RP, but I didn't expect it after RT, is this normal?? I thought that maybe increasing the dose would help with this so tried 15...same result but lasted longer, then, this weekend I thought i'd go for it and try 20...length still the same, but OMG! managed to climax! at long last a 1-1 !! was incredibly intense, felt fantastic, but stayed hard for a worrying 3 hours...could have managed extra time, and penalties :) but partner had been to her staff xmas do so promptly fell asleep... very strange experience to be laying there actually distressed about having a hard on!! be careful what you wish for!! took a couple of sudafed in the end and it quickly subsided. will start dialing back now
So, all in all really happy...its a bit of a faf injecting, I always pour a little glass of wine for afterwards as a reward! We are going to have to experiment a bit with positions to take into account my new shape and size, but going from expecting celibacy for life, this is a problem I'm more than happy to have!
To anyone thinking of taking the plunge I would say, Do it! Do it! Do it!!!! The thought of injecting yourself there is far far worse than the reality!
sorry for the long read, but one last thing, I don't know if it's coincidence, and I know it shouldn't be happening with HT, but in the last few weeks i've started having night erections again...not full on, just tiny semis, but definitely something there, has anyone else experienced this? i'm still taking 5mg of cialis mon-thurs, then injecting at weekends.