GregJ’s Journey - To Infinity And Beyond!

Hi Al

I hope you keep going from strength to strength as each day passes 😊👍

I’m still in quite a bit of pain down below. It’s very hard to pinpoint exactly but definitely inside and toward the rectal area. As you and Lyn said, a lot has happened down there during surgery so it’s going to take some time to settle. 
I feel it most when I sit on a chair that isn’t soft, like a dining chair.

I can get semi-comfortable a lot of the time now, through shuffling to find the best position, so things must me starting to find their place again. I’m 3.5 weeks post op now … been the longest month of my life, truth be told! 😁

I definitely have other pain which is related to the hematoma, I can feel it especially when I lie completely flat. I’m still sleeping in one of the electric recliner chairs in the living room as it doesn’t go completely flat so it’s a lot more comfortable.

Look after yourself and good luck with a speedy recovery 👍

cheers

Greg. 

Yep Greg, you’ve described exactly the pain I’m feeling and that general area too. 
A bit of twisting and turning in seats is needed to get comfortable. I’m with you!

Hope it gets better for you soon

A

Ouch that must have been a shock at first? 
Did I see a comment that it’s a result of the repairing and ‘bits’ falling away from the scars etc?

With me at it feels like my urethra is on fire 🔥 and a few times it went into spasm or cramp. 

Such fun eh!! 
Think of the cold beer 

Thanks Lyn, yep I do know that in a perfect world I’d be work free for 4 to 6 weeks. But unfortunately I need to find a balance - just maybe more skewed towards rest than I had in the last few days.

A

If it didn't, the jury is out until the next test.

Had my follow up phone call with the surgeon today, 9 weeks since my RARP. 

He is happy that my PSA is less than 0.03, which he says is the lowest the local lab can measure. 
The pathology report showed negative margins so my cancer was downgraded from a T3 at diagnosis to a T2. 

So finally, after all the trauma over the past couple of months, I’m glad to get some good news. 

Continence is probably at around 95% now, with no leaks day or night unless I have more than 2 pints. I seem to be able to get away with 2 pints of beer/cider but if I have 2.5 I leak quite a lot through the night. Best way to reduce intake that I can see … unfortunately! 🥴😁

Erections are at around 60% of where they were before the surgery. 

I do seem to get a pain in my bladder from time to time, tonight being one of those times, but touch wood it’s always resolved without issue 🤞

Doesn’t feel like a UTI, no burning and pressure is usually excellent (like being 18 again!). Will just have to keep an eye on it and see what, if anything, develops. 

All in all I’m pleased with the progress so far. 
One thing I thought of asking, but didn’t, was would I have been a more suitable candidate for Active Surveillance (with hindsight of the pathology report). I didn’t ask as it wouldn’t change anything now of course because what’s done is done. The MRI obviously showed a lot of inflammation, which was mentioned at the time of diagnosis but it was deemed too big a risk to ignore. I’ll not dwell on that thought now, just keep moving forward. 

Hope everyone is as well as they can be. 
Take care

Greg. 

Thanks Derek, Elaine and Dave.

I’m quite “grounded” about the results so far as unfortunately my arthritis is absolutely battering me at the moment 🥴

The good news is that the surgeon said he is happy for me to restart my weekly arthritis injections very shortly, I speak to rheumatology today so 🤞

Cheers 😊

Greg. 

Hi all

Hope you’re keeping as well as you can. 

My recovery from the surgery is just about complete I would say. 
I am however having a really tough time with the Tadalafil .. I cut it down from one 5mg daily to one 5mg every other day and now I’m taking it every 3 days. 
It makes me feel really ill to be totally honest. I never feel too good every day anyway, because of my arthritis and a gastro issue but the Tadalafil seems to amplify everything all the way up to 11 😣

These symptoms are from my arthritis but much worse with the Tadalafil.

Aching muscles in legs (severe), brain fog, fatigue, nausea, weakness in hands, an all over “ill” feeling. 

I have been given some viagra to try but I’m afraid to take that too because I understand more people have side effects from that than they do from Tadalafil. 

Has anybody else switched over to viagra because of unwanted side effects?

If so how did it go? 

Stay safe folks, take care

Greg.