15 years on (continued)

I raise my glass, to Janet and all the carers. Cheers!

I had a lovely day out today with my son and daughter in law, got dropped off in time for Greg to watch the boxing so happily munching celery (no idea why!) and catching up on my iPad, my constant companion. Certainly not my previous usual birthday evening but perfectly ok, and my head should be clear in the morning!

My life has changed so much over the last few years and I have met such wonderful people, who have become part of my life. I am sorry I cannot keep up with everyone on here as much as I would like, work and just life seems to take up so much time. For Mike there wasn't much time once he was diagnosed and treatments that are common-place now weren't available then. It is so rewarding to see so many men doing well, and also the support given to those going through a tougher time. The strength and compassion shown on this site is truly amazing and I am so proud to call so many of you my friends. And to meet up with so many of you in Leicester is truly the icing on the cake. I was so nervous the first year I went wondering what I was doing but came away feeling I was leaving old friends, old in that I had known them so long, not their ages!

Thank you all for your good wishes and kind comments, much love Janet, xxx

Strictly speaking, the annual get together at Leicester is a B2PCa (bo11ox to prostate cancer) event but since many members of B2PCa are also on here, it feels like one and the same. George organises us all, details are posted in the events section of this forum, some of us stay for one, two or three nights while others attend just for the day - the actual event is an afternoon with a speaker (this year, Si's onco) and a buffet.

Usually a complete sell out months in advance, 80 people most of whom have bladder problems drinking .... carnage but great fun and as Janet says, strong friendships are inevitably formed. I don't know whether there are any spaces for this year but you could message George to ask?

Having said it is an annual event, it happens twice! London, usually the first week of December. Watch the events thread for that one too.

Well despite being a stubborn old fool I did call in the pain nurse (OK I admit it...it was Karen). I have more pain around the rib cage but the pain in my bum has got worse and is constantly there despite pain medication. I have a feeling of always needing to open my bowels especially when standing / walking and when having a wee. I am also bleeding when going. This is limiting my quality of life in fact it's a right pain in the ar*e.

The immediate action is upping the Zomorph to 50mg but it is thought that there might now be a blockage caused through spread of PCa tumours in the bowel / groin area.

I have a scan on Wednesday with Onco appointment the following Wednesday 11th June. Depending on that the next step might well be direct RT on the troublesome area in the hope it will reduce the size of the tumour. Quite how that reacts with the fact I have had RT for PCa is for me an unknown and something I will have to question if that becomes likely. The trouble is at the moment we are chasing the pain as it varies in location but I think they need to prioritise the pain in the bum as that is causing me real discomfort whilst for now I can cope with the rib cage aches and pain.

Above all that is the need and desire to be able to make the trip from Weymouth to Leicester for the madcap gig. We are stopping off for a couple of nights on the way back (at the Runnymead on the Thames Hotel in Windsor to celebrate our Silver Wedding Anniversary) but might have to look at stopping off somewhere on the way up.....anyone know of a good pub with accommodation just off the M25 Heathrow direction?

In the meantime, despite the cr*p,

Life is for living

Barry (alias Barrington )

You are another one that smiles through the difficult times, though it isn't expected - well what I really mean is that you have the ability to make us smile through your difficult times. Today of all days, I thank you for that.

Much love

Allison xxxx

Hope you got something sorted yesterday, TG.  

TG this may not be much help but Mick had the same kind of pain in his bum, just how you described it. Finally turned out to be a faeces that had impacted in his rectum, stuff was able to pass round it so he was never actually constipated ...not necessarily going to cheer you up when I say a good old fashioned enema can do the job.

xxx

Mo

Thank you for clarifying the situation and pointing out something I was not aware of. 64GY seems to ring a bell but will be able to confirm when I see my oncologist next week. Amazingly he is the same one who 1st handled my case and then throughout the past 15 plus years and has almost become a friend.

Mo, how kind of you to come along to offer your help just one day after your so sad news. Once again you have shown your love and caring to your fellow man, thank you and I will pass on your thoughts to my Onco next week. Please take care of yourself, mine and Karen's prayers and thoughts are with you and your family.

Barry (alias Barrington )

sorry to hear about the butt pain as Eric would say he can cope with pelvic grion and the rib pain obviously with medication but that dam butt pain No.Eric has had RT twice and I am sorry to say that it did not work for him but it might help you everything crossed.When Eric was diagnosed that was the pain he has always complained about.

Now he has a deep indent on his butt showed Consultant she said I have never seen anything like this before you can pull your pants up now????? Eric saw GP said it looked as if there was no fat or muscel in this area still dont know whats going on except the pain.

Hope you have better luck than Eric is having with this pain in the a***

Carol

So sorry to hear these awful things all happening together, not exactly the same but we went through a period like this about ten years ago and to this day I don't know how we got through it, but we did. I feel for your children, the only plus is that they are adults and can help and this will sustain them in the time ahead.

I hope the Onco can do something to help with the pain, are you still able to use your scooter?

I have also pondered on the question that Karen raises, but have no answers, my assumption is that heaven is all about love and it'll be everyone happy to be with everyone. I certainly hope so.

So looking forward to seeing you again, not long now.

Lots of love

Allison