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Posative news please

User
Posted 21 May 2025 at 14:39

Hi I'm new to this site.


I've had a Redical Prostatectomy this month (May-25) and want positive feedback about timescale for reversal of incontinance - it's making me feel pretty low.


 

User
Posted 21 May 2025 at 14:53

Hi John.


Welcome to the forum. Asking how long incontinence may be a problem is like asking how long is a piece of string. I was told that most men are back to normal after about 6 months. I was.


Good luck mate.👍

User
Posted 21 May 2025 at 18:33

Hello John


I had my robot assisted prostatectomy when I was 71 and 14 years later I am still here enjoying life with my wife. I know how you are feeling and have my sympathies. Nobody can give you a definite answer to your question. All we can do is recount our experiences. 

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate


 


 

User
Posted 21 May 2025 at 19:14

I assume you are doing pelvic floor exercises. If need some guidance then the squeezy app helps. Nearly 3 years later I still use it to keep the remaining muscles working. I was told 6 times a day once the catheter is removed.

User
Posted 21 May 2025 at 21:50

Hi John


Adrian is right ,we are all a little bit different in how the surgery affects us.


I had the operation 14 weeks ago ,last week I saw my surgeon,we spoke about incontinence,I am using on average 3-4 pads per day ,he felt I was a bit worse than average as he expected me to be on 2 pads at this point in time.At this stage there isn’t much more that we can do other than regular pelvic floor exercises.3 sets of 10 long and short seems to be the norm,although I have been told to increase to 5 sets per day.There are plenty of videos on you tube explaining how to do them and the Squeezy app will nag you to do them!!


regards


John

User
Posted 22 May 2025 at 09:47

Everyone has different experiences. I had terrible issues with continence post op and as they say could not hold water and was on 9/10 pads a day. I had a eureka moment at about 4 weeks and started to gain a semblance of control. When I went back to work after 7 weeks I was on 5 pads a day. After about 9 months I was down to 1 pad a day and now over 2 years post op I am still on 1 pad a day but that’s for security for the odd drip when i sneeze or cough. Good luck and keep squeezing 

User
Posted 22 May 2025 at 10:48

Thank you MGOR - that gives me long term hope. 


Also, thanks to the others who have replied. 


Do others have their stories to add?


 


cheers, John. 

User
Posted 22 May 2025 at 11:52
I had my RARP last month and I'm currently at the surgery+6 week point.
Since my catheter was removed I've only suffered occasional dribbles so one pad a day is enough for me.
Although I want to return to normal, I could live with the way things currently are indefinitely if I had to.
User
Posted 22 May 2025 at 12:58

My experience is almost exactly the same as MGOR. Terrible at first, then gradual improvement. I'm 10 months post op, and using 1 pad per day. I think it is likely that I will remain like this, as there has been no improvement recently, but If so, I can live with that.


Ian.

User
Posted 22 May 2025 at 14:55

Incontinence - Pelvic Floor (Kegel) Exercise


After prostatectomy a significant number of men experience degrees of  incontinence, ranging from complete lack of bladder control to a few drips. This is because the external sphincter has suffered considerable trauma or even damage during surgery. The lucky ones regain control immediately after the removal of the catheter, but many are advised to ‘retrain’ their sphincter by doing pelvic floor (Kegel) exercise.


In my opinion - following my personal and other men's experiences - I think that what is a matter of common sense and intuition, the impression men are given is that pelvic floor exercise is difficult and they have to be trained to do it. Sometimes they spend considerable sums of money visiting physios, some of whom insert probes or even a gloved finger into the anus/rectum to teach you find your pelvic-floor muscles and show you how to exercise them..


I am afraid I am an outrider on this: you don’t need to be trained to do pelvic floor exercise.


On the removal of my catheter (nearly six weeks after my surgery!) I was totally incontinent. A couple of nights after returning home I was so exhausted with changing pads that when I woke up I went to our bathroom and sat on the toilet with the urine flowing freely. Quite intuitively I tried to stop the flow by what I realised was that I was squeezing my pelvic floor muscles. I noticed a tiny but perceptible reduction in the flow of urine. It was a eureka moment for me! From then onwards I would sit on the toilet and do the following, regularly in the morning, afternoon and the evening:



  • Sit on the toilet and let the urine flow or drip.

  • Try and stop the flow – this is completely intuitive – you may have done this in your life before your surgery successfully

  • Initially you may and may not experience any change

  • Squeeze your pelvic floor muscle – this is intuitive - for the count of ten and let go

  • Rest for the count of ten

  • Repeat and squeeze to the count of ten and let go

  • Repeat the process ten times, three times a day

  • Patience is really a virtue; you may or may not experience any change for days but don’t lose heart

  • Don’t, I repeat, don’t overdo it


Within a week I was beginning to see some difference and after about three weeks the flow turned into continuous drips and a couple of months later, waking one morning I was completely dry but continued to leak during the day, particularly when sitting up from a sitting or squatting position. For me the bad news, after 14 years since surgery, is that I still suffer from arousal climacturia - leaking when sexually excited and/or when I orgasm. 


Of course I understand why some may feel they need help and training and encouragement: everyone is different. 


Unfortunately quite a significant number of men - particularly the older ones - have to learn to live with some level of incontinence. I have. This can have a devastating effect on your sex life. However with imagination, good communication with your wife/partner and desire to pleasure each other, it is possible to adapt to the new normal and have a good sex life, sometimes - as we have discovered - with unexpected benefits! 


Those experiencing permanent incontinence may like to follow the following link:


https://community.prostatecanceruk.org/posts/t28948-Re-establishing-Sex-Life


 


 


 


 


 

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate


 


 

 
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