Hi Whitey
I guess you know by now that nobody who has had prostate cancer treatment can provide a definitive answer. We all follow the latest developments, particularly in the treatments we have had and read about other men's experiences. This can be more confusing than helpful at times, but obviously it helps to talk to and listen to others. On my part, I can only comment about my experience and how I feel about my choice now. I had prostatectomy over 12 years ago, cancer was well contained in the gland with good margin, my urologist was very experienced in robotic surgery but encouraged me to consult other specialists. Getting 'rid' of the tumour and the possibility of a permanent cure was probably the deciding factor for us, notwithstanding the risk of incontinence and ED. In the event, following a rather an eventful surgery (6 hours!) and not very easy recovery (catheter for over 5 weeks!), I now have recovered with 99.9% continence (urine leakage is, for us, not a serious problem). I suffer from ED but because I had surgery at the age of 72 we were thinking of finding a solution to that problem anyway. We - it was a joint decision - think made the right choice; hindsight is a wonderful thing! One of the major issues with this disease is obviously it effects couples' sex lives. If you are, young and fit and lucky to have a successful nerve-sparing surgery you may not suffer from an ED problem, incontinence is not too serious an issue, if luck is on your side. In any case there are many options to re-establish your intimate life. We found a method which suits us and are now living a happy and a fulfilling life.
Do your research, talk to as many specialists as you can, you have come to the right place here to get great support from others who are going through various stages of treatment and making the best of their lives. I wish you well. This disease, terrible as it is, is survivable. You are relatively young and can expect a good outcome. Good luck.
I have written at length about our experience which you may like to read at the following link:
https://community.prostatecanceruk.org/posts/t28948-Re-establishing-Sex-Life
Edited by member 26 Sep 2024 at 11:08
| Reason: spelling correction
'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.' Richard Feynman (1918-1988) Nobel Prize laureate |
User
I used the NHS Prostrate predict tool as a method of deciding between surgery or radiotherapy, after seriously considering both options I decided to go with 3months HT and 20 sessions of Radiotherapy, once my mind was made up I felt much better, cheers
John
User
I think nearly everyone feels better once a treatment plan in place. With only 3 months of HT hopefully your side effects will be minimal.
User
User
15 years ago, radiotherapy was nowhere near as accurate as it is today.
User
User
Hi Whitey,
I took the Brachytherapy route mainly because i didn't fancy the knife.I think most of the guys on here would agree with my results over the last 8 years as being very good with only some ED problems but at 78 would ED have been any better without Brachytherapy .
My PSA was 2.19, Gleason 3+4=7 if you click on my Avatar you can see my journey so far. My only other comment is try to speak to members on here about how long to stay on AS as a few of them left it to long.
John.
User
They've both made massive advances over the last 15 years, but if you look at the last 6 or so years, radiotherapy has made many big advances which are now standard of care on the NHS, whereas prostatectomy has not advanced much. Neurosafe never became available as standard on NHS except at the Lister@Stevenage, although a newer version which doesn't require the histopathologist to be present in theatre is now being tried. Retzius sparing started becoming available in a small number of specialist centres, but the original specialists in it have almost all gone private and some centres which offered it on the NHS no longer do.
So in terms of advantages to NHS patients, I think radiotherapy has been improving significantly faster in recent years. Much of this is down to the competition between Varian and Elekta (manufacturers of radiotherapy equipment), who leapfrog each other in the provision of new radiotherapy treatments.
Genetic and cell therapy will become important but will be too expensive for the NHS to offer.
Edited by member 30 Sep 2024 at 10:51
| Reason: Not specified