So what a crazy roller coaster ride we have had in our pca journey .! We have just about ridden every loop the loop possible .
Firstly the good news Trevor is recovering well and gaining strength daily he is still weak and his energy levels are soon exhausted he is very much battered / bruised and very wobbly around the edges but he is getting there and that spirit of his is fighting back. 🤗
THE FAT LADY HASNT EVEN GOT ON STAGE YET
Wiz visit yesterday and I will get to the scores on the doors but first the embarrassment on her face was obvious she admitted that the Drs on the general ward had totally misread Trevor's condition . She also admitted that heads had started to roll . So basically he went in for breakthrough pain and when the pain wasn't under control they upped the morphine level to such a high level that he was unable to communicate.
The pain wasn't actually coming from the cancer it was from the lung infection but we were told it was from mets in his sternum.
His blood results showed an infection but it was ignored , his swollen stomach was wrongly diagnosed as cancer in his liver , his confusion was wrongly diagnosed as cancer in his brain.
His kidney problems were wrongly diagnosed as cancer in his kidneys and when the DR on the general ward told me that Trevor only had weeks to go that was also wrong all of this was diagnosed with no hard facts , no scans just assumptions .
Basically they had written him of without hard evidence . But they hadn't asked me what I thought and they certainly hadn't asked Trevor.
If assumptions were the only thing to go on then Trevor would have died 10 years ago when he arrested with a heart attack in the Royal London ! But he didn't and I am famous for my Buts .
It is so scary that if I hadn't have been there fighting his corner then this post would have a very different outcome.
So the confusion wasn't spread to his brain but from overdose of morphine and the Sepsis
His swollen stomach was gas and food because he was unable to eat and couldn't pass stools
Kidney damage was because he wasn't able to drink himself and was severely dehydrated
His scans have confirmed .
No spread to soft tissue
No new mets to skeleton
I have had my moan and I will be making a formal complaint BUT not yet I need my energy for Trevor , I don't know how he has come through that I don't know how all of us have come through BUT we have . We have all survived to tell the tale
WHAT IS HE MADE OF its crazy , I don't have the answers all I know is he has such a zest for life and QUIT isn't in his vocabulary.
So this is were it gets even weirder Abbi was stopped at the beginning of June when he was admitted to hospital
The Wiz explained that she expected a pretty big rise is PSA over the last month without Abbi and not to be alarmed.
So SCORES ON THE DOORS
PSA JUNE - just before admition to hospital - 4723
PSA after no Abbi for a month - 1787
😱😱😱😱😱😱
W T F happened there I need to say that again WTF happened there .
1787 How Can That Be .
I did get them to check and recheck
Toatly gobsmacked , lost for words just totally gobsmacked . I know Lyn sometimes with ext spread the PSA lowers but scans aren't showing that. 🙃
BFN
Julie X