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User
Posted 11 Mar 2025 at 15:47

Hi there. I’m new to this site. My husband has been getting tests done. MRI & now a full bone scan in 2 weeks. Could anyone help me & explaine why he now getting bone scan. Nobody has said if he has cancer or not. 
thank you

suzanne

User
Posted 11 Mar 2025 at 20:57

Hi again Suzi.

My wife's also called Suzi and she is about the same age as you. I know how upset and bewildered she was when I was first diagnosed, so I can fully empathise with how you must be feeling. There are a lot of wives and partners who post on here, they will support you.

It's very difficult, but you and your hubby have got to try a deal with one test at a time. The more information you can give us the better we can help. His PSA is quite high and the MRI has obviously shown a suspicious area. His biopsy will give much more detail on his exact condition. It will show IF he's got cancer and how aggressive it is. 

Please keep us updated and best of luck with the bone scan results.

It's very kind of you to ask how I'm doing. My story is on my profile. 

Edited by member 11 Mar 2025 at 21:18  | Reason: Additional text

User
Posted 12 Mar 2025 at 00:53

Hi Suzi.

So sorry you and your husband are going through this. It’s tough trying to support and be strong when we’re scared of what’s round the corner, isn’t it? 😢

I take it from your post title you’re in Scotland. So are we, and my husband also had a bone scan. He had a lot of joint pain - not unusual for him - and of course we immediately put two and two together and were convinced it had spread to the bones and they were scanning to confirm. However the scan was clear! 🥳. We were told it’s standard procedure in Scotland to do a bone scan if the PSA is above a certain threshold (sorry I can’t remember what the number was). The treatment and care my husband has had is brilliant - everyone has been warm, reassuring, efficient, helpful … we couldn’t fault a single thing. We’re Tayside, but I’m sure it’s the same on the west coast.

All the very best to you both. You’re in good hands, whatever the tests show. 💕🍀

User
Posted 12 Mar 2025 at 07:44

Hi Suzzane,

like Kazzy, I’m Scottish and live in Fife and I can’t fault my treatment, even when finished my treatment they don’t forget about you. I got a reminder ping on my phone yesterday asking me to get my 3 monthly PSA test.

You’re going through the scary stage at the moment, not knowing what’s ahead of you and hubby. It’s difficult with all the tests and waiting on results, but it does get easier when you know what’s what and a treatment plan is in place. As others have said a bone scan is  normal procedure in Scotland just to make sure there’s no spread. Hopefully it will be clear as mine was.

I won’t tell you not to worry as that’s just stupid, but just do lots of nice things together and give yourselves lots of treats to help keep your minds from wandering too much.

good luck!

Derek

User
Posted 15 Mar 2025 at 17:51

Hi Suzz, I did see that long post, and I did reply. It has disappeared, shame really as I typed in a fairly long reply.

In short, don't be overwhelmed by the numbers, post on here and you will build up your knowledge as you need it.

Dave

User
Posted 16 Mar 2025 at 13:31

Hi Suzz, I've found your post on this thread.

https://community.prostatecanceruk.org/posts/t31433-Utterly-confused---Limbo-zone#post305592

Yes, I think it's best hang around and keep posting when things are going well, to provide a balance. Me and probably 100 other people on here have accumulated knowledge about prostate cancer which is useful to new members, it costs a few minutes a day to share that knowledge, but it can massively improve someone's life when they understand either a fact or an emotion they are feeling.

Edited by member 16 Mar 2025 at 13:42  | Reason: Not specified

Dave

User
Posted 16 Mar 2025 at 21:09

Suzz,

Suggest you read/obtain, the 'Tool Box' publishied by this Charity. It provides a lot of informatiom about Prostate Cancer (PCa) and treatments. https://shop.prostatecanceruk.org//our-publications/all-publications/tool-kit?limit=100

 

Barry
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User
Posted 11 Mar 2025 at 17:18

Suzanne, our hospital routinely do a bone scan as part of the diagnostic process. It is more to rule out bone involvement. Don't read anything into it, wait until you get the full set of results.

Thanks Chris 

User
Posted 11 Mar 2025 at 17:48

Hi Suzi.

I'm sorry that your husband has prostate problems, requiring further tests. However, it's lovely, that to support him, you've joined our site. Welcome to the forum.

He is the same age as I was when having the same tests. Do you know his PSA level and do you have his MRI results yet? Has he, or is he, having a biopsy?

Edited by member 11 Mar 2025 at 17:51  | Reason: Additional text

User
Posted 11 Mar 2025 at 19:57
Awww guys. Thank you so much for replying. His PS4 levels where high go said 12. Something hall I know about results Adrian was we got copy of consultants letter n at bottom it says

MRI Shows PIRADS lesion;for targeted biopsies and bone scan (both requested) got letter same say to go get a radioactive jag at 11 n then scan at 2pm. Thanks again. I am worried such. We been married 42 years. Don’t think I could live without him Adrian. Do use mind me asking how use are keeping. Don’t know the rules yet. My first day on here. Thanks for the help Chris my brain been in overdrive. Thought if he getting bone scan he must have it & they think it’s spread to his bones. I realise now that you have explaine 👍

User
Posted 11 Mar 2025 at 20:57

Hi again Suzi.

My wife's also called Suzi and she is about the same age as you. I know how upset and bewildered she was when I was first diagnosed, so I can fully empathise with how you must be feeling. There are a lot of wives and partners who post on here, they will support you.

It's very difficult, but you and your hubby have got to try a deal with one test at a time. The more information you can give us the better we can help. His PSA is quite high and the MRI has obviously shown a suspicious area. His biopsy will give much more detail on his exact condition. It will show IF he's got cancer and how aggressive it is. 

Please keep us updated and best of luck with the bone scan results.

It's very kind of you to ask how I'm doing. My story is on my profile. 

Edited by member 11 Mar 2025 at 21:18  | Reason: Additional text

User
Posted 12 Mar 2025 at 00:53

Hi Suzi.

So sorry you and your husband are going through this. It’s tough trying to support and be strong when we’re scared of what’s round the corner, isn’t it? 😢

I take it from your post title you’re in Scotland. So are we, and my husband also had a bone scan. He had a lot of joint pain - not unusual for him - and of course we immediately put two and two together and were convinced it had spread to the bones and they were scanning to confirm. However the scan was clear! 🥳. We were told it’s standard procedure in Scotland to do a bone scan if the PSA is above a certain threshold (sorry I can’t remember what the number was). The treatment and care my husband has had is brilliant - everyone has been warm, reassuring, efficient, helpful … we couldn’t fault a single thing. We’re Tayside, but I’m sure it’s the same on the west coast.

All the very best to you both. You’re in good hands, whatever the tests show. 💕🍀

User
Posted 12 Mar 2025 at 07:44

Hi Suzzane,

like Kazzy, I’m Scottish and live in Fife and I can’t fault my treatment, even when finished my treatment they don’t forget about you. I got a reminder ping on my phone yesterday asking me to get my 3 monthly PSA test.

You’re going through the scary stage at the moment, not knowing what’s ahead of you and hubby. It’s difficult with all the tests and waiting on results, but it does get easier when you know what’s what and a treatment plan is in place. As others have said a bone scan is  normal procedure in Scotland just to make sure there’s no spread. Hopefully it will be clear as mine was.

I won’t tell you not to worry as that’s just stupid, but just do lots of nice things together and give yourselves lots of treats to help keep your minds from wandering too much.

good luck!

Derek

User
Posted 12 Mar 2025 at 09:27
Hi guys. I can’t get away with all these lovely messages. I thank each & everyone of yous. I have got me wee grandson today so I don’t get much time on a wed. Adrian I read ur profile omg u bn through it 😩I have read about T1 etc but it’s just all French to me at moment. Hope I learn wot they all mean as time goes on. Again a big thank you to everyone. It has settled my brain a wee it. Could go on n on n. Thank god I’m never gonny get an Oscar 😂. See wee bits my sense o humour is back. R t better go n make grandson weetabix. He is 22 months & is a tear away. 😀use all take care & I will catch up asap
User
Posted 12 Mar 2025 at 14:23
Hi Suzi it is two years since I had my Brachytherapy treatment at the Beatson ( see my profile for details ). Apart from some “communication” problems my treatment was first class. The hospital is very easy to get to from Central Station and the cafe does excellent empire biscuits😎

As other people have said just take it one test at the time.

Best of luck

David.

User
Posted 15 Mar 2025 at 16:57
Hi everyone. I couldn’t find use. I left a big message for you all. Now I can’t find it. Thanks kazzy David & derek. Also Adrian. You welcomed me to the forum on the first day I joined. Iv been looking for ages to find use guys. I’m gonny go & see if I can find the big message I sent use. God knows where I sent that to. I deffa will stay in touch & appreciate all your help. I really do.

Thanks

Suzz.

P.s.

If I’m not bk soon. I will b lost on here somewhere.

User
Posted 15 Mar 2025 at 17:07
I’m back. I can’t find my big long boring post. Adrian I think it was in the place that was kinda VR pub. Am I making any sense. Going to look for it again. It. Is just really about all these numbers and names off things. All totally French to me. How r we going to know what treatment will b best. If it does come bk with the bad news I’m sorry I’m rambling. I’m just so scared. Use all been through so much but I don’t know what it all means. I just wish everyone here all the best & take care.

Thanks

Suzz

User
Posted 15 Mar 2025 at 17:51

Hi Suzz, I did see that long post, and I did reply. It has disappeared, shame really as I typed in a fairly long reply.

In short, don't be overwhelmed by the numbers, post on here and you will build up your knowledge as you need it.

Dave

User
Posted 15 Mar 2025 at 18:18
Hi there. Thank you so much David for letting me know you seen my long post. I was beginning to doubt if I even posted it. I’m so glad all is going well with you. Also looks like you are a good guy an hasn’t stopped coming on to keep everyone updated even when things are going well.

Thanks again

Much appreciated & I hope I do start to understand #s etc

Suzz

User
Posted 16 Mar 2025 at 13:31

Hi Suzz, I've found your post on this thread.

https://community.prostatecanceruk.org/posts/t31433-Utterly-confused---Limbo-zone#post305592

Yes, I think it's best hang around and keep posting when things are going well, to provide a balance. Me and probably 100 other people on here have accumulated knowledge about prostate cancer which is useful to new members, it costs a few minutes a day to share that knowledge, but it can massively improve someone's life when they understand either a fact or an emotion they are feeling.

Edited by member 16 Mar 2025 at 13:42  | Reason: Not specified

Dave

User
Posted 16 Mar 2025 at 21:09

Suzz,

Suggest you read/obtain, the 'Tool Box' publishied by this Charity. It provides a lot of informatiom about Prostate Cancer (PCa) and treatments. https://shop.prostatecanceruk.org//our-publications/all-publications/tool-kit?limit=100

 

Barry
 
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