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Rollercoaster ride

User
Posted 07 Nov 2026 at 04:59

I’m 65 years old and all this started whilst investigating a suspected tumour in the adrenal gland back in August 2026. They found a 10mm benign tumour and the endocrinologist decided to run some routine blood tests. One of the was the PSA, which came back with 11.6. This was then followed by the finger test, MRI and then the biopsy. On the 13th October they confirmed that it was cancer. This was devastating and made worst that I had no support and the only family I have is a son, as I’ve recently lost my youngest son (34 years old) to astrocytoma. Having AuDHD, you can count all my friends by my fingers on one hand. I was given 3 choices: surgery, brachytherapy or radiotherapy. I had no idea what to choose, as the side effects were terrible whichever way you looked. I eventually choose the surgery route and on the 2nd of November they removed my prostate, lymph nodes and “a few other infected bits”. I’m home now and struggling with pain and a catheter. No one has spoken to me about the new lifestyle and how to prepare for it. I have idea what I’m facing and on idea what to buy for my new lifestyle. I know this is early days and on Tuesday I’ll have the catheter removed and I hope I’m given more information on what happens next. This is all very scary and unknown. 

User
Posted 07 Nov 2026 at 09:59

Hi, Joe.

Welcome to the forum

I'm very sorry that you've lost your youngest lad to cancer. I'm also sorry to hear that your struggling at the moment, following your prostate removal.

The operation can knock you for six for a while, and without the support of others, it's even more difficult to deal with. 

As you say, it's very early days. Things will get much better, mate, I promise you that.

After the catheter is removed you might have incontinence issues and will almost certainly need some pads, but they're probably the only thing you'll need to buy.

If you feel isolated or unsure of things just post on here, someone will always answer any queries or concerns you have.

Even though you've had your prostate removed, it would help us assess your situation more clearly, if you could give your PSA level (prior to the op), Gleason score and cancer staging.

Good luck, mate.👍

Edited by member 07 Nov 2026 at 10:28  | Reason: Additional text

User
Posted 07 Nov 2026 at 12:48
Thanks. Hopefully I’ll get more information when I get the catheter removed.

PSA = 10

Gleeson = 3 + 4

Grade = 2

User
Posted 07 Nov 2026 at 13:54

Thank you, for the additional information.

They are a decent set of figures, mate. 👍

 
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