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Diagnosed and don’t know what to do !

User
Posted 15 Jun 2025 at 22:33

Hi All.

I was diagnosed with prostate cancer as recently as last Friday.
so I had the biopsy and results came back that I have a Gleason score of 7 (4+3) unfavourable cancer.

surgeon basically said it is moderately aggressive so more or less gave me the options of radiology or surgery / prostectomy 

I’m racking my head here as I really don’t know what to do for the best and they want an answer in 3 weeks.

i am 56 years old ,I’m fit and healthy work full time in an active physical job ,train in the gym almost every day.

i would lover some advice.

thank you.

john.

 

User
Posted 16 Jun 2025 at 01:16

This thread ended up talking about a lot of the treatment options.

https://community.prostatecanceruk.org/posts/t26986-Can-t-understand-why-anyone-would-choose-surgery-over-Brachytherapy--I-must-be-missing-something

If they are offering you a choice of treatments it means they think they are all just as likely to cure your cancer. You then need to consider your personal circumstances, as that will be more important to your treatment choice. 

Once you have read up all the treatments options, and considered what's important to your life style, start asking more questions on here. For example if one of the treatments involves two years of hormone therapy you may want to ask several people on here how bearable it is, or if continence is important, you might want to find out how many people have remained continent and if not how easy do they find it to cope.

Dave

User
Posted 16 Jun 2025 at 01:41

Hi John,

As you have been offered surgery, it seems your cancer is thought to be contained.

You are relatively young in age for PCa diagnosis and although there are exceptions, generally such men go for surgery rather than one of the forms of RT. However, going the surgery route means greater risk of Erectile Dysfunction, (you should ask surgeon whether he/she thinks they can save both or one nerve bundles). You should also ask whether he/she thinks they can remove all the cancer. With surgery there is an increased risk of immediate incontinence, short or long term. RT can go further than surgery where necessary but is usually preceded by and followed by HT which considerably adds to side effects of RT in the maajority of cases. Also, with RT, there is a chance that further Cancer may develop down the line. So your choice of treatment will need your understanding the pros and cons of these forms of treatment,

There is a further treatment for which some men are suitable, This is called 'Focal Treatment' . It uses heat, cold or electricity. Urologists at many Hospitals don't mention it because it requires going to one of the few hospitals or centres that do it. It is a quick procedure and usually with minimal side effects. However, it does often require the procedure being repeated and not all me are suitable. There is some useful information in the 'Tool Kit' provided this Charity as here. :- https://shop.prostatecanceruk.org//our-publications/all-publications/tool-kit?limit=100

 

Edited by member 04 Jul 2025 at 19:25  | Reason: to highlight link

Barry
User
Posted 16 Jun 2025 at 09:05

Hi John.

Sorry that you've had to join 'The Club' but welcome mate.

If you are considering surgery this link is worth watching.

https://drive.google.com/file/d/1fyYTLZpxnB9HaR7O4xQ5Ff58Pj4Cn6ZB/view

Diagnosis is the most difficult time. Cancer is new to you at this time, the word alone is frightening and despite it being very common, you can sometimes feel very isolated. Once you get a treatment plan, you can focus on that and getting better. 

You'll get loads of support here and I've also found Prostate Matters a very helpful and informative site.

https://prostatematters.co.uk/

Good luck mate and please keep us updated.👍

Edited by member 16 Jun 2025 at 09:11  | Reason: Add link

User
Posted 16 Jun 2025 at 15:48
Hi John

I won't add any more to what has already been said because I'd just be repeating it. Take the 3 weeks to watch, read and research. Most of us have this or similar decisions to make in our respective journeys, everyone is different with a different outlook on life and this as well as your diagnosis will form the basis of the eventual route you take.

Sorry your had to join the group but you are in good company with a range of experiences so ask as much as you want.

Good luck on your journey

Cheers, Adam

User
Posted 16 Jun 2025 at 21:20
John, you are in the exact same position many of us here have been in, and which we found difficult for the same reason you do. There are two options and there isn't an easy way to choose between them - in careful studies they have been found to have indisitinguishable success rates.

But there are a few things to be said. Firstly, that the "average" patient in those studies might not be the same as you, do ask your doctors about your specific clinical situation and whether that might change their likelihoods of success. Second, by definition any study measuring ten year outcomes is doing so for surgery or radiotherapy done more than ten years ago; in that time both surgery and radiotherapy have advanced, with the biggest improvements probably coming in radiotherapy as the latest generation of machines have been introduced. And third, although success rates might be similar the side effects may not be, and as others say above it depends on what is acceptable to you.

Broadly, the advice doctors tend to give is that the younger and fitter you are the better chance you have of good recovery from surgery. But even so a percentage of patients suffer ongoing continence and/or erectile dysfunction. At the same time, the big side effect from radiotherapy is the risk of cancer in a neighbouring tissue (bladder or colon) down the line, making it more risky for those whose age means they may become vulnerable 20+ years later. But as pointed out above, the hormone therapy (androgen deprivation therapy) that routinely accompanies radiotherapy can significantly impact your quality of life for several years. In the end it is always a bit of a gamble.

Do spend some time reading through some of the older threads on this forum, you will get first hand reports of what the various treatments are like (including some variants not always offered at first, like brachytherapy alongside radiotherapy).

Good luck. It is hard at this point, but once you have come to a decision it is easier going through with whichever treatment you decided to favour.

User
Posted 04 Jul 2025 at 21:09

Mick, I suspect the reason some patients faced with this dilemma feel there is "little support" is simply because there isn't a "best" answer for the doctors to recommend. Both surgery and HT/RT have been found to have similar success rates.

However they do have different side effect profiles, which John needs to consider. And other factors (age, fitness, other health issues) might swing his preference. But ultimately if other things are equal, they rely on him to tell them which he is happiest with. Big decision.

Edited by member 04 Jul 2025 at 21:11  | Reason: Not specified

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User
Posted 16 Jun 2025 at 01:16

This thread ended up talking about a lot of the treatment options.

https://community.prostatecanceruk.org/posts/t26986-Can-t-understand-why-anyone-would-choose-surgery-over-Brachytherapy--I-must-be-missing-something

If they are offering you a choice of treatments it means they think they are all just as likely to cure your cancer. You then need to consider your personal circumstances, as that will be more important to your treatment choice. 

Once you have read up all the treatments options, and considered what's important to your life style, start asking more questions on here. For example if one of the treatments involves two years of hormone therapy you may want to ask several people on here how bearable it is, or if continence is important, you might want to find out how many people have remained continent and if not how easy do they find it to cope.

Dave

User
Posted 16 Jun 2025 at 01:41

Hi John,

As you have been offered surgery, it seems your cancer is thought to be contained.

You are relatively young in age for PCa diagnosis and although there are exceptions, generally such men go for surgery rather than one of the forms of RT. However, going the surgery route means greater risk of Erectile Dysfunction, (you should ask surgeon whether he/she thinks they can save both or one nerve bundles). You should also ask whether he/she thinks they can remove all the cancer. With surgery there is an increased risk of immediate incontinence, short or long term. RT can go further than surgery where necessary but is usually preceded by and followed by HT which considerably adds to side effects of RT in the maajority of cases. Also, with RT, there is a chance that further Cancer may develop down the line. So your choice of treatment will need your understanding the pros and cons of these forms of treatment,

There is a further treatment for which some men are suitable, This is called 'Focal Treatment' . It uses heat, cold or electricity. Urologists at many Hospitals don't mention it because it requires going to one of the few hospitals or centres that do it. It is a quick procedure and usually with minimal side effects. However, it does often require the procedure being repeated and not all me are suitable. There is some useful information in the 'Tool Kit' provided this Charity as here. :- https://shop.prostatecanceruk.org//our-publications/all-publications/tool-kit?limit=100

 

Edited by member 04 Jul 2025 at 19:25  | Reason: to highlight link

Barry
User
Posted 16 Jun 2025 at 09:05

Hi John.

Sorry that you've had to join 'The Club' but welcome mate.

If you are considering surgery this link is worth watching.

https://drive.google.com/file/d/1fyYTLZpxnB9HaR7O4xQ5Ff58Pj4Cn6ZB/view

Diagnosis is the most difficult time. Cancer is new to you at this time, the word alone is frightening and despite it being very common, you can sometimes feel very isolated. Once you get a treatment plan, you can focus on that and getting better. 

You'll get loads of support here and I've also found Prostate Matters a very helpful and informative site.

https://prostatematters.co.uk/

Good luck mate and please keep us updated.👍

Edited by member 16 Jun 2025 at 09:11  | Reason: Add link

User
Posted 16 Jun 2025 at 15:48
Hi John

I won't add any more to what has already been said because I'd just be repeating it. Take the 3 weeks to watch, read and research. Most of us have this or similar decisions to make in our respective journeys, everyone is different with a different outlook on life and this as well as your diagnosis will form the basis of the eventual route you take.

Sorry your had to join the group but you are in good company with a range of experiences so ask as much as you want.

Good luck on your journey

Cheers, Adam

User
Posted 16 Jun 2025 at 21:20
John, you are in the exact same position many of us here have been in, and which we found difficult for the same reason you do. There are two options and there isn't an easy way to choose between them - in careful studies they have been found to have indisitinguishable success rates.

But there are a few things to be said. Firstly, that the "average" patient in those studies might not be the same as you, do ask your doctors about your specific clinical situation and whether that might change their likelihoods of success. Second, by definition any study measuring ten year outcomes is doing so for surgery or radiotherapy done more than ten years ago; in that time both surgery and radiotherapy have advanced, with the biggest improvements probably coming in radiotherapy as the latest generation of machines have been introduced. And third, although success rates might be similar the side effects may not be, and as others say above it depends on what is acceptable to you.

Broadly, the advice doctors tend to give is that the younger and fitter you are the better chance you have of good recovery from surgery. But even so a percentage of patients suffer ongoing continence and/or erectile dysfunction. At the same time, the big side effect from radiotherapy is the risk of cancer in a neighbouring tissue (bladder or colon) down the line, making it more risky for those whose age means they may become vulnerable 20+ years later. But as pointed out above, the hormone therapy (androgen deprivation therapy) that routinely accompanies radiotherapy can significantly impact your quality of life for several years. In the end it is always a bit of a gamble.

Do spend some time reading through some of the older threads on this forum, you will get first hand reports of what the various treatments are like (including some variants not always offered at first, like brachytherapy alongside radiotherapy).

Good luck. It is hard at this point, but once you have come to a decision it is easier going through with whichever treatment you decided to favour.

User
Posted 17 Jun 2025 at 08:04
John, I was advised to use the Prostrate Predictor on the NHS app, I found it helpful as it gives you a prediction and percentage score based on your results.

I decided to go with 3 months HT and 20 sessions of Radiotherapy after much deliberation as both scores came out the same, I was also Gleason 7 (4+3) and have no regrets on mtg treatment my PSA is now steady at 0.5, as others have said do research then decide which treatment suits you, cheers

John

User
Posted 17 Jun 2025 at 08:14

Hi John, 

I too was diagnosed with 4+3=7 at 56. Over five and a half years ago, I had RALP surgery and although my journey has been difficult at times, I'm now doing very well and my PSA is undetectable. 

Hopefully my positive story can give you some reassurance. 

Good luck, 

Kev.

User
Posted 04 Jul 2025 at 00:32

im 72 and got the same diagnoses as you, with stage 2 i decided to go down the hormone theapy and external beam radiation i had a month of hormone tablets, then 2 weeks into them i had a hormone injection that lasts for 3 months i then had 5 intensive external beam sessions, then another 3 month hormone injection, my psa level is now 0.01 as to after effects, i was struggling to pee and it was very painful, they gave me some tablets for it and after taking the first tablet all the symtoms went away, the only after effect i got from the hormone treatment was/ still is hot flushes mainly at night which does interrup my sleep which makes me sometimes tried during the day, but just to put your mind at rest none of the treatments were in any way painful, hope everything works out well for you

User
Posted 04 Jul 2025 at 07:16

Hi John.

This recent video is excellent. It includes most treatment options, explaining the actual procedure and the pros and cons of each.

It well worth watching.

https://youtu.be/zYTU94-8pTc?si=1Z29_l8rbTwF6DHl

I hope it helps.

User
Posted 04 Jul 2025 at 07:35
Just to say good luck and stay positive.

Fantastic advice and information for you to consider as you try to make sense of what you are facing.

Know that despite feeling like there is little support in the NHS, mainly because are so busy, that you are not alone and there is a way forward that will suit you and make your life a good one despite your diagnosis.

Best wishes, mick

User
Posted 04 Jul 2025 at 21:09

Mick, I suspect the reason some patients faced with this dilemma feel there is "little support" is simply because there isn't a "best" answer for the doctors to recommend. Both surgery and HT/RT have been found to have similar success rates.

However they do have different side effect profiles, which John needs to consider. And other factors (age, fitness, other health issues) might swing his preference. But ultimately if other things are equal, they rely on him to tell them which he is happiest with. Big decision.

Edited by member 04 Jul 2025 at 21:11  | Reason: Not specified

User
Posted 05 Jul 2025 at 17:27
Hi John - it is one of those "Devil & deep blue sea" things for you to decide.

Simply, the Surgery option, will not take very long, but could leave you with problems.

The RT & HT option, takes a lot longer, you may feel weak & hot sweaty at times - but much less invasive.

Either way, if you still have orgasms - they will be dry & more difficult to achieve.

I had HT & RT in 2019/20 - & am still here to tell the tale & can still sometimes have a bit of sex fun - at 76 & must not complain.

MY PSA is steady around 0.45 ish.

Good luck with whatever you decide.

Bob

 
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