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Simon Story Chapter 2

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User
Posted 22 Jul 2014 at 19:51
Great news Simon, long may Abby do its job!
User
Posted 22 Jul 2014 at 20:16
Good news Si and feel free to drop In if you are nearby, it would be good to see you and Vanessa ,

Life is for living,

Barry (alias Barrington )

User
Posted 22 Jul 2014 at 21:27
Si superman long may these resuts continue xxx
User
Posted 22 Jul 2014 at 21:27

Well that's proved it then you are an alien.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif What fantastic results for you , do you deserve the name Si Superman absolutely . Honestly Si well done, I am so pleased for you.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 22 Jul 2014 at 23:11
So delighted to hear this, Si you are our talisman. Now you can have your holiday and really enjoy it.

Big love to you and Ness

Allison xxx

User
Posted 23 Jul 2014 at 10:46

Fantastic news, Si. Delighted for you and your family !

 

Fiona.

User
Posted 23 Jul 2014 at 14:56
Nice Simon, very nice.

Keep it that way.

Dave

User
Posted 24 Jul 2014 at 15:06

Thanks for all the comments guys, really appreciate it http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

Think i am starting to get a bit twitchy, 19 month HT and 12 months Abbi i am getting at the stage of one or both failing, and as i know my next treatment plan it has become very appealing to me.

My discussions with my Onco has always been if you pick the right time to change treatment then surely you can go back on that treatment as it has not failed you. makes sense to me http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

So scans next month, then big discussion i like my idea and will take a lot of convincing not to change.

Best wishes to all

 

Si xx 

 

 

 

 

Don't deny the diagnosis; try to defy the verdict
User
Posted 24 Jul 2014 at 16:04

Hi Si

I am catching up after being away for a couple of days. Your results are great news for you and Vanessa and an encouragement for those in the same or similar circumstances.

Best wishes

Alan

User
Posted 24 Jul 2014 at 17:09
Hi Si

Great news regarding PSA , and I like your logic,

Roy

User
Posted 24 Jul 2014 at 18:10
si

I think I woud trust JM all the way everything done so far has been +++ you seem to work brilliantly together. See you Tues late afternoon xxx

User
Posted 30 Jul 2014 at 23:03
Fantastic news, but I am going to have to try this for myself ............. trust your instincts and keep that < symbol in play for as long as possible!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 30 Jul 2014 at 23:06
>> # ^

🔝🔫 🚬 😕

<

Edited by member 30 Jul 2014 at 23:08  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Jul 2014 at 07:47

Good to see you back Lyn, Hope you had a great Holiday.

We head off down south tomorrow for the last trip in the caravan, in-laws are coming as well  in there's will look like a bunch of gypsies on the move http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

Barry i will put my order in now for some of those scones and cream you sent a picture of http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

 

See you all soon

Si

<<<<<< i did it

 

Don't deny the diagnosis; try to defy the verdict
User
Posted 31 Jul 2014 at 08:12
Enjoy your hols all of you, you deserve it. Say hello to Barry from me :)

Bri

User
Posted 31 Jul 2014 at 09:49
To the awesome Si Superman, who I have to say looked radiant on Tuesday afternoon, have a fabulous Holibops with Ness, the Twins and your Outlaws. Catch up when we all get back.

Sock monkeys should be in my possession by the time you get back.

Give Barry and Karen a huge hug from me

xxx

Mo

User
Posted 31 Jul 2014 at 10:37
19 days in France, 3 of which were properly sunny, 6 of which involved storms and emergency refuge areas on the campsite and the rest provided a lot of rainy cycling and damp scrabble. On the bright side, we laughed a lot and had a fantastic time. As soon as we got back to the uk we took the tent to the Dales where the weather was glorious and the tent dried out nicely.

Have a great time x

Edited by member 31 Jul 2014 at 11:40  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Jul 2014 at 13:22
Post cancelled I hope

Edited by member 31 Jul 2014 at 20:39  | Reason: Not specified

User
Posted 31 Jul 2014 at 13:52
TG, the oramorph might be addling your brain! Did you forget that anyone in the world can see the posts on this new forum? You will be getting strange phone calls or unwanted house visitors before you know it .... quick, delete the post :-(
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Jul 2014 at 13:54
Or even worse, if these are the details for the hospice you will have would-be burglars and identity fraudsters phoning the hospice daily for updates on your condition :-0
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Jul 2014 at 13:59
Hi Si

Only just had chance to catch up. Really pleased to read your latest results. As Bri says you are abnormal, but long may you stay that way if it keeps giving you results like this.

Hope your scans next month are just as good news and you have a successful and beneficial chat with your onco after.

Have a lovely holiday. If you want the full gypsy look I could possibly source you a couple of coloured cobs (gypsy horses) to complete the image! 😜😄😄😄

Take care

Veronica

User
Posted 31 Jul 2014 at 14:50

Thanks all, we will have a great time give the caravan a good send off before we sell to fund the insurance for Disney in America next year.

I have the details Barry you can delete now, cant have any old tom, dick or harry turning up eating my scones http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

I will email you when we are there, the grandparent will take the girls out for the day and we will pop down, the girls said they would only go if you played naughts and crosses better than Mick (they miss Mick) and the dog was there.

Si xx

 

 

Don't deny the diagnosis; try to defy the verdict
User
Posted 31 Jul 2014 at 20:59
Hi Lyn thanks for the gentle reminder, not so much the Oramorph, more like old age creeping in....well racing in.

Si do you know what day you are thinking of? Please feel free to bring the girls there are lovely gardens to play in and apart from Tuesdays my border terrier Poppy will be here. She is very good with people and is very quiet ( 8 years old now )

Hope to see you soon,

Life is for living

Barry ( alias Barrington )

User
Posted 31 Jul 2014 at 21:59

Originally Posted by: Online Community Member
.... my border terrier Poppy will be here. She is very good with people and is very quiet

 

Well that blows all those theories about dogs resembling their owners, then :-#

 

I am coming on Monday 22nd September - if Ness is getting scones, I want scones with jam & cream please. 

Love Lyn xx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Jul 2014 at 22:23

Have a lovely holiday guys, I hope the sun shines for you . Kick back , relax and have loads of fun. 

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 01 Aug 2014 at 11:48

Hi Barry,

I am getting in front of myself, we leave first thing tomorrow now this is the first trip this year and as the HT has turned me into a fat, no energy grumpy sod i will probably still be putting the awning up three days later and fighting anyone that laughshttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif

But as soon as we are done i will email with a couple of dates, Lyn there will be no scones lefthttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif and Barry when Lyn arrives lock your bathroom cabinet i hear she likes clarins moisturizer especially other peopleshttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif

Si xx 

 

Don't deny the diagnosis; try to defy the verdict
User
Posted 01 Aug 2014 at 19:53
Hi Si - so pleased to read all this! I''ve been wondering what's going and why no update emails have come through ... Only just realised everything has changed & been replaced by a new website!

Brilliant news. You are amazing! It's really made my day.

Hope you have a fantastic holiday. I remember laughing my head off at your awning story last year. Better luck this time!

X

User
Posted 08 Aug 2014 at 12:07

Can we not PM each other with the names of good people?

 

Alison x

User
Posted 18 Aug 2014 at 16:40
Well back from holibops and off we go again.

Bloods and CT scan today and bone scan on Wednesday.

Bloods are good PSA <0.01 testosterone <0.01 ALP 37 Happy with that.

Si xx

Don't deny the diagnosis; try to defy the verdict
User
Posted 18 Aug 2014 at 16:58
Excellent news x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 18 Aug 2014 at 17:32
Another great result, keep going!
User
Posted 18 Aug 2014 at 17:57

What a great result Si http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif

You must be 'over the moon' (you can tell it's the football season again!).

 

Dead chuffed to read this today, and looking forward to seeing a super-fit Si in London this December.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif

 

 

George

B2PCa
User
Posted 18 Aug 2014 at 18:14
Si, when you were first dx'd did you check the file the oncologist had.

Keep kicking it mate....Bit of a drink to celebrate at the weekend methinks

Bri

User
Posted 18 Aug 2014 at 20:29

Great news Si

 

Looking forward to London http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif

 

Nil desperandum

Allister

User
Posted 18 Aug 2014 at 22:52

Si Superman,

Supercalafragalisticexpialidotious=Bloody Brilliant news. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif I am so happy for you Ness and the girls. What a Guy.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 19 Aug 2014 at 16:01
Si

calls for another celebration, I am so happy for you,Ness and the girls.

Hope all goes smoothly tomorrow for you.

see you soon lovely Man

xx

Mandy Mo

User
Posted 19 Aug 2014 at 19:43
Si

That's wonderful news, I'm thrilled to bits to hear it.

Lots of love to you and Ness xxx

User
Posted 19 Aug 2014 at 20:21
Many thanks all. Not counting my chickens just yet but you would hope with no change in blood results then the scans would be ok

Bone scan tomorrow then my lovely radiographer Dr O'Connor who has done all my scans is giving me the results of both scans straight after if I buy the coffe. Love the man

Si xx

Don't deny the diagnosis; try to defy the verdict
User
Posted 19 Aug 2014 at 20:54

Thinking of you for tomorrow.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 19 Aug 2014 at 21:46

Si

Great news which I hope continues with your scan results tomorrow!

Alan

User
Posted 20 Aug 2014 at 15:24

Hi All

Scan results are in CT scan, no soft tissue and no lymphadenopathy.

Bone scan no progression.

Now the battle with Jamie to swap treatments will start next Thursday when he is back from holiday ( he should be quite chilled )

On the question of the four images on the bone scan, they do a lighter contrast for the skinny bits of the body ( Legs /arms) and a darker contrast for the fat bits.

Si xx

Don't deny the diagnosis; try to defy the verdict
User
Posted 20 Aug 2014 at 15:36
Good on ya mate....definite drink this weekend

Bri

User
Posted 20 Aug 2014 at 15:58
Brilliant, even I might have a drink to celebrate!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 20 Aug 2014 at 18:08

Result!

 

flexi

User
Posted 20 Aug 2014 at 18:20
brilliant we all need some good news right now, see you soon Si Superman

xx

Mandy Mo

User
Posted 22 Sep 2014 at 20:12

Hi All

No need to reply to this post, i will be running this now for information for anyone with the same diagnosis as me in the future.

My first discussion with my onco back in January 2013 was along the lines of, i want a maverick someone willing to try anything even if it is just a gut feeling, well he got it right at the beginning putting me straight on chemo and after months of discussions we are going to change again.

So today's bloods are PSA less than 0.01, Testosterone less than 0.01 ALP 40 so all good and we enter 14 months on Abbi, the plan now is to stay on Abbi till January 3rd what ever happens then we will change to Radium 223 and MDV 3100 together, there is a trial about to start in America shortly but no other data available. Just how i like it http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif but Jamie thinks this will work a treat

through out the 14 months on Abbi i have had periods when i have taken one tablet with food rather than 4 without, so plenty to add into the mix as well.

Might be stupid but hay-ho worth a punt

 

http://i1338.photobucket.com/albums/o699/siness/33_zps44a131dd.jpg

Si

 

Edited by member 22 Sep 2014 at 20:32  | Reason: Not specified

Don't deny the diagnosis; try to defy the verdict
User
Posted 22 Sep 2014 at 21:19

What do you need mean no need to reply, you no I can't do that.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-kiss.gif Stats are fantastic and not only are you a pretty cool driver but a blooming miracle.

Si Superman-way to go.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-kiss.gif

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 22 Sep 2014 at 22:52

Yep agree with Julie....brill results and a clear future treatment plan in place. Love the pic too mate

Keep kicking it's butt Si...you are winning without a doubt
Bri

User
Posted 23 Sep 2014 at 17:33
Si Si Superman

as Julie says you are a cool driver .. Mick appreciated the smooth ride to the airport thankyou xx

As far as your blood results and treatment plans go WOW Fosters inducing WOW.

Every Oncologist deserves to have a miracle patient and I think J has got you ...brave, adventurous, undeterred and as Seal would say maybe just a little bit crazy.

You give others on this forum such hope. You know that Abbytabs work for you and I am assuming that if Rad and Enza do not then you can revert to Abby.

I want you all out here with me next time so keep working on it xxxxx

Mandy Mo

User
Posted 23 Sep 2014 at 19:01

Thanks for your postings guys   Mo that's the plan, well it is mine, if a treatment has not failed you then there is no reason why you cannot go back on it.

Its just about picking the right time, a bit like playing Russian roulette  http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif  it took along time to convince Jamie http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif 

Hope to see you all soon xxx  Julie my kids need to squeeze your dogs soooooon http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Don't deny the diagnosis; try to defy the verdict
 
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