Advanced prostat cancer part 2

User

Posted 12 Dec 2016 at 21:14

I am useless with words & spelling but sending you so much love xx,tomorrow my husband is due his 5th radium 223,he is my hero battling this cancer 11years ,been through every treatments and trial never complained .hope radium 223 is good for Trevor xx

User

Posted 12 Dec 2016 at 21:19

To Julie and all your family

(((((((((((((((((((((((((((((((((((((((((((((((hugs)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))

XXXXXXXXXXXXXXXXXX

We can't control the winds - but we can adjust our sails

User

Posted 12 Dec 2016 at 21:25

So sorry Julie...thinking of you and sending love and hugs and hope.

xxx

User

Posted 12 Dec 2016 at 23:28

I'm so sorry to hear your news Julie. You are very much in my thoughts. Let's hope the radium gives Trevor a boost.

As Piglet says I hope you have the hospice involved. When David was feeling really awful they did a big rejig of his medication and it really boosted him.

Thinking of you all

Rosy xx

User

Posted 13 Dec 2016 at 10:00

So sad to read this Julie - I hope things start to look a little brighter today xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 13 Dec 2016 at 10:02

Trying to be practical - have you applied for the financial support Trevor is entitled to? You are so far into miracle land that the Wiz must feel able to sign forms now?

Edited by member 13 Dec 2016 at 11:52 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 13 Dec 2016 at 16:51

Just adding my message of love and support to all the others Julie.

User

Posted 13 Dec 2016 at 17:32

Our hospice nurse sorted all that for us - Attendance Allowance is payable once the diagnosis is "terminal" (less than six months), without having to answer a lot of complicated questions about your specific care needs, and she also got us a Blue Badge. Neither is means tested.
Marje

User

Posted 13 Dec 2016 at 17:34

I am so sorry to read this Julie I hope Trevor gets his radium today and it gives him a boost. You have always been so inspiring and supportive to everybody on this forum and it's so sad to think you are feeling low but perfectly understandable.

My other half Mike didn't have his second treatment as he couldn't face the journey back to the hospital having only been discharged late on Sunday night. It has been postponed for two weeks.

My thoughts are with you and Carol hopefully Her Trevor's treatment went well. Xxx

User

Posted 13 Dec 2016 at 18:09

So very sorry Julie, I cannot think of anything to say to make you feel better. We have only been battling this dreadful disease six months but every time I have posted you have always replied and I thank you for that it has meant so much. I just hope you and Trevor can find strength in all the love that is being sent to you both.

You are both in my prayers.

Debbie x

User

Posted 13 Dec 2016 at 19:11

Julie

Thinking of you both during these tough times.

Thanks Chris

User

Posted 13 Dec 2016 at 19:58

Thank you so much for all of your lovely comments don't no where I would be without you all and I really mean that.

I am in need of help guys, 1st Raduim transfusion was today when he got home he was feeling sick and is now in agony with pain everywhere . He can't stand unaided or sit up.

Is this normal with the first infusion?

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 13 Dec 2016 at 20:07

Julie,

Others on here have posted about Radium 223 and some have reported an increase in pain following the first treatment. I hope Trevor gets some relief very soon. See here:

http://www.cancerresearchuk.org/about-cancer/cancers-in-general/treatment/radiotherapy/internal/types/radium-223#Possible

David

Edited by member 13 Dec 2016 at 20:11 | Reason: Not specified

User

Posted 13 Dec 2016 at 20:07

I don't know about Radium but with chemo you are given a number to call if any problems - did you get given one for this?
If not and Trevor is in so much pain then I would call NHS direct for advice. If he gets worse then go to A&E - you won't wasting anyone's time.
I really hope you get some good help tonight x

User

Posted 13 Dec 2016 at 20:08

I can't comment on Radium but I do remember David having really bad pain when he first started chemo. Apparently due to the 'attack' on the cancer cells? But it sounds like he needs a GP or 111 call to try to get the pain under control asap.

Big hugs

Rosy x

User

Posted 13 Dec 2016 at 20:22

Also see here:

http://community.prostatecanceruk.org/posts/t12273-The-journey-has-begun#post153077

User

Posted 13 Dec 2016 at 21:36

Thanks guys,

I have rung 111 and they said up the pain meds that we have and thank goodness that has worked, he is now sleeping . They refereed me to the local hospital who then rang twice to say they can't find his notes (really are they serious it was probably Trevor's notes that sunk the Titanic) .

Advice from the local hospital is contact our GP tomorrow to chase up the McMillan nurses I have said it before and I will say it again !Its certainly not like the tv adds ! We are here to help you , what a load of baloney.

Hopefully this is a kick back and we will be back on track soon . I am so glad that I erected the Xmas tree in Sept , that's one less worry.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 13 Dec 2016 at 21:40

I'm so glad you got to speak to someone tonight Julie - even if you've got to do lots of chasing tomorrow. I hope you manage to get some sleep x

User

Posted 13 Dec 2016 at 22:06

You are amazing Julie. Hope the meds go on working and that you and the boys get some sleep tonight too.

Eleanor

xxx

User

Posted 13 Dec 2016 at 22:17

Dear Julie,

My thoughts are with you. I hope tomorrow gives you both some respite.

I have read your posts over the months and admired your strength and humour.

Thank you Julie, and I hope you both get the right support.

Leila x

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