15 years on (continued)

Shame I'm down in Bristol, clearly missed out on a great time. Wishing you many more good times TG !

Fiona.

So glad you were able to attend the Leicester meet - great determination on your part in your situation. What a great day it was. Glad to know you are very pleased with your hospice in all respects and that Karen's employer has been considerate so that she has been able to visit you so frequently.

With a busy weekend behind us and another one ahead with Karen's family coming down for a grand Sunday lunch at a village pub it is time to set new targets. So with that in mind we are going to Dublin on the 14th July, staying with our good friend Elise (Fleecy) for two nights and then 3 nights at the Arlington Hotel which was recommended to us. Then aiming a bit further down the line and in order to get back some of the deposit from the October cruise to the USA which I have had to cancel (no insurance) we have just booked a two night cruise on the Adventure of the Seas at the end of August ......so as always,

Life is for living

Barry (alias Barrington )

Edited by member 27 Jun 2014 at 06:07  | Reason: Not specified

Diamond Geezer http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif

Spend your time wisely in the Royal Caribbean Diamond Lounge with all that free drink http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif

It was good meeting you all next week, even if only briefly. Sorry I disappointed a few by bringing the Jag but Porsche doesn't really fit 3 people and I wasn't got to let TG drive it

No 1 son.

I have read and followed all of Barry's posts, but this is the first time that I have replied. I am so sad to see that you are having to reply on his behalf, I only hope that he is feeling much better tomorrow. He is such a great inspiration.

Stu

Very sorry pain and tiredness is taking it's toll. Barry has been fantastic and I am sure will post again when he feels he is up to it but must not over extend himself. We will all be thinking of him and our best wishes go to him and you Karen.

Mandy

I hope Barry had a good night and is feeling a bit better today.

You are both in our thoughts, hearts and prayers..

We love you both ,

George, Lynn and Katrina

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Thank you for posting for Barry ... and yourself. It must be extremely difficult for Barry not to post. I hope he is feeling more comfortable this morning and that his pain control is working.

It was good to see you both at Leicester and I am sure many of us were amazed how much Barry and yourself have done over the past few weeks and more.

Our thoughts are with you all at this time. Very best wishes.

Alan and Celia

Barry,

You'd never believe how relieved we all are to read your post.

YES.....you got it spot on. You packed so much into just one week that your body was shouting 'TAKE A BREAK FFS! I'M KNACKERED!!'http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

Always listen to what your body tells you.

I always do, but then again...I'm a lazy so and so!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

Great to have you back online.

George

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You nearly gave US ALL heart failure! Pleased to see you posting again, thank Karen for keeping us up-dated, take care, my friend, and enjoy Eire.

God Bless.

Chris

Have been thinking about you on and off all day, TG. Good to see your post !

Fiona. X

Barry you need to alter your signature to "Life is for living in the slow lane now"

Glad to hear you have perked up.

PHEW,

Glad your felling a lot better

Best wishs

Barry

All I can say is thank goodness VJ and I are not so good at accessing the new forum and therefore not so proficient.

We just read through your latest postings and, as others have said, nearly had heart failure and felt very down by Karen's post.

Really glad to read you are feeling better and that you are going to take it a tad easier.

Wishing you all the very best from both of us.

Kim

After a dreadful weekend when I felt absolutely down and out and as near as damn it on deaths door I feel a little better as the days have passed, resting as much as possible. My consultant told me to have some more blood tests to see whether it is worthwhile to continue to take Enzalutamide. They came back today with mixed results, one lot of liver enzymes went up yet another lot have gone down. Assuming that he called it a draw my Onco has prescribed another months worth (GP can not prescribe these magic pills at this moment in time). By the way my PSA is now 0.06 how weird is that.

I saw my GP today as my feet have swollen and I am now on water tablets, I was with Karen and my GP turned the conversation round to the "end game" asking where I wanted to be at the end. We had quite an interesting chat about how I was going to go, as to when to make these final decisions. My preference would be to go back to the Hospice in my final days but to die at home. Sounds morbid I know but we all know that it won't be far off now and I respect my GP for taking the time to go over these things in a kindly fashion without being condescending. I told him that I was setting targets, the next being our jaunt to Dublin, he was in agreement with both setting targets and Dublin, but did tell me to rest up in the meantime. He was in fact quite amazed that I had done so much since leaving the Hospice.

I'm on a mix of 13 tablets at night now which certainly gives a good nights sleep but in the minutes to nodding off I'm in a world of my own, having allucinations and reaching out for things that aren't there, then I come back into the real world before zap it's time to get up.....with only 10 tablets to take with my morning cereal.

At least the weather has been kind and I'm spending a lot of time on my hammock. I normally would be chilling out with a beer watching sport on the TV but after the debackle that was the England Football team, the farce over Pietersen and the England Cricket selectors who haven't got the ba**s to get rid of Cook as Captain we now have Murray crumbling at Tennis I am now down to watching Last of the Summer Wine.

No matter, Dublin in a few days time because........

Life is for living

Barry (alias Barrington )

Barry? You've been watching Last Of The Summer Wine?

OMG. Does this mean you'll be wearing the full 'Compo' garb next time we see you?http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

Please don't make him your new hero.

Keep out of mischief, you hear? : )



George, Lynn & Katrina.

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Edited by member 02 Jul 2014 at 18:50  | Reason: Not specified

Well what can I say Hammocks and Last of The Summer Wine now your talking, that is my kind of afternoon.  Keep those feet up and energise yourself for Dublin. If you find a Leprechaun when you are there can you bring it back for me.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

BFN

Julie X

Do you remember me maybe some of the others might ,I have been coming onto this great. website for 11 years,I'm still going striong had all the treatment HT RT HT for a long time now,PSA going up.

Have been reading your posts and what you have been getting up to !

Take care just wanted to be in touch again. We have posted a long time ago.

Take care.

Brian 2

Edited by member 02 Jul 2014 at 22:31  | Reason: Not specified