Advanced prostat cancer part 2

Bu**er! If it is bone met pain hopefully they can get it under control but shame Abby been ditched. Thinking of you all on this Father's Day weekend. Hope he can enjoy his t-shirts and his family and some home cooking.

I hear you - you are talking to the woman who kidnapped her mum from a hospice and took her home to die with some dignity.

What if anything can we do to help you?

Oh Julie , you know I'm gunning for you both xxxxx

Hi Julia,

Really sad to hear how things are going for you.  It's not fair and not what you deserve.

I hope things get better for you both. 

I wish I could help more.

Steve x

Nothing can be said except to send my love. Keep fighting the system you two.

Bazza

As you know I don't come here often these days but felt compelled to come tonight and now I know why. My heart goes out to you all, I wish I lived closer as I'd run you up to the hospital. You may remember we had a hideous experience when John went into retention, and this has been at the heart of so many problems since. Stand up to them, I know everyone loves the NHS and so do I but it is not without many faults, particularly now. My sister (who passed away earlier this year) was never washed until she was dying and then it was rubbish as she was too ill to be messed with.

Have you got a hospice nurse anywhere to fall back on?

I'm thinking of you all love

Massive love

Devonmaid xxx

Arrived at the hospital for 10 am only to be told visiting was 2 -8 , of course I know that beacause there are signs everywhere that stipulate that fact. So I preceded to ignore them and give Trevor a drink and his humongous pot of tablets that were just left on his bedside table.

My intention was to kidnap him but the more I looked at him I knew this wouldn't be possible he is very confused and unable to stand unaided. So I decided to wait until Drs had done there rounds. Trevor has gone downhill so fast he is not aware of what is going on around him. So I waited and I waited the ward sister kept assuring me that the Drs would be there soon.

I got fed up of waiting and whent and found the ward sister and mentioned that as Trevor is unable to walk to the toilet he is incable of weeing and probably hasn't weed for a few days . His tummy looked to me ( bloated and full of fluid ) but I don't have a nursing degree ! So I mentioned this to the head nurse and she arranged a scan of his bladder . Sure enough 8 litres of fluid so it doesn't take the brains of an Arch Bishop.

At 2.30 the Drs finally make an appearance he Obi Whan Kanobi agrees severe fluid retention and yes I did say I told you so.

Up shot is Trevor is on MAX morphine dose other than a driver , he urgently needs a catheter but this may not be possible going the direct route so may need a SPC.

His team want him to sign DNR . The Drs Obi whan and his assistant think he may not make the op

I have been told by his Drs just how week and poorly he is I didn't need to be told this I can see how quickly he has deteriorated. They are predicting weeks at the most and could be less.

My wonderful man who has fought this hideous disease for 4 years is know at the mercy of a very poor hospital and a severely laking nursing staff .

BFN

JulieX

When I look back to my first cries for help so many are not here to answer they are gone but not forgotten .

Love you all thank you

BFN

Julie X