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Giving up hope on return of Erections

User
Posted 22 Jan 2025 at 15:14

Had RARP IN July 2022. Age 56

Nerve sparing.

Good erectile function pre op and no other illnesses or disease which would predispose to ED.

Now about 30 months and no natural erectile activity whatsoever.

I really hoped I would have been in the group that would have seem some recovery but am now losing any hope I will ever get spontaneous erectile activity.

Have used tadalafil 5mg daily since 6 weeks post op, occasional sildenafil 100mg but nothing.

I do get a decent erection with invicorp but Im struggling with supply from local chemists as well.

 

I know folk say up to 3 years but John Mulhall Prof at New Yorks Sloan Kettering clinic pretty much says that if there aint anything happening at 2 years it aint gonna 🙁

I think one event that effected the outcome was the fact I had an anastomotic leak 6 weeks after surgery and had a collection in the pelvis causing inflammation.

Anyone give me some hope!!

User
Posted 22 Jan 2025 at 16:12

I'm afraid I can't Joe. Almost two years since I had non nerve sparing RARP. I'm dead as a dodo down below, even my memory foam mattress has forgotten what sex is.

However, like you, Invicorp gives me enough of a stiffy for penetration. It's nowhere near as good as pre op but better than nowt. I try and comfort myself in the knowledge that I had more than my fair share of nookie before PCa stopped play.

PS: I've only once, had a two week  delay in Invicorp supply, and get it free on prescription from my GP.

Best of luck mate.

Edited by member 22 Jan 2025 at 16:31  | Reason: Typo

User
Posted 22 Jan 2025 at 18:52

I wish I could give you hope, but I am afraid I could not. I also had bi-lateral nerve sparing surgery roughly at the same time as you, I do get some swellings if I am aroused, but never attempted to use it in anger. I do however use a Vaccurect VED, which works for me, never tried Invicorp, but I tried other injections a few times and don't like needles. I also use the 20mg tadalafil 2/3ce a week.

I have not given up hope of getting a natural erection though!

User
Posted 22 Jan 2025 at 20:18

Hi from France,

My husband has cystoprostatectomy (nerve sparing) in August 2022 (he was 71 years-old, excellent physical condition and .excellent erections which we used nearly everyday). As soon as the catheter was removed we had sexual contacts everyday. And my husband had orgasms like before surgery, sometimes more intense. Very often oral sex. In the first months tadalafil or sildenafil had no effect. We never focused on erection. Now with 100 mg of sildenafil or 20 mg valdanafil he gets satisfying erections and sometimes (since 3 months) he does not need any drug. Don't give up. Practice and practice and practice. Try to begin sexual activity in unusual places (kitchen, dining room , ..., instead of bedroom).  And don't start physical contact with erection in your mind. It is the best erection killer

User
Posted 22 Jan 2025 at 23:24

Originally Posted by: Online Community Member
Don't give up. Practice and practice and practice. Try to begin sexual activity in unusual places (kitchen, dining room , ..., instead of bedroom). 

We've tried that and are now banned from Tesco.

User
Posted 23 Jan 2025 at 08:16

Joe, I often include a phrase when talking about sexual activity recovery, "never give up and have fun finding a solution". I am heading for 11 years since non nerve sparing RARP. I still get the odd surprise, not a full erection, I also get that tingle in the balls. You don't need an erection for vaginal intercourse, we mastered the flaccid insertion technique, we have to keep the windows shut when making love 

I hate the injections and yes the supply issue is annoying.I seem to recall Lynneyre saying Johns recovery didn't happen within the so called two year window. So never give up use the pump do some frequent exercise, better if someone gives you a helping hand. Think outside the norm, experiment and have fun. Google " a touchy subject" and look at the info Victoria gives.

Thanks Chris 

User
Posted 23 Jan 2025 at 14:36

Stop thinking about your nerves. Such thoughts are erection killers as I already wrotte (and experienced at home). And practice...

User
Posted 23 Jan 2025 at 15:19

I had prostatectomy 14 years ago. My consultant told me at the time that he would do his best but in his experience of having carried out a large number of prostatectomies, he advised men that post-surgery erectile function, in most cases, is unlikely to return to the pre-surgery level. He was absolutely correct in my case and after a short time I gave up even trying. If you can't get a good enough natural erection the best option is to create one. There are many options: I opted for VEDs and have been using it very successfully since my surgery. I can now achieve erections which would me envy of my younger self - I am boasting but not kidding!

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate

 

 

User
Posted 27 Jan 2025 at 18:04

🤣🤣 Adrian, made me chuckle 

Edited by member 27 Jan 2025 at 18:04  | Reason: Not specified

User
Posted 27 Jan 2025 at 21:49

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member

Hi Joe,

I am a couple of months ahead of you having had my op in May 22. I too had nerve sparing. 80%, 3 of the 5 on my right hand side and all 5 on my left. So partial sparing. For the first year, I had pretty much nothing compared to pre op. Which when i thought back to, left me absolutely gutted and stripped of my masculinity. Horrendous mental stuff. 

It improved week by week, but not at the speed I'd hoped and anticipated for. Going into year 3 I noticed ever so slight improvement that seemed to have hit a point that I would just have to embrace and accept as my new normal.

Non sum qualis eram.

However.

So at the beginning of last week I finally got round to doing my self assesment tax return. Naturally its not something to be happy or excited about. Anyway, it turns out I owe Hector 4 grand more than I had anticipated. Heartbreaking stuff. properly p****d me off. So it was at this excat moment, around half past 1 in the afternoon, that I decided was as good a time as any to take myself to the bathroom and knock a dry one out with this once magnificent appendage. Now, there will probably be women reading this thinking, What the actual f... , after filing a tax return?...I know. And they would be right to ask that. Im not proud. However Im almost certain there will be an equal amount of men thinking... after filing a tax return? Sounds as good a time as any. Its just the way we are programmed. Anyway, what happened next was scarcely believable. For the first time since my op I had a natural erection that was pretty close to my pre op days. I was shocked and obviously excited at the same time. The fear was it might just be a one off , maybe because I was on my own and my good lady wont get to share this wee moment with me ,but no,  Ive had the same each day for 12 days now. I seem to have just rapidly turned another corner with this. 

As usual with me I have probably been too candid. I happily paid Hector his extra 4K. Im over the moon. However bloods are to be taken on Monday morning and it might all fall to s***. Cant do much about that.

Heres hoping you too suddenly turn a corner Joe. Good luck ma man.

Jamie.

 

 

That's has fair cheered me up up Fullscreen. Hope yet. Really pleased for you!!!

 

PS bit of a bummer about the tax 😐

Local pharmacy just got some supplies in of Invicorp so another thing to cheer me up!!

Hey Joe, 

Apologies, reading my text back sounds almost facetious. I dont mean it to sound like that. I was just a much happier man having found a step forward on this journey.  Ive improved. Not fully. Im not great in the sitting position with any hopefully found new erection. No idea why that might be. But improvement none the less to feel I can shout about it on here. 

As Neu said earlier, its about finding what works for you and that special someone close to you.

Seek that out and prostate cancer can go and take a f... to itself.

Much love.

 

Jamie.

 

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User
Posted 22 Jan 2025 at 16:12

I'm afraid I can't Joe. Almost two years since I had non nerve sparing RARP. I'm dead as a dodo down below, even my memory foam mattress has forgotten what sex is.

However, like you, Invicorp gives me enough of a stiffy for penetration. It's nowhere near as good as pre op but better than nowt. I try and comfort myself in the knowledge that I had more than my fair share of nookie before PCa stopped play.

PS: I've only once, had a two week  delay in Invicorp supply, and get it free on prescription from my GP.

Best of luck mate.

Edited by member 22 Jan 2025 at 16:31  | Reason: Typo

User
Posted 22 Jan 2025 at 18:52

I wish I could give you hope, but I am afraid I could not. I also had bi-lateral nerve sparing surgery roughly at the same time as you, I do get some swellings if I am aroused, but never attempted to use it in anger. I do however use a Vaccurect VED, which works for me, never tried Invicorp, but I tried other injections a few times and don't like needles. I also use the 20mg tadalafil 2/3ce a week.

I have not given up hope of getting a natural erection though!

User
Posted 22 Jan 2025 at 19:19

Last week the nurse at the hospital told me there was a supply problem with Invicorp and the pharmacy have confirmed they can't get any at the moment. 

User
Posted 22 Jan 2025 at 20:18

Hi from France,

My husband has cystoprostatectomy (nerve sparing) in August 2022 (he was 71 years-old, excellent physical condition and .excellent erections which we used nearly everyday). As soon as the catheter was removed we had sexual contacts everyday. And my husband had orgasms like before surgery, sometimes more intense. Very often oral sex. In the first months tadalafil or sildenafil had no effect. We never focused on erection. Now with 100 mg of sildenafil or 20 mg valdanafil he gets satisfying erections and sometimes (since 3 months) he does not need any drug. Don't give up. Practice and practice and practice. Try to begin sexual activity in unusual places (kitchen, dining room , ..., instead of bedroom).  And don't start physical contact with erection in your mind. It is the best erection killer

User
Posted 22 Jan 2025 at 23:24

Originally Posted by: Online Community Member
Don't give up. Practice and practice and practice. Try to begin sexual activity in unusual places (kitchen, dining room , ..., instead of bedroom). 

We've tried that and are now banned from Tesco.

User
Posted 23 Jan 2025 at 05:29

It's better to be banned from Tesco than from the best restaurant !

User
Posted 23 Jan 2025 at 08:16

Joe, I often include a phrase when talking about sexual activity recovery, "never give up and have fun finding a solution". I am heading for 11 years since non nerve sparing RARP. I still get the odd surprise, not a full erection, I also get that tingle in the balls. You don't need an erection for vaginal intercourse, we mastered the flaccid insertion technique, we have to keep the windows shut when making love 

I hate the injections and yes the supply issue is annoying.I seem to recall Lynneyre saying Johns recovery didn't happen within the so called two year window. So never give up use the pump do some frequent exercise, better if someone gives you a helping hand. Think outside the norm, experiment and have fun. Google " a touchy subject" and look at the info Victoria gives.

Thanks Chris 

User
Posted 23 Jan 2025 at 14:10

Yeah, my local community pharmacy said as much  

Hopefully, not something that's going to last more than a few weeks.🤞

 

Some of the advice has made me see some perspective.

I need to be diligent in using the pump more I think and nothing ventured nothing gained.

I think my set back in recovery must have "stunned" the nerves that were spared so maybe my journey will be different than others

Edited by member 23 Jan 2025 at 14:14  | Reason: Not specified

User
Posted 23 Jan 2025 at 14:36

Stop thinking about your nerves. Such thoughts are erection killers as I already wrotte (and experienced at home). And practice...

User
Posted 23 Jan 2025 at 15:19

I had prostatectomy 14 years ago. My consultant told me at the time that he would do his best but in his experience of having carried out a large number of prostatectomies, he advised men that post-surgery erectile function, in most cases, is unlikely to return to the pre-surgery level. He was absolutely correct in my case and after a short time I gave up even trying. If you can't get a good enough natural erection the best option is to create one. There are many options: I opted for VEDs and have been using it very successfully since my surgery. I can now achieve erections which would me envy of my younger self - I am boasting but not kidding!

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate

 

 

User
Posted 24 Jan 2025 at 14:08

Hi Joe,

I am a couple of months ahead of you having had my op in May 22. I too had nerve sparing. 80%, 3 of the 5 on my right hand side and all 5 on my left. So partial sparing. For the first year, I had pretty much nothing compared to pre op. Which when i thought back to, left me absolutely gutted and stripped of my masculinity. Horrendous mental stuff. 

It improved week by week, but not at the speed I'd hoped and anticipated for. Going into year 3 I noticed ever so slight improvement that seemed to have hit a point that I would just have to embrace and accept as my new normal.

Non sum qualis eram.

However.

So at the beginning of last week I finally got round to doing my self assesment tax return. Naturally its not something to be happy or excited about. Anyway, it turns out I owe Hector 4 grand more than I had anticipated. Heartbreaking stuff. properly p****d me off. So it was at this excat moment, around half past 1 in the afternoon, that I decided was as good a time as any to take myself to the bathroom and knock a dry one out with this once magnificent appendage. Now, there will probably be women reading this thinking, What the actual f... , after filing a tax return?...I know. And they would be right to ask that. Im not proud. However Im almost certain there will be an equal amount of men thinking... after filing a tax return? Sounds as good a time as any. Its just the way we are programmed. Anyway, what happened next was scarcely believable. For the first time since my op I had a natural erection that was pretty close to my pre op days. I was shocked and obviously excited at the same time. The fear was it might just be a one off , maybe because I was on my own and my good lady wont get to share this wee moment with me ,but no,  Ive had the same each day for 12 days now. I seem to have just rapidly turned another corner with this. 

As usual with me I have probably been too candid. I happily paid Hector his extra 4K. Im over the moon. However bloods are to be taken on Monday morning and it might all fall to s***. Cant do much about that.

Heres hoping you too suddenly turn a corner Joe. Good luck ma man.

Jamie.

 

User
Posted 24 Jan 2025 at 16:45

Fullscreen, I am happy for you about your new found erection(s). I also noticed you are about 10yrs younger, so that may explain it or not? I also wonder if you have been able to "road test" this erection and did it get a royal seal of approval from the boss?

 

User
Posted 27 Jan 2025 at 15:49

Originally Posted by: Online Community Member

Hi Joe,

I am a couple of months ahead of you having had my op in May 22. I too had nerve sparing. 80%, 3 of the 5 on my right hand side and all 5 on my left. So partial sparing. For the first year, I had pretty much nothing compared to pre op. Which when i thought back to, left me absolutely gutted and stripped of my masculinity. Horrendous mental stuff. 

It improved week by week, but not at the speed I'd hoped and anticipated for. Going into year 3 I noticed ever so slight improvement that seemed to have hit a point that I would just have to embrace and accept as my new normal.

Non sum qualis eram.

However.

So at the beginning of last week I finally got round to doing my self assesment tax return. Naturally its not something to be happy or excited about. Anyway, it turns out I owe Hector 4 grand more than I had anticipated. Heartbreaking stuff. properly p****d me off. So it was at this excat moment, around half past 1 in the afternoon, that I decided was as good a time as any to take myself to the bathroom and knock a dry one out with this once magnificent appendage. Now, there will probably be women reading this thinking, What the actual f... , after filing a tax return?...I know. And they would be right to ask that. Im not proud. However Im almost certain there will be an equal amount of men thinking... after filing a tax return? Sounds as good a time as any. Its just the way we are programmed. Anyway, what happened next was scarcely believable. For the first time since my op I had a natural erection that was pretty close to my pre op days. I was shocked and obviously excited at the same time. The fear was it might just be a one off , maybe because I was on my own and my good lady wont get to share this wee moment with me ,but no,  Ive had the same each day for 12 days now. I seem to have just rapidly turned another corner with this. 

As usual with me I have probably been too candid. I happily paid Hector his extra 4K. Im over the moon. However bloods are to be taken on Monday morning and it might all fall to s***. Cant do much about that.

Heres hoping you too suddenly turn a corner Joe. Good luck ma man.

Jamie.

 

 

That's has fair cheered me up up Fullscreen. Hope yet. Really pleased for you!!!

 

PS bit of a bummer about the tax 😐

Local pharmacy just got some supplies in of Invicorp so another thing to cheer me up!!

User
Posted 27 Jan 2025 at 18:04

🤣🤣 Adrian, made me chuckle 

Edited by member 27 Jan 2025 at 18:04  | Reason: Not specified

User
Posted 27 Jan 2025 at 21:49

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member

Hi Joe,

I am a couple of months ahead of you having had my op in May 22. I too had nerve sparing. 80%, 3 of the 5 on my right hand side and all 5 on my left. So partial sparing. For the first year, I had pretty much nothing compared to pre op. Which when i thought back to, left me absolutely gutted and stripped of my masculinity. Horrendous mental stuff. 

It improved week by week, but not at the speed I'd hoped and anticipated for. Going into year 3 I noticed ever so slight improvement that seemed to have hit a point that I would just have to embrace and accept as my new normal.

Non sum qualis eram.

However.

So at the beginning of last week I finally got round to doing my self assesment tax return. Naturally its not something to be happy or excited about. Anyway, it turns out I owe Hector 4 grand more than I had anticipated. Heartbreaking stuff. properly p****d me off. So it was at this excat moment, around half past 1 in the afternoon, that I decided was as good a time as any to take myself to the bathroom and knock a dry one out with this once magnificent appendage. Now, there will probably be women reading this thinking, What the actual f... , after filing a tax return?...I know. And they would be right to ask that. Im not proud. However Im almost certain there will be an equal amount of men thinking... after filing a tax return? Sounds as good a time as any. Its just the way we are programmed. Anyway, what happened next was scarcely believable. For the first time since my op I had a natural erection that was pretty close to my pre op days. I was shocked and obviously excited at the same time. The fear was it might just be a one off , maybe because I was on my own and my good lady wont get to share this wee moment with me ,but no,  Ive had the same each day for 12 days now. I seem to have just rapidly turned another corner with this. 

As usual with me I have probably been too candid. I happily paid Hector his extra 4K. Im over the moon. However bloods are to be taken on Monday morning and it might all fall to s***. Cant do much about that.

Heres hoping you too suddenly turn a corner Joe. Good luck ma man.

Jamie.

 

 

That's has fair cheered me up up Fullscreen. Hope yet. Really pleased for you!!!

 

PS bit of a bummer about the tax 😐

Local pharmacy just got some supplies in of Invicorp so another thing to cheer me up!!

Hey Joe, 

Apologies, reading my text back sounds almost facetious. I dont mean it to sound like that. I was just a much happier man having found a step forward on this journey.  Ive improved. Not fully. Im not great in the sitting position with any hopefully found new erection. No idea why that might be. But improvement none the less to feel I can shout about it on here. 

As Neu said earlier, its about finding what works for you and that special someone close to you.

Seek that out and prostate cancer can go and take a f... to itself.

Much love.

 

Jamie.

 

 
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