Firstly Julie you are absolutely bonkers and Mo will you please stop encouraging her http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif
Also Julie when i needed it most no cuddle blanket turned up http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif
I have not updated for a while as i was waiting until things got sorted and touch wood i think they are.
So all cancer treatment was stopped 10 weeks ago as it was thought that it caused the tachycardia that just appeared, after three changes in medication i have had no attacks for 13 days now the last one being my worse nearly 5 hours at HR 180.
Met Jamie last night to discuss restarting treatment, but the last 6 days i have felt bloody good and quite fancied a bit longer like this so after Jamie listened to my constant moaning we agreed to postpone treatment till after my next scanshttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif
So bye bye abbi, steriods, denosumab and zoladex and hello immune system http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif
Bloods last week was still good ALP only 38 the rest undetectable and if they stay the same in three weeks time i will carry on moaning for longer off.
Hope everyone is doing OK.
Julie, SiSi cabs has been booked to take you to the MOS
Si xx
Don't deny the diagnosis; try to defy the verdict |
User
That is great news Si. I am hoping that the heart problem has gone away and hope you can stay drug free for longer. you are closely monitored so your moaning will at least be checked by some objective data! You mentioned in another thread that you may be looking at cabitexal so don't know if that is a likely next step or not! But plenty of options when you need them.
Edited by member 20 Mar 2015 at 15:04
| Reason: Not specified
User
Nice to read about this latest news Simon,
Hope you all have a great weekend.
dave
User
Hi Paul,
Originally Abbi was thought to be the cause of the Tachycardia, but now it was been found not guilty Jamie will start me back on them.
So far i have managed 25 months on Zoly and 19 months on Abbi, would be a shame to change a winning formula.
Hope your keeping well
Si
Don't deny the diagnosis; try to defy the verdict |
User
Hi Si,
Great news. Been out of things for a while but trying to catch up.
Have a great weekend.
Steve
User
Si Si
if you keep moaning Julie,Lyn and I will think you are having an organism too! Lord alone knows what Jamie will think after what he called you last time.
Seriously though I think it is great that you are having a little HT break just make sure you react quickly if there is any change. In the meantime lets hope your heart stays as steady as it has in the last 2 weeks.
It was spooky talking to you through the eclipse this morning the A34 was bizarre, cars parked all over the place and loads of telescopes, very high spec cameras that Steve and Paul would have loved, and me with my collander and piece of paper!!
I am going to miss you all so much over the next 5 weeks but of course the worldwide super highway should keep me in touch when I can.
xx
Mo
User
Ahh you love me really Sihttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif , I am beaming from ear to ear for you so everything seems steady . Does Jamie have a theory about the heart?
This news has made my weekend, brilliant. WAY TO GO.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif THIS IS ME BEAMING.
Keep going Si Superman, have a great weekend.
BFN
Julie X
Edited by member 20 Mar 2015 at 18:54
| Reason: Not specified
NEVER LAUGH AT A LIVE DRAGON |
User
Its so refreshing to hear you are feeling so well Si.
I love the way you take control of your treatment....and I know Jamie will be keeping a close eye on things...heres hoping the scans are good
I reckon that Peroni/Fosters diet is the bees knees
Speak soon
Bri
User
Si
This is terrific news, an HT holiday, carefully managed sounds maxing, I know John would love it.
Keep an eye on it though, I'm sure with Jamie on your side all will be well.
Lots of love
Allison xxx
User
So glad to read you are doing well again Si. Take care, Kev
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
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A breathing space to deal with the normal (not cancer-related) challenges of life. Really pleased that you are happy and feeling well xx
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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YAY! Here's to good scans and longer holiday xxx
User
Simon, this is terrific news!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif
Enjoy your well deserved treatment 'treatment holiday', and I feel sure the break from the meds will do you the world of good.
It will give your body a rest and the time to build up again.
As has been said, you're being well monitored and we know you have an excellent oncologist.
Really looking forward to seeing you, Ness AND Sir Jamie at The Mill in a few months time.
All the very best,
George
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I shall have a beer with you tonight Si.
;-)
dave
User
Well that old saying "don't count your chickens etc etc " is so true
Heart problems still not sorted, another 5 hour session on Sunday. Jamie is obviously a bit more twitchy about no cancer treatment than i am as i have an appointment for the 9th of April just three weeks since i last met him http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif
CT/pet scan Monday and bloods then bone scan on the 8th.
Hope everyone is keeping well
Si
Don't deny the diagnosis; try to defy the verdict |
User
SHUT THE FRONT DOOR,
I hope you have seen the heart Guy Si , this is not sorting it's self have they said what is the next step ? Please don't tell me that you haven't seen anyone. It is obviously not meds related.
Mandy is going to kill me.
BFN
Julie X
I am not finished yet I will be back. X
NEVER LAUGH AT A LIVE DRAGON |
User
Sorry to hear this Si. I know you thought you'd turned a corner.
Perhaps it's time you and the heart specialist had a conversation about the alternative treatment so this issue can finally be sidelined.
Good to hear you are having scans to keep an eye on the PCA though and good that Jamie is keeping a close eye on you.
If you want to chat or anything you know where I am
Bri
User
Ho Simon,
Thought all this was sorted matey? How are you feeling though, is what matters?
Will see you at the Run Day, I hope?
In the meantime, I shall have a beer with you tonight!
atb
dave
Edited by member 27 Mar 2015 at 08:12
| Reason: Not specified
User
Si just look after yourself mate, you know in your heart (no pun intended) what to do. Kev
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
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Thanks for your comments.
Dave i will defiantly be at the color run and look forward to a few beers and Mandy's great BBQ
At the moment a feel really great except when a get a tachycardia then i am wiped out for the day, i will give the new medication another couple of week and if i am still getting them then i will be pushing for the op.
Julie the girls are so excited to meet all the dogs, and you and Trevorhttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif let me know what days best, you can see my scan dates
Si xx
Don't deny the diagnosis; try to defy the verdict |