Advanced prostat cancer part 2

User

Posted 19 Dec 2016 at 22:02

Wonderful news...well done both of you and three cheers for the morphine.

Happy Christmas.

Eleanor

xxx

User

Posted 19 Dec 2016 at 22:17

Yay :-))
Eggnogs al round xx

User

Posted 19 Dec 2016 at 23:10

Great news, Julie. I'm so pleased for you.

Enjoy a great Christmas now.

Steve x

User

Posted 19 Dec 2016 at 23:30

Julie

Great news for all of you, enjoy your Christmas.

Thanks Chris

User

Posted 19 Dec 2016 at 23:33

Julie,
Better news then, phew!

God Bless
Chris xxxxx

User

Posted 19 Dec 2016 at 23:38

Glad to hear your news, Julie

Walter

User

Posted 19 Dec 2016 at 23:51

Good News Julie.

Enjoy Christmas.

KRO...

User

Posted 20 Dec 2016 at 01:25

Happy for you all, hope you have a really great xmas.

User

Posted 20 Dec 2016 at 06:13

Christmas is a great time for families and so glad that Christmas is back on. Really hope that the latches do the job over the next week at least, julie hope you can have some great memory creating time with your wonderful family.

User

Posted 20 Dec 2016 at 07:16

This is wonderful news Julie. Hope you've kept plenty of sprinkles for yourselves and that you and the boys have a memorable Christmas! What a let down from the MacMillan nurses - thank goodness you have someone on your side and that you have the voice to shout for it. With all best wishes for a happy Christmas

Rosy x

User

Posted 20 Dec 2016 at 09:14

Well, you've just made my Christmas I can tell you.

There is so much sadness in the world at the moment, so every bit of good news gives me a big boost. I've been thinking of you and Trevor and the boys a lot lately and hoping that things would improve, at least enough to give you a pleasantly memorable Christmas.

Re: Macmillan. I'm sure they do a wonderful job in some places.

My daughter was told she wasn't sick enough to need them ~(aggressive rectal cancer) and many miles away from her my sister couldn't get them to help with her terminally sick husband.
Their practice nurse doubled as the Macmillan and couldn't even organise the correct size catheters, and believe me, my sister isn't backward in coming forward and saying it how it is.

In a previous comment Julie you say it isn't like it is in the Macmillan adverts. You are so right. It is such a shame too, but like most things that are publicly funded I suppose the money just isn't there to spread around.

We can't control the winds - but we can adjust our sails

User

Posted 20 Dec 2016 at 11:09

Happier Christmas to you

Happier Christmas to you whooo

Happier Christmas to youoooooooooooooooo!

Bazza

Barry

User

Posted 21 Dec 2016 at 22:19

This man of mine is going to see me of long before he goes, so last week he couldn't stand unaided with the pain. This week with the morphine he is popping in and out of the conservatory door like a Jack in the box.

Ok so he won't be running a marathon any time soon but the turn around is remarkable , I am having to run to keep up with him.

He has been outside organising a bonfire tonight , not starting just organising .

I Am lost for words and oh so grateful that we have another Xmas together.

I am really not sure how or why he manages to rally and as I said earlier if I could sprinkle some T dust I most certainly would , so for any newbies initial diagnosis of PSA 13000 , spread to all of his torso, and three plus years down the line , here we are hanging by a thread but hanging we sure are hanging

BFN

Julie x

NEVER LAUGH AT A LIVE DRAGON

User

Posted 21 Dec 2016 at 22:52

Christmas magic! Enjoy julie with Trevor and your lovely family. Amazing rally.

User

Posted 22 Dec 2016 at 00:27

Oh Julie what a tonic and a joy you are. Just checking the forum before taking myself off to bed after a rather stressed and sad evening and then along come you and the amazing Trevor, bouncing around the conservatory and organising bonfires and being wonderfully randomly barkingly glorious. Bless you both. I'll go to bed with a grin.

Eleanor

xxx

User

Posted 22 Dec 2016 at 09:10

That thread must be made of titanium of something. Whatever it is it also stretches. Long may it continue.

Have a great Christmas

We can't control the winds - but we can adjust our sails

User

Posted 26 Dec 2016 at 01:30

Not such a good post so sorry guys, Xmas day should be such a happy day but I suppose for many a stressful day, well for us an emotional day. I have always kept my posts upbeat but today has been emotional.

Trevor got tearful when he was opening his presents and left the room unable to control the tears the boys were shocked and obviously worried. I managed to calm the situation and bring him back but I tell ya this clucking disease has got a lot to answer for.

Between us we managed to pull everything back for the boys but it was hard flicking hard.

Without a minor miracle this will be Trevor's last Xmas and the pressure to make it wonderful with all of that sadness hanging over us is almost impossible. Sorry if I am making everything sound miserable but this is our reality.

He went to bed at 4 his HB is low again so his energy levels are low.

Tomorrow or is that today is another day and I suppose it is apt that it is Boxing Day because I will be fighting to make it a normal day .

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 26 Dec 2016 at 01:49

Sending you a big hug, it's not an answer to your problems but just know whatever time of day it is you are not alone. Also one day I will probably be feeling exactly the same.

Tomorrow is another day

Stay strong

Liz x

User

Posted 26 Dec 2016 at 07:46

I'm so sad for the situation you are in Julie. I am struggling big time too. Nowhere near your stage but worrying scans and prognosis straight after Xmas, six year old boy , teenage daughter , and disabled 24 hr needs boy at home too. And all I wanna do is run away and be in peace and solitude because I'm running at permanent 90% stress levels.
May today be a better day. Throw some cheeky cuddles in !!

User

Posted 26 Dec 2016 at 08:27

Sad for you, Liz and Chris and your families and I know it doesn't help.

I am thinking of you all though and hope that things look brighter (or as bright as they can be) today

(((((((((((((((HUGS all round))))))))))))))))))))))))))))

Edited by member 26 Dec 2016 at 10:58 | Reason: Not specified

We can't control the winds - but we can adjust our sails

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