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Diet guidelines

User
Posted 08 Mar 2024 at 18:18
There's a lot of advice here, and very little of it based on scientific evidence - mostly it is anecdotal.

I, myself, asked the nurses on this site if there is anything that I can do to change my diet to reduce the risk of getting prostate cancer.

As these nurses work on fact based evidence, they told me there isn't any proven link between certain foods preventing PCa, or certain foods causing PCa. I spoke to two different nurses, plus my GP today, to get advice. They all gave the same advice - which is the advice we all get in the NHS guidelines. One nurse said "it is a minefield - one site will say avoid eggs, another will say don't avoid eggs".

They certainly didn't indicate that what a kid ate would determine the future of his prostate.

The key thing is to follow the various guidelines for a balanced diet. 5 portions of fruit and veg. 30 grams of fibre. Reducing red meat intake.

For example, I read one site that said oily fish was good for PCa. But, other sites have shown that people who have higher Omega3 values are more prone to get PCa.

I made a list of all the foods that I should avoid to protect myself from PCa and it left me with very little other than fruit and veg. Even then, there would be no guarantee.

Just as not all smokers will get lung cancer, and just as some non-smokers do get lung cancer (like my cousin who passed last November) - it's all about mitigating risks.

Hopefully there will be more research on foods and risks but I will re-iterate here that, based on the evidence that is available, there is no strong evidence to suggest eating this food, but not eating that food.

Everything here is either anecdotal, or based on individual studies interpreted by well intentioned people who have no scientific qualifications to draw conclusions.

For example, if dairy is a cause of prostate cancer why isn't the NHS recommending that we reduce our intake? Why do they recommend that, as part of a balanced diet, we should have some dairy? Why do they not say - limit dairy to 90g per week, like they do with red meat?

To the OP, instead of asking here, ask your GP and your medical team. Based on what they say, please update us all here because these are the people who will know more than anyone here.

Until then, it's yet another thread where people awaiting a diagnosis will read contradictory advice and assume that it is correct and panic. That's what happened to me and, again I appreciate people are well-intentioned - but on mentioning my own elevated PSA I was told

1) I won't have PCa now, but probably will in 10 years. (Anecdotal)

2) That my father's own PSA rating (from one PSA test taken in 2012 when he was unable to urinate) meant he definitely has PCa (Anecdotal)

3) That, because of 2, I should assume that I am at an elevated risk of getting PCa. Again, my GP contradicted both 2 and 3, as did the wonderful nurses on this site.

4) (advice was not given to me) - younger sufferers will almost certainly have more aggressive PCa. That was based on a handful of sufferers who posted here, and negated to mention the sufferers who didn't post here and are just being monitored.

This should be a place where people support each other, and they do. But, they also offer advice without qualification, and they have no idea of the implications of this unqualified advice. For example, because of 1-3 above, I had no sleep for 4 weeks. I appreciate people are trying to be helpful, but we had a Mexican chap here who was clearly stressed about his own situation. Someone told him he would either have his prostate removed or HT. What the heck is that based on? The Mexican hadn't even had an MRI at that stage. It's incredibly dangerous, reckless and stupid.

It would be interesting to know how much genetics plays a part in PCa diagnoses. 1 in 8 men will be diagnosed with PCa. It would be wrong to assume that 12.5% of the population are eating unhealthily, and therefore bad diets is the cause. I suspect that, in a certain percentage of cases of PCa, the cause is already determined on conception, rather than whether you ate more Beef than chicken in your life.

I hope I don't come across as nasty or rude, but I do wish there was more consideration made before posting. People usually come here full of fear, anxiety and stress.

I also wish that, instead of asking amateur nurses and doctors on here what to do, people would seek the advice of their doctors and nurses.

And I'm not even going to mention the supposed link between cycling and PCa. Again, if there was such a link then the NHS would update their advice.

Let's hope that we get a better test than the PSA test, that more research is carried out into diets, that there is less over-treatment for cases which have a low chance of metastisis, and that there are ways to cure folks who have suffered with metastisis. A lot of progress is being made.

User
Posted 08 Mar 2024 at 18:23

Originally Posted by: Online Community Member
Dairy isn't the only big issue for young prostates - it's red meat and processed food, neither of which are consumed in high volume in the far East or mediterranean.

There is some reliable research about diet & prostate cancer but essentially, the science suggests it is what a boy eats before he reaches adulthood that determines his future prostate health. There is some research to support the idea that diet can slow down the progression of advanced PCa but, as stated by others, diet isn't going to make an ounce of difference (in terms of the cancer cells) to men diagnosed and on a curative pathway. What dietary changes can do is make a man fitter, healthier and less vulnerable to other health issues that may be associated with cancer treatment.

 

Do you have a link for the reliable research about diet and PCa please?  Do you also have a link to the science that suggests pre-pubescent diet determines future prostate health?  I think it would be useful to annotate advice with such links  - that's not me being churlish, but it is me trying to get more information on which I can make better informed judgments (apart from requiring a time machine to snatch that burger out of my 12 year old hands).   Actually, saying that, I was thin as a rake until I got to my 30s, then it all went downhill as I got my dadbod.  

User
Posted 09 Mar 2024 at 20:19

Just to say since the posts I made in this conservation I have learnt  about the role  of DHT and prostate cancer 

They talk about testosterone being the cause of Pca  but it's DHT  - which is converted from testosterone by the enzyme 5alpha reductase - that is the culprit 

5alpha reductase increases when a man gets older  whereas testosterone decreases

Makes sense now - I couldn't figure out why older guys mainly got Pca when their testosterone is declining - they are making more DHT bc the 5alpha reductase is increasing 

Just check out how to reduce DHT if you need dietary guidelines to fight prostate cancer 

You could give up cows milk and have soya milk instead - an easy switch 

Have a large slice of watermelon every day 

Have flora vegan low fat marg a fabulous new product instead of butter

Have a desertspoon of flaxseed oil everyday 

Eat organic cucumber 

Rocket 

Lots of wild fish ie haddock cod 

I could go but like I said check out DHT and it's role in prostate cancer  

The other thing to bear in mind is heart health - a healthy heart means a healthy prostate  you mention your Dad has blocked arteries 

Edited by member 10 Mar 2024 at 07:38  | Reason: Add more info

User
Posted 10 Mar 2024 at 18:28

Originally Posted by: Online Community Member

Just to say since the posts I made in this conservation I have learnt  about the role  of DHT and prostate cancer 

They talk about testosterone being the cause of Pca  but it's DHT  - which is converted from testosterone by the enzyme 5alpha reductase - that is the culprit 

5alpha reductase increases when a man gets older  whereas testosterone decreases

Makes sense now - I couldn't figure out why older guys mainly got Pca when their testosterone is declining - they are making more DHT bc the 5alpha reductase is increasing 

Just check out how to reduce DHT if you need dietary guidelines to fight prostate cancer 

You could give up cows milk and have soya milk instead - an easy switch 

Have a large slice of watermelon every day 

Have flora vegan low fat marg a fabulous new product instead of butter

Have a desertspoon of flaxseed oil everyday 

Eat organic cucumber 

Rocket 

Lots of wild fish ie haddock cod 

I could go but like I said check out DHT and it's role in prostate cancer  

The other thing to bear in mind is heart health - a healthy heart means a healthy prostate  you mention your Dad has blocked arteries 

 

Look guys, I really am sorry for pushing this.  But, where are you getting this evidence from?  Where are the linked, peer-reviewed studies?  I am sure you all mean well, but I asked a few days ago for extra information and none has been forthcoming.  Instead, we have a post like the one above which adds more unqualified information that contradicts previous unqualified information.

A lot of people will be passively reading these forums, and a lot will take the advice at face value believing it will help them.  

What is the difference between organic cucumber and non-organic?  

You give off "this is a fact" vibes in your responses (which I am sure are well intentioned) - but please, when claiming you have found information that backs up a claim - LINK IN THE STUDY SO WE CAN SEE FOR OURSELVES.

It's dangerous.  It really is.

User
Posted 10 Mar 2024 at 18:43
"You could give up cows milk and have soya milk instead - an easy switch

Have a large slice of watermelon every day

Have flora vegan low fat marg a fabulous new product instead of butter

Have a desertspoon of flaxseed oil everyday

Eat organic cucumber

Rocket

Lots of wild fish ie haddock cod "

OK, some questions

1) Where is the evidence that cow's milk causes prostate cancer? Man has been drinking it for centuries, and our intake is lower than 50 years ago. My grandad would "Drinka Pinta Milka Day". So would loads of people in his generation. But, prostate cancer incidences are now higher than they were 20-30 years ago.

2) I love watermelon. But, where is the evidence that this defeats or prevents Prostate Cancer. What about other melons?

3) Flora vegan low fat margerine makes sense for anyone trying to lose weight. But, as it is a new product, there will be no evidence that links it to preventing, staving off, or fighting Prostate Cancer

4) Flaxseed Oil. You guessed my question - where is the evidence?

5) Eat organic cucumber. Is non-organic dangerous? What is the difference. Please tell me.

6) Rocket - again, why this particular salad item? Why not lettuce, kale, avocados?

7) Wild fish - Again, point us to the studies.

All the above will form part of a healthy diet (as per NHS guidelines, plus guidelines offered around the world). But, you are dressing it up to sound like the answer, the holy grail. You are also, potentially, creating an environment where PCa sufferers may start blaming themselves for their dietary choices - choices that are mimicked by millions in the UK, Europe and US. If it was this easy, how come it is you (no disrespect) giving us the answers, and not the Health Industry?

Please consider carefully before posting advice that you dress up as definitive when it is anything but.

Not just you, but I think a few on this forum - including the amateur doctor who has me at an increased state of anxiety by claiming PCa will become a problem for me in 10 years. The same one who diagnosed that the Mexican chap who asked for help will need certain treatments even before he has had an MRI.

DANGEROUS FOLKS.

User
Posted 10 Mar 2024 at 21:05

As with any patient forum, you really need to hang around for a while to see who is giving useful info and who isn't. Anyone who uses the internet needs to understand critical thinking, verification of sources, etc. which isn't something many people first exposed to the internet in adulthood will have ever learned, unless you work in a science or research environment. (It is now taught in schools, but that's relatively recent.) Generally, incorrect info is corrected quite quickly here because there are a number of very expert patients, certainly better than most other forums I've been on. This poster has been posting her private theories for a while - a mixture of things she's read which are correct, but then misunderstanding how they apply (DHT is a great example, which has previously been explained, but she seemingly didn't understand). On the basis of this, she seems to have stopped her husband having hormone therapy and put him on watermellon/soya/etc instead, which is incredibly dangerous if he actually needs hormone therapy, and yes, it is dangerous if others read those posts and think there's any validity in them, which is why it's important to correct them. I think people may have given up correcting her because it just looks like you're picking on people, which she has already complained about. However, most here will know the reliability of those postings - you may have turned up just after those initial postings and the responses correcting them.

User
Posted 10 Mar 2024 at 22:49

Originally Posted by: Online Community Member

As with any patient forum, you really need to hang around for a while to see who is giving useful info and who isn't. Anyone who uses the internet needs to understand critical thinking, verification of sources, etc. which isn't something many people first exposed to the internet in adulthood will have ever learned, unless you work in a science or research environment. (It is now taught in schools, but that's relatively recent.) Generally, incorrect info is corrected quite quickly here because there are a number of very expert patients, certainly better than most other forums I've been on. This poster has been posting her private theories for a while - a mixture of things she's read which are correct, but then misunderstanding how they apply (DHT is a great example, which has previously been explained, but she seemingly didn't understand). On the basis of this, she seems to have stopped her husband having hormone therapy and put him on watermellon/soya/etc instead, which is incredibly dangerous if he actually needs hormone therapy, and yes, it is dangerous if others read those posts and think there's any validity in them, which is why it's important to correct them. I think people may have given up correcting her because it just looks like you're picking on people, which she has already complained about. However, most here will know the reliability of those postings - you may have turned up just after those initial postings and the responses correcting 

Don't worry Andy62  I don't think AdyH1927 took any of my advice seriously his opinion of me seems to be as low as your opinion of me 

What a lovely bunch of people you all are 

 

Edited by member 10 Mar 2024 at 22:54  | Reason: Spelling mistake

User
Posted 10 Mar 2024 at 23:06

Originally Posted by: Online Community Member
"You could give up cows milk and have soya milk instead - an easy switch

Have a large slice of watermelon every day

Have flora vegan low fat marg a fabulous new product instead of butter

Have a desertspoon of flaxseed oil everyday

Eat organic cucumber

Rocket

Lots of wild fish ie haddock cod "

OK, some questions

1) Where is the evidence that cow's milk causes prostate cancer? Man has been drinking it for centuries, and our intake is lower than 50 years ago. My grandad would "Drinka Pinta Milka Day". So would loads of people in his generation. But, prostate cancer incidences are now higher than they were 20-30 years ago.

2) I love watermelon. But, where is the evidence that this defeats or prevents Prostate Cancer. What about other melons?

3) Flora vegan low fat margerine makes sense for anyone trying to lose weight. But, as it is a new product, there will be no evidence that links it to preventing, staving off, or fighting Prostate Cancer

4) Flaxseed Oil. You guessed my question - where is the evidence?

5) Eat organic cucumber. Is non-organic dangerous? What is the difference. Please tell me.

6) Rocket - again, why this particular salad item? Why not lettuce, kale, avocados?

7) Wild fish - Again, point us to the studies.

All the above will form part of a healthy diet (as per NHS guidelines, plus guidelines offered around the world). But, you are dressing it up to sound like the answer, the holy grail. You are also, potentially, creating an environment where PCa sufferers may start blaming themselves for their dietary choices - choices that are mimicked by millions in the UK, Europe and US. If it was this easy, how come it is you (no disrespect) giving us the answers, and not the Health Industry?

Please consider carefully before posting advice that you dress up as definitive when it is anything but.

Not just you, but I think a few on this forum - including the amateur doctor who has me at an increased state of anxiety by claiming PCa will become a problem for me in 10 years. The same one who diagnosed that the Mexican chap who asked for help will need certain treatments even before he has had an MRI.

DANGEROUS FOLKS.

 

 

Hold up mate my dietary advice isn't dangerous ?

 

don't put me on a par with someone predicting cancer in your future or someone insisting someone must have treatment before they even have a diagnosis 

 

Eating rocket and watermelon last time I checked isn't DANGEROUS 

User
Posted 10 Mar 2024 at 23:09

Originally Posted by: Online Community Member

Don't worry Andy62  I don't think AdyH1927 took any of my advice seriously his opinion of me seems to be as low as your opinion of me 

What a lovely bunch of people you all are 

 

 

I don't have a low opinion of you.  What I have asked is for you to link in the evidence that backs up your assertions.  I have done the same for Lyn Eyre here too, and also the poster who stated that PCa will be an issue for me in 10 years based on absolutely no scientific evidence at all.

My main concern is that some people will take your advice at face value and change the way they feel they should be treated.  That could, indirectly, lead to a poor prognosis for that person.  If that is your defnition of being "lovely" then at least show the evidence that backs it up.  Because I have unpicked your advice and asked further questions you think that I have a low opinion of you.  Of course I don't.  I don't know you.  But, I will not apologise for asking anyone to share their evidence here so that it can be discussed.  I also hope that your failure to provide links will serve as a red flag for anyone who is currently taking your unsubstantiated claims seriously.

Of course, you could correct a lot of that (and actually provide help to others) by posting links to the peer-reviewed journals and studies that categorically state that your claims are correct.

User
Posted 10 Mar 2024 at 23:15

Originally Posted by: Online Community Member

 

Hold up mate my dietary advice isn't dangerous ?

 

don't put me on a par with someone predicting cancer in your future or someone insisting someone must have treatment before they even have a diagnosis 

 

Eating rocket and watermelon last time I checked isn't DANGEROUS 

 

I think it is dangerous if you are offering false hope to people that, following your dietary advice will provide a better outcome.  I also think it is dangerous that potential sufferers of PCa (both now and in the future) will read your post and blame themselves because they have always been partial to cheese.  

I don't think you aim to be dangerous, nor mis-leading.  I fully believe you are giving this advice with wholesome intent.  The issue is that you are neither a doctor, nurse, dietician, scientist nor expert in this field.

I have not said that following your advice is dangerous.  I have said it is dangerous if it gives people false hope.  I have also asked for links to studies that back up your claims.  There is nothing rude in me doing that.  But, higher up, you seem to also be linking cycling with PCa - there is no proof that cycling causes PCa.  

 

User
Posted 10 Mar 2024 at 23:57

Originally Posted by: Online Community Member
On the basis of this, she seems to have stopped her husband having hormone therapy and put him on watermellon/soya/etc instead, which is incredibly dangerous if he actually needs hormone therapy, and yes, it is dangerous if others read those posts and think there's any validity in them,

No reason to pull any punches AdyH1927, Lizzo's advice can be dangerous and even life threatening.

While there will often be differing opinions here, based on personal experience and many research papers, we are not "lovely people [sarcastic]"  for challenging Lizzo's google driven nonsense. We are people who have either gone through prostate cancer ourselves, or had people close to us suffer from it, so this isn't Facebook.

Jules

Edited by member 11 Mar 2024 at 00:36  | Reason: Not specified

User
Posted 11 Mar 2024 at 08:23
Quote:

 

No reason to pull any punches AdyH1927, Lizzo's advice can be dangerous and even life threatening.

While there will often be differing opinions here, based on personal experience and many research papers, we are not "lovely people [sarcastic]"  for challenging Lizzo's google driven nonsense. We are people who have either gone through prostate cancer ourselves, or had people close to us suffer from it, so this isn't Facebook.

Jules

If this chauvinist bullying  remark encouraging AdhyH1927  to lay into me for advocating rocket  is allowed (or thanked) it sadly shows this site's values in a bad light 

User
Posted 11 Mar 2024 at 10:14

Originally Posted by: Online Community Member
If this chauvinist bullying remark encouraging AdhyH1927 to lay into me for advocating rocket is allowed (or thanked) it sadly shows this site's values in a bad light

To be quite blunt Lizzo, this site would be better off without you.

Jules

User
Posted 11 Mar 2024 at 10:17
Quote:

Originally Posted by: Online Community Member

 

No reason to pull any punches AdyH1927, Lizzo's advice can be dangerous and even life threatening.

While there will often be differing opinions here, based on personal experience and many research papers, we are not "lovely people [sarcastic]"  for challenging Lizzo's google driven nonsense. We are people who have either gone through prostate cancer ourselves, or had people close to us suffer from it, so this isn't Facebook.

Jules

If this chauvinist bullying  remark encouraging AdhyH1927  to lay into me for advocating rocket  is allowed (or thanked) it sadly shows this site's values in a bad light 

 

Lizzo, why are you saying I am a chauvinist?  I asked you a load of questions to back up your claims with actual studies.  There is nothing prejudicial about that - I am also looking at my diet to see if there are any ways in which I can adapt to protect myself in the future from any chronic disease.  I asked the nurses here directly (all of them ladies by the way) and they told me there isn't really any strong evidence to suggest certain foods cause PCa, and certain foods prevent it.  I followed this up with my GP (a young gentleman of Omani descent) who also said there is no strong evidence.

If you do have strong evidence, then please share the links because it could be very important and useful information.  It could also be that what you have read, and repeated, is not from a peer-reviewed scientific journal.

I do have concerns that passive observers on this forum will read what you say, take it at face value, and start blaming themselves for having a diet that contains a lot of dairy.  You need to add context if you are making bold claims.

I have also asked the same from Lyn Eyre about childhood diet and Prostate Cancer links.  For both of your posts, I also tried Googling to find where your information is coming from, and in neither case was I able to find peer-reviewed studies or recommendations based on studies.  That's not me accusing either of you of passing off incorrect information, and I am definitely not saying it is being done maliciously.  That is me asking for you both to share your links so that I can read them and make my own choices based on the evidence that you both have but do not share.

I have also asked a gentleman on here who told a Mexican chap that he has two treatment options of Prostatectomy or RT - despite the Mexican chap even having had an MRI - what his advice was based on.  This same gentleman told me that PCa will not be an issue for me for 10 years - i.e. I will get PCa in 10 years time.  Based on what?  I have no idea.

Just so that you know this isn't a "female" thing - I have taken advice from female nurses.  Just so you know it's not a possible racial thing, I have taken advice from a Middle-Eastern, Muslim doctor.  Just so that you know it is not an age thing, I have taken advice from a 70 year old Welsh nurse who has worked in this field for 50 years.

In all cases of them giving me advice they all did one thing in common.  They pointed me to, or sent me actual information.  

I appreciate you are going through your own battle right now, and I sincerely wish you well and hope everything goes well.  But, this board is read by hundreds of people - people who are worried about test results, people who are worried about treatments, people who are worried about their own prognoses.  I will say here, for those readers, that no two cases are the same.  That is the advice a female GP gave me when I told her my festering anxieties that were generated from well-meaning, but completely unbased, evidence I was given.  

I appreciate that you are trying to be helpful, but I just don't think the penny is going to drop with some folks on here that, even if the advice is well-meaning, if it is incorrect it can cause apprehension, self-blaming, self-diagnosing, self-treating.  It is irresponsible to give advice as if it is the answer to a problem when that advice is merely an opinion based on anecdotal evidence, self-belief evidence, conspiracy theory evidence (i.e. big Pharma).  The pen is mightier than the sword, but a peer-reviewed scientific journal is mightier than well-intentioned unqualified advice that is misinterpreted, or misunderstood by the author.

I cannot say it clearly enough.  This is being read by people in various states of their own journeys.  From people like me (elevated PSA, followed by normal PSA - now trying to find ways to improve my health, and my prostate health) - to people like the Mexican chap who has an elevated PSA but no MRI or DRE, to people who are undergoing treatment, or have received treatment.  We all, ALL, have a responsibility to make sure that we are supportive people in the same boat, rather than supportive, unqualified, amateur consultants. 

There's a reason why consultants are earning big money - they are clever, have studied for years.  It's also a reason why the wonderful nurses should also be earning big money.  They are worth their weight in gold.  As are those volunteers who donate their time, and emotional efforts, to helping people and relatives.

I have not once criticised you as a person.  I have, however, responded to advice you have given - asking for evidence to back it up.  As a result of that you think I am bullying you.  I just hope that, in the course of reading this thread, that people who are desperately looking for help and advice with diets do two things

1)  Take your advice with a pinch of salt until you provide evidence

2)  Take their concerns to the brilliant nurses on this site and/or their GP/Urologist/Oncologist.

All the people on this forum can legitimately do is share their own experiences.  Giving advice like "It's milk that's done it", or "It's childhood habits that done it", or "In 10 years you'll have it" needs to be backed up with actual science.  Until then it is anecdotary - well meaning yes, factual, not so much. 

Like I say, we all have a responsibility to not be giving advice as if it is completely factual, certainly not without links anyway.  

This is the NHS link to healthy eating:

https://www.nhs.uk/live-well/eat-well/how-to-eat-a-balanced-diet/eating-a-balanced-diet/

 

This is the USDA "My Plate" advice (Note - they say "About 90% of Americans do not get enough dairy. ") 

https://www.myplate.gov/eat-healthy/what-is-myplate

 

This is the , very extensive, Australian advice on Healthy eating

https://www.eatforhealth.gov.au/sites/default/files/2022-09/n55_australian_dietary_guidelines.pdf

 

The overall message from those three, English speaking, Governments is broadly the same.  

User
Posted 11 Mar 2024 at 10:49

As far as I am aware, no-one on this forum is medically qualified? However many are very knowlegeable regarding prostate cancer.

I like to see links attached to support serious posts.

As they say on most financial advice sites.

Do your own research.

Edited by member 11 Mar 2024 at 11:02  | Reason: Typo

User
Posted 11 Mar 2024 at 10:52

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member
If this chauvinist bullying remark encouraging AdhyH1927 to lay into me for advocating rocket is allowed (or thanked) it sadly shows this site's values in a bad light

To be quite blunt Lizzo, this site would be better off without you.

Jules

And instead  be stuck with boring people like you 

Edited by member 11 Mar 2024 at 10:55  | Reason: Spelling mistake

User
Posted 11 Mar 2024 at 11:55

Dear all,

I'd like to give everyone a gentle reminder about the house rules for the community.

Our house rules are 'be supportive', 'be kind' and 'help us keep the community peaceful':

http://prostatecanceruk.org/get-support/using-the-online-community#house-rules

We don't want to start locking threads and issuing warnings to people about their behaviour so please can I ask for everyone to be considerate to each other and respect differing opinions.

Best wishes,
Carol

Digital Manager
Prostate Cancer UK

 

 

User
Posted 11 Mar 2024 at 13:08

Originally Posted by: Online Community Member

Dear all,

I'd like to give everyone a gentle reminder about the house rules for the community.

Our house rules are 'be supportive', 'be kind' and 'help us keep the community peaceful':

http://prostatecanceruk.org/get-support/using-the-online-community#house-rules

We don't want to start locking threads and issuing warnings to people about their behaviour so please can I ask for everyone to be considerate to each other and respect differing opinions.

Best wishes,
Carol

Digital Manager
Prostate Cancer UK

I suspect this is in reference to me challenging unsubstantiated claims and misinformation - at no stage have I been inconsiderate to people, but I have challenged the information they are giving.  I stand by my point that this is dangerous for many reasons, and have mentioned my concerns.  

There is a world of difference between an opinion, and someone giving advice as if it is factual.  If such claims are left unchallenged (in a polite manner), then I really fear that this will become a hot bed of pseudo-science and snake-oil salesmen.  

I make no apologies for challenging those claims, had I been disrespectful to a person I will apologise profusely.  I don't believe I have and I don't believe it is correct that people can pass off statements like "PCa will be an issue for you in 10 years, but not now" or "You will have to choose 2 forms of treatment" to someone who has not even had an MRI scan.

User
Posted 11 Mar 2024 at 13:17

Originally Posted by: Online Community Member

As far as I am aware, no-one on this forum is medically qualified? However many are very knowlegeable regarding prostate cancer.

I like to see links attached to support serious posts.

As they say on most financial advice sites.

Do your own research.

Knowledgeable - yes.  But that is anecdotal - based on their own experiences, experiences of their relatives, and experiences that have been relayed here.  

"Do Your Own Research".  Absolutely.  That does not mean going to Google.  It means calling the fabulous nurses here, a GP, a consultant.  

Until it has been scientifically proven, there are no foods that are known to cause PCa, and there are no foods that are known to prevent it.  Yes, it is interesting to think that Asians are less likely to suffer - diet may be the reason, but so too genetics.  The NHS advice, and that of the USDA and Australian Government, explains what a healthy diet is.  

Just because someone ate a lot of cheese in their life and has, unfortunately, been diagnosed it doesn't mean cheese is the cause. Giving that as advice means that there will be men reading this forum and blaming their lifestyle choices for their diagnosis.  That is why I ask for more responsibility when posting, but this has been misconstrued as me being a chauvinistic bully.  

I wish you all well with your various journeys, and I really hope that information that is presented here is challenged a lot more than it currently is.  You each have a responsibility in posting, think not just about the person you are replying to, but the hundreds of people who read but do not post.

User
Posted 11 Mar 2024 at 13:32

I'm out. I do not think there's a place in this forum for anyone who chooses to advise against life saving treatment for prostate cancer.

Jules

Edited by member 11 Mar 2024 at 13:35  | Reason: Not specified

 
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