Incontinence update

After my RARP I was given 12 sessions and it helped enormously to get control of the right muscles to control incontinence.

It involves a TENS like probe inserted into the rectum that electrically stimulates the muscles for about 15 minutes. Then you have to clench the muscles around the probe to make a pointer follow a line on the screen - this is called Bio Feedback and is another 15 minutes or so. I had 2 sessions per week.

Hi Debbie and Steve.

 It's fantastic news that the PSA is so low. Was there an < arrow in front of the 0.05? At one of the labs that do my PSA test, they only measure as low as 0.05, anything below this (<) is deemed undetectable.

However, the incontinence issue must be difficult.

I was non nerve sparing, so ED tablets were useless. I didn't want to try the pump, so at my first ED clinic, which was about at the stage Steve's at now, I was prescribed Invicorp and it worked!

I had the peeing during sex issue for many months. I think the name for it is climacturia. Obviously emptying the bladder pre rumpy pumpy seemed to reduce the splashing.

For weeks, to combat the urine/sex problem, we used to throw a heavy duty plastic table cloth over the bed. Several times, we were lucky to avoid skeletal damage slipping off it. 😁

I'll add a link to my Invicorp thread. Even if sex due to climacturia is difficult, I'm sure just seeing that an erection is once again possible, would hearten you both. It did us.

https://community.prostatecanceruk.org/posts/t29845-Hooray-for-Invicorp

Edited by member 23 Jul 2024 at 09:37  | Reason: Add link

Hi DJC44,

I can only agree with what others have suggested.  Use a cock ring (as tight as manageable) or even better, a tension ring (which comes with some pumps or can be ordered from imedicare).  ( I have no connection to this company).  Note that the tension ring goes around the base of the penis only, whereas the cock ring goes around the penis and testicles.  You can wear a tension ring and a cock ring at the same time, if it's not too uncomfortable.  I use both together and it works for me.  I never leak.  However, do be careful when you're finished and are removing them.  You may well leak then, so have a paper towel or something handy.

Best wishes,

JedSee.

Hi Ian…great you got the op out of the way, it’s early days for you so wishing you a speedy recovery!

hope all goes well with the TWOC and really hope you’re one of the lucky ones who are dry from the get go! I’ll follow progress! Fingers crossed for best outcome possible on the biopsy too, I know it’s an anxious time!

I have been reading the posts but not had much to say, I think waiting for the urology appointment this week to see what came of that.

despite the incontinence and whatever we have to suffer with the ED…we still know it was the right decision for Steve to have RARP.  I think we were expecting the Incontinence to have improved by now but I guess we will have to be patient a bit longer!

take care

Debbie