I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

«<5253545556>»

Advanced prostat cancer part 2

Email this conversation Print this conversation
User
Posted 22 Jun 2017 at 00:10

Is he on a general ward? Did Claire think there was a chance of a bed coming free on oncology?

If anyone can survive this it will be Turmeric Trevor - hoping and praying for you all xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Jun 2017 at 00:15

Thank you for the update Julie

I have been so worried today and have checked back frequently for news.

He is, as you say, such a strong man, but even strong men need help.

I pray. I'm not sure that there is anyone there to answer but it do it anyway.

Keep strong my lovely.

You have a hard road ahead of you and you will be constantly in my thoughts for the next crucial 24 hours.

Please don't forget to look after yourself too because Trevor and the boys need your strength.

You know we are all here willing you both on

Best Wishes

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 22 Jun 2017 at 00:55
Yes Lyn he is on a general ward but on my Insistence and with Claire's help he will be moved as soon as a bed becomes available onto Oncology. Apparently there are only 18 beds on Oncology as aposed to 30 on a general ward.

I have told all of them that he needs ro be moved ASAP and I don't want him on the ward that he is on a minute longer than he needs to be .

I have reported it to PALS but just by phone and I will be taking it further . At the moment they are very apologetic on the ward and have organised a electronic bed / an air mattress. The ward are are know trying to bend over backwards but it is all to little to late.

I am not a very assertive person but back me into a corner a watch this Lioness Roar.

Trevor is fighting and as long as he is fighting I am right there behind him .

It ain't over till the fat lady sings and from Trevor and myself she ain't singing YET.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 22 Jun 2017 at 08:07
Hi Julie

I too haven't been online yet a while and am so sorry to here of Trevors struggles.

I so empathise with you, it's a particularly hard time for you and your family.

Sending you lots of love, take care lovely lady!

Lesley xxx

User
Posted 22 Jun 2017 at 16:59

Keep fighting Julie make yourself heard. It is so hard on you and as you say after all the battles to not react to infection quickly enough is inexcusable. I do hope the anti-biotics kick in and you begin to see more hope. It sounds as if he can beat this infection then there is so,e short term hope. I do hope so, I do hope so.

It must be so hard for you and in the midst of all this make sure you care for yourself and get some rest. Hopeful for better news soon. Thinking of you and Trevor.

User
Posted 22 Jun 2017 at 17:11

Julie, I lost a mother in law last year to Sepsis which the NHS hospital seemed unable to control. I think there are various antibiotic-resistant bacteria at large in hospitals. It seems to be a matter of luck whether they pick the right antibiotics to deal with the problem which their neglect caused. Keep on their backs! This thing can be a killer, as I know. You may find a change of ward will help, but oncology will not necessarily be best versed in dealing with Sepsis. Would a change of hospital be out of the question?

Battle on as only you can and be merciless with the bureaucracy
AC

User
Posted 22 Jun 2017 at 18:26

Dear Julie,

What a nightmare, and what criminal neglect. You do need to roar like the lioness you are.

After all Trevor has gone through, this is unforgivable.


Reading your posts have had me absolutely boiling mad at the treatment you've both been given.


Be strong Julie, stronger than ever.
As you rightly say, Trevor has never stopped fighting and neither have you.


Big warm hugs from George (and Lynn ....she's even angrier than I am).


B2PCa
User
Posted 22 Jun 2017 at 22:35
Lovely Julie

I am so furious to read this update, sadly it doesn't surprise me having experienced some of the worst treatment (or lack of) in the last couple of years. I cannot believe that they didn't check him for passing water, the absolute shame of it! They have made your husband sicker than he is and if he dies of this, it is their fault. Shame on them. There is so much neglect in the NHS nowadays, simple daily procedures seem to have gone by the board. I can't tar everyone, there are some wonderful people, but this is too awful. Julie, if you need any financial support for taxis or incidentals, I'm happy to chip in, I know things aren't easy. We all adore you here, you have been an absolute joy to follow and read about your antics, even in the worst of times. If there is anything we can do, just say the word. Are you getting PIP? Please say yes, if not phone tomorrow first thing and get that sorted, I'll help in any way if you need it. I know what you need to do. Just send me a PM.

I hope that Trevor is able to fight the sepsis now that he is being treated. How the heck is that even possible in hospital today?

Massive hugs my dear friend.

Devonmaid xxxx

User
Posted 23 Jun 2017 at 08:59

Hello Julie

I don’t do much on the Forum these days but I follow a number of posts, including yours, to see how Trevor and you doing. I cannot say much to add what others have said except, as we know, NHS experiences can be excellent or rubbish. When experiences are not good sometimes people may struggle to cope with them and to find out what they can do.

I cannot say much more than has already been said except I agree with George’s comments and many of the other reactions. I do hope that the belated improvement in Trevor’s care continues but as you have said the changes are a little to late.

You may remember I put together a posting about complaints and representation a few years ago. This was carried forward when the website was changed some time back and you can see the posting under ”General discussion / prostate cancer treatment guidelines/ Complaints and representation etc – Part 2” or go directly to the link below.

http://community.prostatecanceruk.org/posts/m141866-COMPLAINTS-AND-REPRESENTATIONS-ETC---PART-2#post141866

Not everyone chooses to follow up on bad practice but there may be something in the note to help you.

Very best wishes

Alan

Edited by member 23 Jun 2017 at 12:13  | Reason: Not specified

User
Posted 23 Jun 2017 at 20:21
Just a really quick update Trevor is now on the oncology ward and the difference in the level of care is like night and Day.

His bloods show that he is responding to the Antibiotics and his Liver scan showed nothing untoward , his kidney function is responding to the IV fluids.

My Man is fighting back he still isn't eating but I did manage to get him to have a mini triffle .

He is still confused and hallucinating when I arrived he thought we were in Beirut apparently there has been gunfire and explosions all night and he was worried that we wouldn't get a flight out . I have worked in care homes for years and have experience with Alzheimer's patients and one thing I learnt was go with it and don't try and bring them back to reality but join them in there world. So I told him that I had booked us a first class seat on the first plane out of there .

He was really happy with that but then the pirates and the long boat arrived and he wanted me to cut someone's throat I told him I only had a hospital plastic fork but I would stab them in the eye 😱

So we are very much still in Shark Territory but we have a huge sprinkle of HOPE and I feel so much more confident with his level of care . He is Shamazing and I don't know how or why he has so much fight in him but he does and as long as he does I will stand shoulder to shoulder with him wether we are battling bombs and gunfire in Beirut or Pirates in a long boat. He is fighting and I am right by his side.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 23 Jun 2017 at 21:22

Quote: "He is Shamazing and I don't know how or why he has so much fight in him but he does and as long as he does I will stand shoulder to shoulder him wether we are battling bombs and gunfire in Beirut or Pirates in a long boat. He is fighting and I am right by his side. "

 

Of course you are and you are also the reason he has so much fight in him.

 

Thank  you for the update. Fingers crossed it continues.

We can't control the winds - but we can adjust our sails
User
Posted 23 Jun 2017 at 21:33

I've checked in a few times today to see if you had any update for us and I'm so pleased to hear Trevor has some slight improvement, keeping everything crossed for more progress

🙏🏼X

The only time you should look back is to see how far you have come
User
Posted 23 Jun 2017 at 21:34
That is amazing and you are amazing. I've been following your posts and I'm in awe of your strength of character. May the road ahead be smoother for you
User
Posted 23 Jun 2017 at 22:08

Extraordinary, awesome, amazing, brave, powerful, determined, glorious, loving, funny. You are a force of nature Julie. So pleased to hear that there's some hope, and better care, and that you and your wonderful man are shoulder to shoulder whatever the pirates of Beirut throw at you.

Not for the first time, you give me courage to cope.

Love and hugs

Ruth/Eleanor

xxx

User
Posted 23 Jun 2017 at 22:45

Always like a bit of good news on a Friday night and you have provided Julie. It sounds as if this corner is being turned, the rocky road continues.

User
Posted 23 Jun 2017 at 23:44

Thank God for small and big improvements

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 24 Jun 2017 at 07:20

Your post brought a tear to my eye. Wherever you both get your strength and determination from I do not know, I have nothing but admiration and best wishes for you both. Thank you for being there for Trevor, and sharing with us.
cheers
Graham

User
Posted 24 Jun 2017 at 10:37
Julie,

Trevor will be so proud of you, as we all are on this forum for fighting for your man. Fingers crossed this will be the turning point for you both.

All the best

Roy

User
Posted 24 Jun 2017 at 11:02

Hi Julie just to let you know that I can't pick up messages on fb at the minute but will be back home tomorrow night xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 24 Jun 2017 at 14:17
Wow Julie

What an amazing man he truly is, with a most wonderful lioness by his side. It goes to show that proper treatment can and does work, we are with you every step of the way.

With love and awe

Devonmaid xxx

 
Forum Jump  
«<5253545556>»
Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2025 Prostate Cancer UK