Big week for me coming up…I’m just so glad I have been chilling in the sun until yesterday, although chilling may be the wrong word as it was 40 degrees when we left Fuerteventura…not good for the hot flushes🥵
I was lucky to get an appointment with the ED nurse today who was very informative and empathetic. The appointment came a lot sooner than expected which is a little disappointing as I could have saved myself a lot of cash going privately to diagnose Peyronie’s…she was very knowledgeable on the subject and I could have had exactly the same outcome without the cost of going private😟
Anyway she took a lot of time to explain how to use the device..and she also confirmed that many men need the extra large cylinder, which is not supplied with the SomaCorrect, you only get small, medium and large. She said VERY few men use the smallest cylinder. So, a useful tip would be if you’re being supplied with a SomaCorrect, insist that they provide an extra large cylinder instead of the small one.
She’s also writing to my GP to prescribe me a 12 week course of Tadalafil to see if I get on ok with it.
So, all in all, a very good meeting and she’s left me her number to contact her.
Tomorrow is first PSA test 3 months after RT and I can feel the anxiety building…thank god for Sertraline which is keeping me on an even keel.
Ive been attending a ‘Living with PCa’ course run by Maggies over 6 weeks which has been excellent but which would have been even more use if I had been able to attend following diagnosis. On Tuesday there’s a follow up with the wives/partners…the men go off for coffee for an hour and the wives have a chat, and then the men come in for the last half hour. I think this is a great idea as it will give my wife a chance to talk about her feelings with others in the same boat. We’re a,l going out for lunch together after the meeting. Maggies really has been a great help to me.
Friday I hope to get the results of my PSA and I know I will be really uptight about it. Fortunately, it’s the monthly PCa support Group at Maggies in the afternoon so whatever the outcome I know I will be able to get some support from the others in the Group.
Then meeting with the Onco on the 23rd and not looking forward to this…I will need to go in WELL prepared with any questions….. for which I will get a VERY direct answer.
Finally, since finishing RT I have managed to put on 8kg, was doing fine before this. My son is a nutritionist and distributor for Herbalife products, so I’m going on a course of using the products to see how I get on. We already use the shakes and snack bars which are really good,but we maybe don’t take it seriously enough. So, this time it’s serious and I’m going to stop alcohol as well and get exercising. My current readings on the magic scales are:
Weight 99.3kg😟😟
BMI 27.2😟
body Fat 24.5%👍
Muscle Mass: 71.35kg
Muscle Quality: 58😊 (apparently I’m muscular🤷🏼♂️)
Body Type: 5👍
Bone Mass:3.7Kg😊
Visceral Fat: 14 😟😟
BMR: 2.192kcal
Metabolic Age: 52 😊 (I’m just a young thing😉)
Body Water: 46.1%😟
So, there you go, I’ve gone public now and will report back before my next Maggies meeting on the 15th September. I have no excuses for not making a difference, especially with weight and Visceral Fat!
Edited by member 13 Aug 2023 at 11:51
| Reason: Not specified