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Advanced prostat cancer part 2

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User
Posted 23 Jul 2016 at 03:31

Love that song.

Many of us keep that hopeful vision that there is something (somebody) we can trust to support and carry us.

You must be Trevor's bridge I think.

****

We can't control the winds - but we can adjust our sails
User
Posted 23 Jul 2016 at 06:52
Julie,

I often think of you and Trevor and what you are going through. Having this disease is not an easy path and as you say it's remarkable how we each adapt to situations - " our new normal".

John
User
Posted 23 Jul 2016 at 08:16

Hi Julie, good song title for the situation that you are I and tolerating so well between you. john(surr33) and I often use song titles in our PM's to each other when describing situations or discussing treatments for others as well as ourselves, it brings interesting slants on it all.

Keep staying positive, you really are both good roll models, will be reading your future updates to see if you now use more song titles.

Best wishes to you both

Chris/Woody

Life seems different upside down, take another viewpoint

User
Posted 23 Jul 2016 at 09:25
Chris,

I thought we were keeping our on line bromance a secret!

J ( sorry Julie for gate crashing here ....)
User
Posted 23 Jul 2016 at 13:16

Originally Posted by: Online Community Member
Chris,

I thought we were keeping our on line bromance a secret!

J ( sorry Julie for gate crashing here ....)


 


 


See, this is what I'm always harping on about.  It is important to communicate with your other half or things will be misunderstood !!


http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif


 

We can't control the winds - but we can adjust our sails
User
Posted 24 Jul 2016 at 20:33
Back by popular demand is my old avatar . This is years old and not how I look these days , trust me .
NEVER LAUGH AT A LIVE DRAGON
User
Posted 24 Jul 2016 at 20:50

Ah, the siren we all know and love.

In a weird way your report of the latest results is good news - another okay 4 weeks of summer for you. I think you need the dogs to stop s*****g though to give you a rest :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 24 Jul 2016 at 20:52

Originally Posted by: Online Community Member


 John(surr33) and I often use song titles in our PM's to each other when describing situations or discussing treatments for others as well as ourselves



Finally, I find a positive argument for the pm facility - glad to be spared tbh

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 24 Jul 2016 at 21:18
Just keep keeping on, four weeks by four weeks, time creeps along Julie. Suddenly you realise that another 6 months has gone by. Trevor is such an enigma with the PCA, it's so wonderful to see that he is so resilient. We know all good things come to an end, but not yet Julie, not yet.

Love seeing the photos of the pups on Facebook, so adorable and yes, new life does do something to you doesn't it?

Hope the boys will help you both out in the holidays and that you spend some quality time together with those little four footed lovables.

With all the love in the world
Devonmaid (iPad wants to call me Deco maid just to add to the name confusion) xxxx
User
Posted 25 Jul 2016 at 07:37

Hi Raymond,
I have also just started on this journey, I was diagnosed on the 21st July, 15 cores taken at biopsi, 6 were positive, 5  3+3=6  1  3+4=7  PSA 3.7, doc said not to panic but it is hard, I started a new thread on this site under just dianosed and had some nice replys from people, it helps, I am still a bit numb but like everybody on this site seems to say try and keep positive negative thoughts are a definite No No,


best wishes to all

Paul

User
Posted 25 Jul 2016 at 07:45

Yes Yes Yes Julie !
It may have been a while ago but dear lord you had it girl.
Far better than that picture of you with the black eye 😀😀

User
Posted 26 Jul 2016 at 22:10
SS
so sorry I ave been AWOL but this weird thing called DIY has taken over my life. Before I get a rude comment from Lyn or others I genuinely mean that odd activity that I thought only occurred post 60 and once the flat cap and whippet had been adopted! I have even mastered a man tool (electric drill)

Seriously though the rise in PSA is still relatively slow and if Trevor is well and feeling OK then that is good. Enjoy the summer and all Lilly and Dora's puppies ( the latter brood must be due any day now)
Hopefully the boys will help Trevor with his own DIY projects so you get more things finished at the bungalow. The terrace looks fabulous so now you have your lovely conservatory and your own outdoor space too. Who would have thought you would have any of this 2 years or so ago.

will catch up in a phone call this week
xxxx
Mo
User
Posted 27 Jul 2016 at 22:18
Hi Julie
Lovely to see your update despite You having to report a psa rise. I often think of you and others and wait very patiently to hear how things are.
Hoping you have a lovely August.
Take care
Lesley xx
User
Posted 29 Jul 2016 at 03:11
Funny how things can turn on a sixpence (now that's showing my age) so latest developments are increased back pain no surprises there you are all thinking with PSA nudging the 2000 that is pretty much par for the course. Trevor is putting it down to a pulled muscle of course he could be right , me I don't think so.
New developments are more worrying though he has blood in his poo since last Fri dark red he has also had stomach cramps for a few weeks to be honest they have been for quite a few months but we put it down to all of the medication.

So visit to GP last night and the good old rectal exam reared its ugly head again needles to say Trevor was not a happy bunny, nothing untoward was found IE no piles etc I pretty much guessed that due to the colour of the blood. Upshot is bloods done today and promise of being fast tracked for investigations.
Then this morning half way through breakfast he was sick , Trevor is never sick he has a cast iron stomach he has only managed soup for the rest of the day but that could be worry.

I have done my Mantra, Julie Do Not Google I said it to myself oh at least 100 times , we say it to all newbies don't we ,Don't Google so of course I Googled . If I get replies to this post be honest and tell me if you have Googled . I know you all have 🤓

We always think once the initial waiting for results is over that we won't have to go through that agonising wait again but honestly this whole journey is just a waiting game.
Now that's a que for a song . Love is just a waiting game Amy Whinhouse.
BFN
Julie X

Edited by member 29 Jul 2016 at 03:22  | Reason: Not specified

NEVER LAUGH AT A LIVE DRAGON
User
Posted 29 Jul 2016 at 06:56
Julie,

Of course I've googled, many times in fact but I held off doing so until after my biopsy. My wife hates me looking things up and then will ask me a question about PCa and expect me to have the answer! And as you say this whole journey is a waiting game. Slow and uncertain.

I hope Trevor starts to feel better after yesterday and hopefully it was only the worry that caused him to be as he was. I know all about the blood issue too and have been referred for this.

Keep going and look after yourself , as ever thanks for your posts.

John
User
Posted 29 Jul 2016 at 08:31

I too am a Googler! In fact I am my extended family's Googler, well the older generation anyway.

Did I Google PC at the start. You betcha. Currently googling skin cancer since John has just been treated for Basal Cell and has had a biopsy on his arm.

I think we tend to warn those new members off who come across as panicky since Google can have too much information when you begin this journey and if you don't know what to check you check everything.

Hope Trevor is feeling better today

********

We can't control the winds - but we can adjust our sails
User
Posted 29 Jul 2016 at 08:33
Hi Julie,

My fingers are crossed and everything else that Trevor is feeling better soon.

Steve
User
Posted 29 Jul 2016 at 18:47
Of course we Google Julie, but I don't do it much these days as I don't trust much of the information coming out. In reality most of what's out there never quite covers what you need to know and you end up getting confused.

Worrying times with Trevor, glad the GP is on it. Have you told your specialist nurse or consultant? Trevor is a tough man, but I know how concerned you will be. I think you may need the comfort blanket back to keep you going trhough the weekend.

Massive hugs
Devonmaid xxxxxx
User
Posted 29 Jul 2016 at 19:29

Entering the unknown again is always difficult. I have no easy answers. I have just had two severe bacterial infections which did have stomach cramps as a symptom so assume they will check out infections. Nasty and sudden but lasts ten days at most and not linked. The pains may obviously be linked to the bone mets. Do you have a copy of Trevor's last bone scan? When I get new pain I check my last scan to see if it corresponds with where the pain is. If it is I worry, if not I breathe a sigh of relief.

Hope these things work themselves out, Julie. If the GP comes up with a 'normal' solution, you can google that but beware looking around for symptoms. I used to have a symptoms book and in 1982 I had a swollen testicle so looked it up and it told me testicualr cancer. I laughed! Me, 29, cancer. A week later I was diagnosed with testicular cancer. Stay positive.

User
Posted 29 Jul 2016 at 22:37
Hi Julie
There's always something to worry about, wouldn't it be lovely not to worry about our partners.
Maybe this episode is not related to the cancer but to side effects of medications,(not sure what medications Trevor is on?), that could be reversable with treatment. Has gp prescribed an antacid ie ranitadine/omeprazole/lanzoprazle, anyone of these will aid healing. Perhaps he needs an anti sickness pill prescribing also.
Hoping Trevor feels better soon.
Lesley xx
 
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