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Advanced prostat cancer part 2

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User

Posted 30 Jun 2017 at 13:10

Is there any news of Trevor? Not seen a post for a couple of days but it's also got stuck on the turnover. I will try and get it to next page.

User

Posted 30 Jun 2017 at 13:14

I've been wondering too Paul.

Keep telling myself, no news is good news

We can't control the winds - but we can adjust our sails

User

Posted 30 Jun 2017 at 21:36

I've not heard anything for a few days, I think radio silence is to be expected but am hoping that it's for good reasons and not bad.

Devonmaid

User

Posted 30 Jun 2017 at 22:50

Hi Guys,

So sorry for the delay but by the time I get back from the hospital it's full steam ahead feeding dogs and children I just collapse with exhaustion .

So he is still critical but stable and looks much better than a few days ago dare i say I have a very small sprinkle of hope , he is much less confused and is able to sit in a chair he is still not able to stand unaided but is eating and feeding himself.

He was apparently fighting 2 infections a lung infection and also the one from the necrosis of the jaw so no wonder the Sepsis.

The confusion is improving but as reality is hitting he has been a bit tearful he hasn't really been aware of anything that has happened in the last week to ten days.

He did relay to me today how he was confused about how to get home and how everything looked different so he had to fly a drone and get an Ariel view of our property so he could just get home and be safe.

He has had 2 blood transfusions and a whole gamut of drugs that are ongoing , his bloods are still all very unstable and electrolytes are all over the place. The catheter is still in place and numerous drips are ongoing.

Ct and bone scan were done yesterday , stomach and bowel are clear of cancer and his liver and lungs all ok but much more progression in the bones so it looks like the Raduim wasn't successful .

I am totally in awe that he is still here and still fighting and when he refused the walking frame and said if I have to drag myself on my belly then that's what I have to do I am not having a frame that's when I knew he has got a chance to come out of this.

He is just such a fighter , no wonder all,of his hallucinating was about fighting wether it was about pirates or Beirut he was fighting for his life.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 30 Jun 2017 at 22:59

Such a lovely message, Julie, when you must be absolutely exhausted. So pleased that there is progress, however limited, it may seem. Let's hope bit by bit it continues and he can get the infections out of his system. Look after yourself too, I know it is easy to say and harder to do but you must make sure you are there for yourself, your kids and of course Trevor.

Good to hear from you I had begun to think the worse and that is misplaced. Thinking of you all.

User

Posted 01 Jul 2017 at 00:32

Well that's a relief. Has his swollen tummy gone down a bit?

Has T ever talked about what he would want to happen when the time comes? It looks like you may have a chance of enough respite to maybe get him home if that is what you want but probably need to hound the relevant people now so that everything is in place if the opportunity arises to have him moved. Is there a home care team or social worker at the hospital? Who can liaise with the Marie Curie nurses, district nursing team etc? How much notice would they need to deliver a proper bed and any other equipment?

How are the boys?

Edited by member 01 Jul 2017 at 01:03 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 01 Jul 2017 at 08:24

Dear Julie,
Lyn and Paul have said it all for me really.

I'm just so pleased that there is a glimmer of light, no matter how tiny.

Still thinking of you all.

Best Wishes

Sandra

We can't control the winds - but we can adjust our sails

User

Posted 02 Jul 2017 at 23:16

Wow , wow , wow and treble WoW we are not out of the woods yet by any stretch of the imagination they are still saying critical but stable . BUT my Man has asked for the catheter to be removed yesterday and they did it . He is now able to piddle unaided ( ok in a bottle ) small steps and all that , he is all firing in the Brain department the Pirates and the situation in Beirut are now resolved.

Yes Lyn tummy , bowel , liver were all ok on the scans the bones are worse but the problems we have at the the moment are due to infections on his jaw and lungs. These have all caused the Sepsis.

His swollen tummy has been relieved by good old fashioned laxatives 😄

He is eating and sitting in a chair when last week he was totally bed bound and unable to move, as a family we have been dragged through a hedge backwards it is never easy even when we accept and understand our situation from the start.

I can't even put into words how grateful I am for all the help and support from you guys, it is just humbling.

Not sure where Trevor gets his strength from but WOW he is turning corner.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 02 Jul 2017 at 23:22

Shamazing 😃😃😃 really, really happy to read this xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 02 Jul 2017 at 23:29

I am so pleased to read this latest report. You were so supportive to me when my husband was first diagnosed a few months ago. I would like to send my best wishes and hope the progress continues.

User

Posted 02 Jul 2017 at 23:50

Just wanted to add I have had some amazing support from people that I never expected it from you guys on here on here have astounded me and humbled me, you all know who you are.

Also even though these people don't come on the forum they have no need to but just for the record Mrs B who took over the care of my puppies for the last Two weeks a mahoosive thank you.

And Mrs D what a star she has driven like a bat out of hell to take on my two pregnant dogs and taken them down to Essex and will keep them there until I can bring them back .

Sometimes help comes from unexpected places .

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 02 Jul 2017 at 23:56

So glad to hear this news and that you are getting such support. I don't know where you get your strength from let alone Trevor!

Very best wishes

Rosy x

User

Posted 03 Jul 2017 at 05:56

im so so happy that Trevor has made some good progress !!
Been checking in on here like a stalker the last few days for any update l!! Lol

Viv
X

The only time you should look back is to see how far you have come

User

Posted 03 Jul 2017 at 06:35

Fantastic. Keep on trucking Trev!

User

Posted 03 Jul 2017 at 07:44

Great news Julie!

Arthur

User

Posted 03 Jul 2017 at 08:18

Great news Julie xxxx

Don't deny the diagnosis; try to defy the verdict

User

Posted 03 Jul 2017 at 10:10

Simply, unadulterated, good news. Go Trevor.

User

Posted 03 Jul 2017 at 11:49

Brilliant news....

Bri xx

User

Posted 03 Jul 2017 at 13:59

I haven't been on a for a few days but boy oh boy, what fantastic news. I realise it has been a heck of a time for you and the boys and the puppies Julie, but you've got through it and turned a corner. Wow, wow, wow. Trevor and his turmeric are legends.

Love and hugs

Devonmaid xxxx

User

Posted 03 Jul 2017 at 14:09

Great news, keep going gal.

Thanks Chris

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