Advanced prostat cancer part 2

User

Posted 29 Nov 2016 at 22:44

So sorry to hear your latest update Julie - and awestruck by your ability to make the rest of us smile even as you are going through such a stressful time. Your posts are not long-winded. They are a wonderful testimony to you and to Trevor, what an extraordinary couple you are, poop, hairy legs and all!

The comfort blanket did its job (thank you so much for sending it)...I've sewn some tinsel round the edge and it's on its way back to you right now, with love and appreciation.

Love

Eleanor xxx

User

Posted 29 Nov 2016 at 23:44

Sorry to hear things are not going so well. Here's hoping the radium will do it's trick.

Just a thought re the leg hair - don't you have a fancy lawn mower???

User

Posted 30 Nov 2016 at 00:23

Brilliant!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 30 Nov 2016 at 07:15

Aw Julie, we definitely feel for you right now, sending BIG HUGS.

Always in our thoughts and prayers that you can get through Christmas 4 unscathed.

Any more puppies due before the new year?

Best wishes all.

Chris. xxxxhugsxxxx

User

Posted 30 Nov 2016 at 07:49

Julie

Bugs hugs from me and keep going girl.

Thanks Chris

User

Posted 30 Nov 2016 at 21:40

Julie your messages are so amazing. I really hope the appointment goes well and you get some help for the eating probs and breathlessness.
Wishing you both the best possible festive season you can have x

User

Posted 30 Nov 2016 at 22:24

Sending lots of hugs to one amazing lady.

Fiona. xx

User

Posted 01 Dec 2016 at 08:04

Hi Julie

You are not painting a pretty picture http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif the description sounds nothing like the lovely lady i have met many times.

So as we both approach our 4th Christmas with this bloody disease who would have thought it.

Hope Father Christmas is bringing Trevor plenty of Turmeric http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif

The girls all send there love

Si xx

Don't deny the diagnosis; try to defy the verdict

User

Posted 01 Dec 2016 at 11:30

Dear Julie,

You'll probably go mad at me for saying this, but if ever I'd put a lady on a high pedestal it would have to be you.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

The comments above are spot on. 'Awe struck' is certainly how I feel when I read some of your posts

For so long now, despite the terrible situations you and Trevor have faced, you've somehow managed to to bring not just a smile to us, but some completely LOL & 'Spluttering Out Tea' moments.

Coming up to your 4th Christmas of the battle, (along with Si), may I wish you and Trevor the best one ever.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

And get him to keep taking the turmeric (I swear by it, having about 6 tsps of it plus the same for ground cumin, in my veg juice then grinding in black peppercorns to complete the mix).

YOU ARE ONE VERY SPECIAL WOMAN!http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif

Warmest wishes to you both,

Always,

George

B2PCa

User

Posted 01 Dec 2016 at 20:10

Hi Julie
Wishing you a belated very happy 58th birthday, you should have asked for a razor for your birthday. Perhaps you could put it on your Santa list!! Or even what the heck, it's more important to be beautiful on the inside than the outside which I believe you trully are.
Really hope Trevor gets on ok with the radium treatment and that his BP/chest pain/breathing don't cause too much of a problem.
Take care Julie
Lesley xxx

User

Posted 07 Dec 2016 at 21:34

Guys I don't deserve your lovely comments although they have cheered me up no end , well cheered me up and made me cry in equal measure. Thank you all of you.

It's funny isn't it when the going gets tough we head for home because home is where we feel safe and home for me when the going gets tough is right here on the forum .

Not sure if any of you have noticed but I have been told that I have a brilliant sense of humour and I must admit I do think laughter is the spice of life , well apart from Turmeric that's also a pretty good spice.
I just had a flash back to my dads funeral , I loved my dad beyond measure and still do my mum and dad had a balcony on the front of there house and myself and my brother decided to be there together and watch people arriving . Everything was very solemn and dignified until my Auntie Rita arrived (she had a shortened leg and wore a built up boot) hence her driving and especially her parking wasn't very good. She took 25 mins to park and managed to flatten the 4 cones put out for the hearse. She then went on to blame my Uncle Bill in a very loud voice saying his " back a bit " forward a bit " was to blame . I could hear my dad chuckling as well .

Laughter is the best medicine but some times it is hard and at the moment even I am finding it hard. the breathing issues are better and the bp has returned to near normal so that's some good news but he has now got pain in his hip and left leg ( Trevor is adamant it's syatica ) me not so sure so very gently managed to persuade him to see the GP. GP has prescribed stronger pain killers his walking is quite bad.

He is sleeping loads and is very low in himself , the teeth situation is still far from resolved and we are still waiting for the second referral . Not being able to eat and chew is depressing him ( Trevor loves his food) . Just made him a fish pie and put some mushrooms in that I thought would be soft but he couldn't chew them.

It's the eve of our eldest sons birthday tomorrow he will be 17 , that's the hardest part of all of this just trying to make life as normal as possible for the boys. Things to be thankful for though are the last 3 years my handsome boy has had his dad there to see him through from being a child to becoming a young man, I am so happy for that.
BFN
Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 07 Dec 2016 at 22:24

Ah Julie - if ever anyone deserved thanks and appreciation in bucket loads it's you. You are such an amazing and positive force on this forum. You provide laughter and wit and advice and comfort and courage - and continue to do so in spite of everything that life and this awful disease throws at you and Trevor. I do hope there are people looking out for you too. You are one special lady.Massive hugs

Love

Eleanor xxx

User

Posted 07 Dec 2016 at 22:26

Be as brave as a lioness - lionesses are much braver than anything else in the world x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 07 Dec 2016 at 22:27

Julie - I've read so many of your messages since my husband was diagnosed with a very high PSA in the thousands. You have faved so much yet still deal with everything with such strength and humour.
I hope your son has a lovely birthday and that you are able to celebrate with him. (My twin boys are 17 too. ) x

User

Posted 07 Dec 2016 at 23:35

Sallly some thing else in common other than Sky high PSA 😉

Eleanor Thank you.🤗

Lyn so in tune with you and so getting the lioness but don't forget the The Archer "Half Horse ! Half Man who shoots straight from the hip. Always knew you were a fellow Saggi. ❤️️
BFN
Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 08 Dec 2016 at 22:47

Hi Guys,
I am really not happy to accept this sciatica diagnosis our GP has examined him from top to bottom and said that he thinks sciatica, Trevor has said it is like sciatica pain down his left leg and buttock.

The extra pain killers aren't working and he is shuffling call me a negative Nelly but I am thinking SPCC , he is unable to turn in bed and his walking is severly impaired.
So of course I have googled and come up CCCP presenting with syatica like leg pain ( a rare complication).

He has by 9 am tomorrow morning to be doing a Lionel Richie ( dancing on the ceiling) or it is of to A&E . I won't accept any arguments or procrastination . I have printed od Profs Chee keong Chan findings and it is stapled together.

I am a women on a mission .
BFN
Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 08 Dec 2016 at 23:22

Originally Posted by: Online Community Member

He has by 9 am tomorrow morning to be doing a Lionel Richie ( dancing on the ceiling) or it is of to A&E . I won't accept any arguments or procrastination.

Do it Julie. My latest scans showed spread into my spine. My Onco was able to demonstrate the spinal cord was not under immediate threat. If it was RT would have been ordered. All they will have to do is a CT scan, no spread to spine, then no worries.

User

Posted 09 Dec 2016 at 01:54

Or a call to the Wiz's secretary?

I don't think we have ever discussed this but are the spinal mets upper, lower or the whole lot?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 09 Dec 2016 at 07:59

Go for it, Julie. Sounds like this needs a thorough checking out to head off anything sinister. Just seems endless though, doesnt it ? Will be thinking of you today.

FiONA. X

User

Posted 09 Dec 2016 at 08:31

Dont take any chances Julie, Jamie is always reminding me about this.

Hope you get it sorted

Si xx

Don't deny the diagnosis; try to defy the verdict

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