A place to have a chat.

User

Posted 21 May 2025 at 11:18

Hi Pratap.

It's lovely that you've popped in mate. I'm so pleased that your result was good as well. I agree that the less than arrow is so important as it means your PSA is less than the lowest level that particular lab measures to

I'm having a telephone consultation with my surgeon at the end of June and will ask him, as I've been undetectable for over two years, if he'll put me on 6 monthly PSA checks instead of every 3 months.

Anyway must leave this virtual pub now and head off to a real pub. I've arranged to have a few pints with a gardening pal of mine. We'll bore each other to death sharing pictures of our plants and shrubs.

User

Posted 21 May 2025 at 12:14

Hi Adrian

hope you feeling wee bit better it’s that whisky 🙈

no I wasn’t posting pics it on emptied site we put pic on that takes away rest o stuff in pic a fot that might been allowed 😣 yea that’s Albie he is 2

OMG A SOOO WISH A COULD SEE YOUR ARLOS HEAD

WE SWAP STICKERS ON MESSAGES ON PHONE BY WHATS APP Or txt sorry forgot caps where on

right need to go was just a quick one to answer Adria

Suzz💚💙🦋

User

Posted 21 May 2025 at 17:07

Hi guys.

Great to hear all the good test results coming back. Always a stressful time.

Had my consultant meeting yesterday afternoon and I’ve updated my thread with the info. We always said this thread is for having a chat and a virtual beer/whisky/vodka not discussing the ins/outs of our respective illness.

But just a quickie… PSA initially went up to 48 but came down to 45 which is good and actually was unexpected. Having so many blood tests now , almost weekly now. So lucky my palliative nurses come and do it at home for me.

Regarding photos on here , it would be great but I suspect cost a lot more to run the website. Maybe they could do it but the photos are removed after a month or a few weeks even. But at the moment I’d just like it to stop giving me errors when it’s loading. 🤷🏼

Take care everyone,

Phil

User

Posted 21 May 2025 at 17:44

Hi Phil

nice to hear from you today. Hope all went good at consultants. I will check profile. Was good that your PSA went down to 45 👏

yea would be grt about photos. I’m always talking bout my grandsons. So tried to do sticker emojis.
I had my youngest on my profile yest & today I got my 17yr old on today. Tomorrow I put Arlo on. Hope it’s ok doing that.

right better go time to put dinner out,but… I be bk on later. For my quadrupole vodka & Diet Coke 🤣

take care peeps

Suzz 💚💙🦋

User

Posted 21 May 2025 at 17:57

For info my more detailed ‘illness’ thread is ‘ Why can’t they treat my lymph node PCa‘

Phil

User

Posted 21 May 2025 at 19:43

Hi Phil,

Just saw your latest update on your thread. We've got our fingers crossed for you and hope that PSA drop is the start of a downward trend. Having a Sol tonight so I'll raise it to your health. Sol? My sister bought me a crate for walking her dog while she was in the States, a beer's a beer 🤷🏻‍♂️

Hope you get your eyes sorted soon, my MIL had hers done last year and elected for the private option.

Seems a bit quiet on Here lately, maybe those annoying error 502's are putting people off?

Cheers,

Kev.

User

Posted 21 May 2025 at 19:59

Originally Posted by: Online Community Member

Seems a bit quiet on Here lately, maybe those annoying error 502's are putting people off?

Its doing my head in! 🤬

Phil, you earlier mentioned, that this thread is for having a chat and a virtual drink not discussing the ins/outs of our respective illness.

As far as I'm concerned, mate, discussing our cancer problems in the virtual pub is fine. In fact, it was one of the main reasons we opened the 'pub', to create a less formal place, where we can chat in general about our lives, including how cancer has affected us. I think we've all become friends in here. Prostate cancer is a problem we all share. As they say a problem shared (especially with mates over a virtual pint) is a problem halved. 🍻

Late edit: Well done, Spurs! 🏆 Plus, Champions League next season. ⚽️

Edited by member 23 May 2025 at 01:39 | Reason: Additional text

User

Posted 24 May 2025 at 14:58

Ah great, were still open! I thought the brewery might have shut us down. Apparently we've upset some of the neighbours. Causing too much noise, apparently. Not so much a case of anti social behaviour but more a case of too much social media behaviour? God, what's the world coming to. What we having lads and lasses?

Edited by member 24 May 2025 at 15:11 | Reason: Not specified

User

Posted 24 May 2025 at 19:20

Hi Adrian

yep I thought the same!
I told you all to keep the noise down. Only because I couldn’t hear myself singing.

hope everyone got home ok last night. Was back o 3 when I got in. Great night had by all I bielieve. Errr I think 🙈.

ok pps back to reality 😔got letter from hosp. Hubbys Gleason is 3+4= 7

i been feeling bit sick reading all the options. Too much to take in all in one day.
Think I might have an early. Will see how I feel after my bath. Where is everyone. It’s Actueally been 2 quiet on here. Guys cmoan I need some advice. Come bk please.
Take care peeps

Suzz💚💙🦋

User

Posted 24 May 2025 at 20:33

Hi Suzz.

Don't worry, Gleason 7 (3+4) isn't bad. Are you now waiting for the consultation before making a treatment decision? Was there any other information in the letter?

Edited by member 24 May 2025 at 20:33 | Reason: Typo

User

Posted 24 May 2025 at 22:34

Hi Adrian

Well that was what we discussed over phone letter says.
Following telephone conversation ,I am writing to confirm that your rescent prostate biopsies revealed moderately form cance (Gleason 3+4=7). Your bone scan was negative. The multidisciplinary team has already organised for you to see the oncology team to discuss the option of radiotherapy.

on phone he said to make a desicion

thanks Adrian.
Suzz 💙💚🦋

User

Posted 25 May 2025 at 16:11

Hi Phil,

Belated congratulations on Spurs win. Unbelievable, it looked to be a fantastic atmosphere. I remember the kick off and then when I woke up Spurs were parading around with the cup 😬. Incredible, you must still be buzzing.

Cheers

Spongebob

User

Posted 25 May 2025 at 23:55

Sorry I'm late into the pub, is it last orders yet? :-).
So, bit of background (I have posted a couple of times in other places) but always nice to know a bit of background about someone.
My name is actually Al, I was diagnosed quite out of the blue on March 13th this year. Had trouble peeing and went for 2 PSA's, 2nd one was 11 so had an MRI when they said it's Stage 4 and has gone into your bones, lymph and bladder. Whirlwind of visits etc and had my first chemo nearly 2 weeks ago. I posted elsewhere about working through Chemo. I work(ed) in a prison and fortunately everyone said don't be a twit, so the Doc signed me off until end of September.
So have bought myself a campervan (well actually my mum did) and am aiming to go away over the summer a few times and have my wife join me at weekends. Just seeing what's happening with Chemo, only had 3 days so far that were spent in bed and am feeling better now.
Main thing is that Alfest which was put back two weeks will be happening next Saturday where I put on a "festival" in my back garden - its a big back garden. Have always loved going to small festivals sometimes by bike so when COVID struck, I started putting on my own.
I download actual concerts then broadcast them on Tellies and a sound system in the back garden. It's grown a bit over the years and I'm quite proud of myself this year - went round and bought 4 cheap 42" and a piece of hardware which links them all and creates a video wall where it can split a video over the 4 screens. Really looking forward to having that playing on Saturday so no high winds and rain wanted!
Talk Soon

Al

User

Posted 26 May 2025 at 06:40

Hi Al,

Pleasure to meet you, mate. There are a couple of our regulars that have had chemo and if you have any problems, I'm sure they'll help you out.

Your outdoor home entertainment system sounds awesome. You must have better neighbours than me. 🙂

What's your tipple?

User

Posted 26 May 2025 at 08:30

Hi Al,

Always good to see a new visitor in the virtual pub, it's open 24x7 so never closes. Your sound system will come in handy at our virtual Xmas and new year discos, or even big sporting events.

I've not had chemo but I hope you're coping well and that it's effective.

In other news: All eight of our bluetit chicks fledged successfully yesterday morning, didn't see them all go, turned on the camera to see the last one sat in the box and saw it fly past the window half an hour later.

Cheers,

Kev.

Edited by member 26 May 2025 at 09:50 | Reason: Typo

User

Posted 26 May 2025 at 08:53

Hi Al,

I’m a big fan of Porridge, do you model yourself on Mr Mackay or Mr Barraclough? Fantastic idea to have concerts in your back garden, I’m not sure I’d get away with it around here although it would probably change some of expressions on my neighbours faces. Certainly puts my whistle while you work musicbox on the allotment in the shade 😬.

Sounds like you are smashing that chemo - keep going.

Cheers

Spongebob

User

Posted 26 May 2025 at 14:18

Originally Posted by: Online Community Member

I’m a big fan of Porridge, do you model yourself on Mr Mackay or Mr Barraclough?

Be careful mate. Al might be like Capt Bryon Hadley off the Green Mile and give you a good thrashing.

Joking apart, he wasn't a PO he was a tutor.

User

Posted 26 May 2025 at 14:53

Ah - a prison tutor, right. So not Mr MacKay or Barraclough, doh! I used to be a school teacher in a previous life, and from my experience I can imagine that prisoners might often have been a better option than teaching bottom set 5th year kids. In one school, my first lesson with class 5L (the bottom set) was a nightmare. Because they'd all actually turned up that day just to see the new teacher (me), but after 10 minutes most of them had seen enough with several jumping out the window and escaping! I think I ended the lesson, such as it was with half a class full because I'd also jettisoned several out onto the corridor. By the end of the year, I'd only get 4 or 5 kids turning up to lessons, and I'm not sure why they did, because they didn't take exams. I used to take them out for a drive, in my Austin Allegro, we'd go over to Halifax to look around the Piece Hall and stuff. Bet you can't do that these days, with hundreds of permission forms to fill in etc.

User

Posted 26 May 2025 at 15:40

I bet you were a real cool teacher Spongebob. We had a really cool biology teacher, Mr Mathias. He taught biology and allegedly used to drink ethanol cocktails out of the same blender we used for whooshing up frogs and earthworms. 👍

He used to wear cowboy boots with his lab coat and smoke cigarillos, he would have frightened Clint Eastwood to death.

Edited by member 27 May 2025 at 06:05 | Reason: Not specified

User

Posted 26 May 2025 at 16:03

I was far from being cool, and only managed to survive it for about 3 years in various schools, including on the Isle of Man. I don’t think I’d be around today if I hadn’t got out when I did. Enormous respect to any successful teacher. Mind you it gave me plenty experience, I could write a book or two of tales on that chapter of my life.

Your biology teacher sounds like a real character. Clint Eastwood - excellent! I found that Science teachers often made the best nutters 😬. Messing about with chemicals and making explosions gives them plenty opportunity to entertain.

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