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Advanced prostat cancer part 2

User
Posted 12 May 2016 at 22:20
Paul thank you, that is one for the breakfast menu. 😜It sounds so scrummy I might even try it myself.πŸ˜‹

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 17 May 2016 at 21:36
Firstly thanks Dave K for the life expectancy calculator it is I am sure very informative , I have to admit I have googled many times PSA of 13000 life expectancy and according to the results Trevor has been dead for at least 2 years, so every morning is a bit of a shock😡 Talk about Groundhog Day.

Honestly and seriously this isn't a disease that I think anyone can predict outcomes on. It is so varied from one man to another. I remember my first desperate posts with Trevor's original PSA reading , of course I thought it was pretty high but I had no idea quite how high it was and everyone was going very gently around what I was asking, I could feel everyone thinking Julie check his pulse.😳

Not only is he very much alive and kicking he is looking and feeling good .

OK so scores on the doors are not so good but they are all just numbers ,

So Wiz visit today and

PSA up from 1,081 to 1,336

ALP up from 177 to 218

We are staying on the Abbi tabs for another 4 weeks , new bone and MRI scans scheduled with a review in another 4 weeks. Our moto is and has always been tomorrow is another day, over the last 3 years one thing we have learnt is that Cancer is not a death sentence it is a LIVE sentence.

So in the words of the two Ronnies it is goodnight from him and a goodnight from me.

Love you all.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 18 May 2016 at 01:50
Hi Julie,

Your posts always make me smile even when the news is not what you would want. Trevor is very lucky to have you. You help, not only him, but many others on this site with what you write and your kindness and love for your family is clear to see.

Just wanted to say thank you for all you do for all of us with your posts.

Steve x

User
Posted 18 May 2016 at 05:16

morning Julie
tales of trevor continue, what ever it is you are doing for him it would be good if it could be bottled and passed

regards
nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 18 May 2016 at 07:28
Julie,

I cannot believe just how positive you've been throughout everything you've gone through. Trevor is a very lucky man. Thank you for all your updates and especially for the humour you're able to share with us. This is a horrible disease but sharing what you have experienced helps so many of us.

Kindest regards,

John

User
Posted 18 May 2016 at 08:33

Keep it up Julie, hard as it is.
You're doing a wonderful job. XX

We can't control the winds - but we can adjust our sails
User
Posted 18 May 2016 at 08:59

Live sentence....i dont like it....i love it. As always Julie your humour, determinaton and fortitude jumps right out of your posts and makes a bad day better

Keep doing what you are doing

Bri xx

User
Posted 18 May 2016 at 10:31

Julie
I always find your posts so inspiring, make me smile and give me hope.
Thank you

Paul

User
Posted 18 May 2016 at 10:48
Julie, like Bri I love the "live sentence" and am gonna steal that both mentally and use it in some of my blogy things, hope you don't mind. You and Trev are just brill for making me doubt the naysayers! Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 18 May 2016 at 10:52

The key part of what you say is the living part just like Topgun,s life is for living. The one thing we incurable sufferers have in common is that making the most of life is a must. We never know the timetable, can never know the timetable. So much better to keep going, enjoy every moment we can and yes the road is rocky as another old friend stated, but we will travel this together. Not great news but you will approach it as you always do with humour, optimism and fortitude, who can argue with that!

User
Posted 18 May 2016 at 11:57
SS

are you sure back then when Trevor's PSA sounded like a medieval battle date that he wasn't abducted by aliens and returned before you woke up next day? I feel a little conspiracy theory brewing here. One of these days the Wiz will fess up and tell you his blood contains Klingon or something!

I too love your choice of phrase "Live sentence" no point in sitting watching the grass grow under your feet , especially when you have a ride on mower at hand! There are so many old sayings aren't there that tell us to live our lives whilst we can and I agree with them all.

I suppose the Wiz is looking at and listening to Trevor and deciding, that as he looks and feels good, you may as well keep going until any contrary medical reason becomes evident.

Your 3 years on this forum have been full of the widest range of emotions. Fear, anxiety, hope,joy, compassion,etc etc but all expressed with wit and a humour that inspires others. Even when things have been terribe in your own situation you have always been there for others, You are simply a breath of fresh air and I am so proud to have you as my friend.

speak soon

big hugs and loves as always

xx

Mo

User
Posted 18 May 2016 at 23:22
Oh Julie

A breath of fresh air, yes yes yes, that's you girl! No matter what you continue to inspire us with your charm and joy for life. We saw our urology consultant today and he told us that good morale increases the immune response and I think I do agree with that. I think Trevor, Si and John have fantastic immune systems - if only we could bottle it eh?

We are off for RT planning tomorrow, whoever thought that John would have RT on the prostate, we are very positive about it and hopeful of excellent results. I think your enthusiasm for life, even in its current form, is catching

With big love

DM xxxxx

User
Posted 20 May 2016 at 18:43
Hi Julie

I still manage to get on every now and then. Work is manic

You have a great onco to still be on Abby is great news many oncos would have stopped it by now but yours is right on the money

Really hoping we can get across to see you soon maybe half term

Everyone here sends there love and the girls send there love to the dogs

Si xx

Don't deny the diagnosis; try to defy the verdict
User
Posted 01 Jun 2016 at 23:22
Guys I haven't done individual thanks but a huge and massive thanks to you all , your replies are so Heart warming and make me feel very humble I also know that many read my ramblings but don't comment. So for those that do comment I just love ya, for those that don't comment it's ok you can just do a smiley , lots of people don't know what to say and I get that I understand.

So this is a mid way catch up , I have been trying not to do mid way catch ups because they can get a bit well boring I supposeπŸ€— Sorry just laughing at my self how the Feck can our lives be boring.

So Trevor and the boys decide to go to there annual meeting at Santa Pod , I have never been so this is a women's interpretation of what is my worst nightmare , loud cars , drag racing, and not a burger van insight, so I decide that I would stay home and do my nails.😍

Next thing is I get a phone call to say T has slipped down a grassy slope with I say with his fold up chair still over his shoulder , he has skidded to a halt and then been helped up by his 6ft 3 inch nephew , GLen he is just the sweetest lad but at 6ft 3 and as black as your hat not quite what you would call a paramedic. Trevor was a bit dishelved but otherwise ok. So my nails are chewed but not painted .

MRI and Bone scan completed results on the 13 June

.

B FN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 02 Jun 2016 at 07:43

Well done Glen I say !! He must have been very worried just helping him up in case he broke him.

Nails are nails. As long as you still have some for chewing on the next time Trevor decides slalom down a slope eh !

We can't control the winds - but we can adjust our sails
User
Posted 02 Jun 2016 at 09:21
Julie

I think you ought to enter Trevor in the next Winter Olympics slalom event

Arthur

User
Posted 02 Jun 2016 at 12:40
J

Keep going girl and πŸ˜ƒπŸ˜ƒπŸ˜ƒπŸ˜ƒπŸ˜ƒπŸ˜ƒ.

Thanks Chris

User
Posted 02 Jun 2016 at 17:42

Your lot don't do things by halves do you!

Keep smiling, keep up the humour, no, I'm one of them who read your words of inspiration, stupidity, nonsense, and lovely sentiments too, but don't often comment, but I'm here if you need me!


Chris. XxxxxXxxxxX

Ps, haven't read much about the dogs lately?

User
Posted 02 Jun 2016 at 20:28
You are the brightest light in this forum Julie, long may you continue writing about the exploits of the lovely Trevor. Keeping us all amused and sometimes on the edge of our seats.

Love you!

Allison

User
Posted 03 Jun 2016 at 14:08
SS

now I kind of know Trevor a little bit by now, so I am guessing a wheelchair would be absolutely out of the question until really, really desperate (even one with go fast stripes, mirrors and flags like Topgun's scooter) So I have a cunning plan ....

Next time he has the bright idea of taking the lads to a race meeting or a similar grass slope type of event, of which I can list a few just in case you need help visualising ...

The Epsom Derby

rock concert at MK Bowl

party in the park

Wimbledon

Queen's garden party

OK so you are getting the scene now??

well that lovely tall nephew and your equally tall Eldest son, ably assisted by your less tall but equally gorgeous younger son, should load the ride on mower in the back of the van. Then T has his own transport at the event and can be useful all at the same time!!! When he goes to HRH's gaff he can take Tulip to grrrrr at the corgis xxxxxxxx

Love to all of you as always

xxxxx

Mo

 
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