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Just diagnosed Gleason 6

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User
Posted 04 Aug 2024 at 18:30

I’m 54 and after 4 benign feeling dre and a MRI pi-rads 2 ( and clear said the consultant) a psa dropping from 8.3 to 6 I opted for a biopsy of which 2 of 14 cores showed Gleason 6 (3+3) 

im on active surveillance for now but finding it difficult mentally to get my head around 

so thinking about RP but am I jumping the gun abit 

User
Posted 04 Aug 2024 at 18:30

I’m 54 and after 4 benign feeling dre and a MRI pi-rads 2 ( and clear said the consultant) a psa dropping from 8.3 to 6 I opted for a biopsy of which 2 of 14 cores showed Gleason 6 (3+3) 

im on active surveillance for now but finding it difficult mentally to get my head around 

so thinking about RP but am I jumping the gun abit 

User
Posted 04 Aug 2024 at 23:08

You may find some of the posts and links in this recent conversation to be of interest.

https://community.prostatecanceruk.org/posts/t30809-post-histology-report#post298408

 

User
Posted 09 Aug 2024 at 14:04

Hi Craig

I was diagnosed as Gleason 6 following biopsy. There is a ~44% chance of upgrade post surgery histology. I’m pleased I ignored the MDT and didn’t hang about…I moved quickly to have a retzius sparing RARP + neuroSAFE and post histology showed the cancer was far more extensive and very close to going t3. Final histology was T2c 3+4. I’m a great believer in getting cancer removed asap as less opportunity for micro mets. Even type 3 cells exhibit all the traits of cancer cells and can migrate …although less likely at that stage. I’ve seen quite a few folks on here go on AS when T2 then find the uncomfortable news after a period of time that things have progressed.

Be cautious of DRE’s as these don’t normally pick stuff up until locally advanced. MRIs, while a critical tool, don’t always tell the full story as was very evident in my case. It’s also worth being mindful that prostate cancers have a tendency to develop in the anterior of the gland. 

Edited by member 10 Aug 2024 at 06:28  | Reason: Not specified

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User
Posted 04 Aug 2024 at 23:08

You may find some of the posts and links in this recent conversation to be of interest.

https://community.prostatecanceruk.org/posts/t30809-post-histology-report#post298408

 

User
Posted 05 Aug 2024 at 21:27

Hi Craig T.,

Sorry that you find yourself here.  It's a difficult choice.  You could have many healthy years of life at Gleason 6 (3+3), without any intervention.  Surgery, radiation and hormone therapy all have their downsides, not least on your sex life.  However, if you do decide to remain on Active Surveillance, just make sure that it is 'Active'.  If you haven't already been told, you need to know how often they are going to do PSA tests and MRI scans.  (A typical pattern seems to be 3-6 monthly for the PSA test and annually for the MRI).  If they 'forget' you (as sometimes seems to happen) you may need to remind them that you're due for your next test.  

Best wishes in whatever you decide to do.

JedSee.

User
Posted 09 Aug 2024 at 14:04

Hi Craig

I was diagnosed as Gleason 6 following biopsy. There is a ~44% chance of upgrade post surgery histology. I’m pleased I ignored the MDT and didn’t hang about…I moved quickly to have a retzius sparing RARP + neuroSAFE and post histology showed the cancer was far more extensive and very close to going t3. Final histology was T2c 3+4. I’m a great believer in getting cancer removed asap as less opportunity for micro mets. Even type 3 cells exhibit all the traits of cancer cells and can migrate …although less likely at that stage. I’ve seen quite a few folks on here go on AS when T2 then find the uncomfortable news after a period of time that things have progressed.

Be cautious of DRE’s as these don’t normally pick stuff up until locally advanced. MRIs, while a critical tool, don’t always tell the full story as was very evident in my case. It’s also worth being mindful that prostate cancers have a tendency to develop in the anterior of the gland. 

Edited by member 10 Aug 2024 at 06:28  | Reason: Not specified

User
Posted 09 Aug 2024 at 14:40

Hi Craig

 

I was 3+4 T2c originally, but 3+4 with TGP5, T3a post surgery, so I'm tempted to agree with TechGuy on this one.

User
Posted 10 Aug 2024 at 16:51

Thanks guys for your advice much appreciated 

User
Posted 03 Sep 2024 at 17:59

Hi CraigT, Just been reading your post, I was diagnosed when I was 50 with 3+3 psa 6.8. I am now 57, I’ve been on active surveillance since. I had an mri every 2 years and psa every 6 months, I’ve just had a biopsy done and my results came back at 3+4 ( 3 cores) with my psa hovering around 5.4 and pirads 3. I’m still on surveillance but my psa tests now are every 3 months and mri is yearly. I decided to take a cautious route as my consultant said I could have more issues by having treatment  done, he said it was best to stay on active surveillance as long as possible as I was quite young at the time. I still happy to be on active surveillance at the moment, I have always said if I have to have it removed I will do or if treatment needed I’m quite happy to start. I do know that I will have to make a decision at some point. Good luck with what ever you choose to do.

Edited by member 03 Sep 2024 at 18:00  | Reason: Not specified

 
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