MR Linac RT

Hello, mate.

I'm sorry you've had to join our club, but welcome to the forum.

As SABR is a relatively new treatment I cant recall many reporting their experiences of it. Here's a conversation on it.

https://community.prostatecanceruk.org/posts/t30015-Experience-with-SABR

I believe one of our very knowlegeable posters, Andy62, who works with a lot of support groups, recently reported many men are now opting for SABR, and they found they had minimal side effects.

I hope this helps a little and good luck. 👍

I'm fine thanks, mate.

I've managed to find another thread that I started on SABR

https://community.prostatecanceruk.org/posts/t33495-SABR-SBRT#post316409

Andy62's post that I refered to earlier is on it.

Hi,

Yes I had MR Linac SABR treatment with no hormone therapy, I finished it at the end of Feb. 

I found the 5 sessions a little difficult because I'm not keen on confined spaces and you're in there for up to an hour with a full bladder. But if you're ok on an MRI you will sail through it. 

Post treatment, the first week was like peeing out glass, restricted flow and very painful. Tamsulosin sorted that out very quickly. An occasional bit of fatigue.

6 months on, I'm having no side effects at all to the treatment.

I've done a few runs up to six miles and walked up Mount Snowden but no tennis.

Any questions just ask

Paul

(56 and still working unfortunately)

Hi Matt,

My initial PSA was 7.49, 3 months after treatment is was 2.2, and I've just had another one at 2.0

Cheers 

Paul

Hi,

I received radiotherapy treatment via MR Linac in 2023, aged 66, with hormone therapy (Prostap). I was advised the Prostap was to reduce my PSA level prior to radiotherapy – although my score was never above 5.

I kept notes for follow up appointments which I've summarised for you below.

I had no real issues with the treatment and found it easy to lie in the scanner and stay still for 45-55 minutes each time, listening to the radio on the headphones provided. I was only asked to drink one cup of water prior to each treatment so I never felt that I needed a pee during a session.

My bowels were a bit loose from the day after the first session until around 10 days after the final session but easy to cope with. The treatment also caused a stinging sensation when urinating but it was never too painful to cope with. I also found myself needing to get up around 4 times a night to pee – rather than my usual once a night.

I was reassured by the medics and told that this was all quite normal. My urine flow gradually improved over the following 6-9 months but it was never a major concern and I didn’t need to take medication at any stage. I’m now back to getting up just once in the night.

The treatment didn’t cause any major fatigue and I was able to carry on with my usual daily walks of 4 or 5 miles throughout.

In the ‘Sports’ department, everything is the same as before except that orgasms are now dry – but the sensation still feels as good as it always has – so I have no need to take up tennis instead!!

My PSA now seems to have settled at 0.4 and my consultant is happy.

I’d certainly recommend the MR Linac but I appreciate it may only be available privately in many cases.

I hope the above is of some help and that you’ll soon be rid of ‘Fred’.

Any questions, just ask – or drop me a private message.

D.