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Advanced prostat cancer part 2

User
Posted 05 Sep 2017 at 23:27

Amazing - proved again that the PSA is not as important as how he feels!

Lots of love to you all xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 08 Sep 2017 at 11:35

So good to hear this Julie.

User
Posted 08 Sep 2017 at 18:29

Brilliant new Julie. Thank you for the positive (sort of !) update

We can't control the winds - but we can adjust our sails
User
Posted 09 Sep 2017 at 08:11

Sending best wishes and hope he continues to improve - just amazing

User
Posted 09 Sep 2017 at 17:45

WOW.

What else can I say but well done, you might let him back out on the 'ride-on'?

xxxxhugsxxxx
Chris.

User
Posted 20 Sep 2017 at 21:26
Hello my lovelies ,
Wiz on Mon just gone and she is still flabbergasted at the drop in PSA when Trevor was of treatment for a month ( Abbiraterone) she has never seen the like . ! 😳

So back to reality and latest PSA up to 3800 it had to happen but hey we have got about 15 years for it to rise to the original 13000 . The all important bone markers are good everything is stable and all other bloods are good .

The blot on the horizon is still the teeth and abscess that is ongoing , Trevor has to constantly wear a very large plaster covering his jaw he has now got a second eruption in his skin were puss is oosing from . Aunty Bs back on board.
Nothing much can be done internally as the healing process is compromised from the Zometa . But hey in the grand scheme of things it is just a blot on the horizon.

For Trevor not being able to eat the foods he loves has hit hard he loves his food , chewing anything is a problem .
He loves roast lamb with all the trimmings and has been craving it for ages but he just can't chew it so when on Sat he brought me a recipe for 7 hr slow roast leg of lamb
I am not going to lie my first thought was 7 hrs wrestling a leg of lamb wasn't my idea of a lazy Sun , not that my Sunday's are ever lazy . 😄
Second thought was Jules you can do this , third thought was how about I do two legs of lamb and skip mid week meals. I am nothing if not resourceful.

As it turned out 7 hr lamb is only 45mins prep and 6 hrs on the sofa watching " only fools and and horses reruns " Cooshty 😁
So Sun lunch was
7 hr lamb
Dauphinois potatoes
Spinach
Carrots with honey glaze

Home made rice pudding.

Tonight's tea
Was Lamb ragu, Trevor said is that spaghetti bolognaise , 😂😂😂😂😂
I said not on my watch .

BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON
User
Posted 21 Sep 2017 at 07:26

What a lovely upbeat post Julie. Great to see some normality return to your life, hope it continues for the next 15 years, worried about 2032!

User
Posted 21 Sep 2017 at 08:34

Julie,

If you think slow roast leg of lamb is lovely and soft and lambie, then you really must give slow roast shoulder of lamb a try, OMG Trevor will think he's died and gone to heaven (hmmm, perhaps not the best analogy I could have chosen). Mrs _ColU has got a lovely recipe for it which involves wrapping it in tin foil together with carrots and leeks. Let me know if you would like me to send it to you.

David

User
Posted 21 Sep 2017 at 08:56

Lovely post Julie.

I don't eat a lot of meat but will eat lamb and chicken, but only if I can have the outside of the joint and as chief cook and bottle washer that's my perk!!

I have been known in the past to throw the meat and lamb and veg in one of those oven bags (which I normally avoid because I'm not keen on plastic, especially the heated kind) but when we've come back from a 3 hour walk and you open the front door to the smell of roast that's a lovely cosy feeling. All I needed to do was rescue the joint, put the potatoes on high for 15 minutes to brown off, cook a bit of green and we were ready.
It's almost like somebody else has cooked it for you!!

Glad Trevor enjoyed the taste. I bet he was salivating at the smell too

We can't control the winds - but we can adjust our sails
User
Posted 21 Sep 2017 at 17:39
Hi Julie
So pleased to see that things are remaining stable.Is Trevor still the king of turmeric because something is working
Hope the boys are enjoying being back at school 😄
Si xx
Don't deny the diagnosis; try to defy the verdict
User
Posted 21 Sep 2017 at 19:58

So happy to see that the bloods are stable but this mouth thing must be dreadful to live with - I know you play a lot of it down when you are posting.

Lots of love as always x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 21 Sep 2017 at 22:05

Great to hear everything is stable Julie. That lamb sounds beaut....

Hope you and the kids are also ok

Bri x

User
Posted 22 Sep 2017 at 00:47
Lyn you know me to well I do ttry and play the mouth issue down because I don't want to put others of from having Zometa it worked brilliantly for Trevor for 3 years and his is a very rare side affect , but it is horrendous he has to flush his mouth with a syringe 3x times per day and use Corysidil after every meal . The bone is still growing between the bottom teeth pushing them out and the extractions he had in Jan are still not healed because the Zometa stops the healing process. It's a rock and a hard place . He is seen every 2 weeks at the hospital but only to monitor there isn't anything more they can do . Long term plan is to file the bone growth back down but if they can't guarantee his gums will heal they are reluctant to attemp anything more.
So to be able to chew anything is almost impossible and for Trevor who has always been such a foodie it is depressing.

Si Trevor gave up Turmeric and adopted the Fosters diet about 11 months ago , to do a proper scientific study we need you to give up Fosters and go on the Turmeric diet and then we can swap analysis data . You can't cheat though and put Turmeric in your Fosters because that won't work . 😄 That would just fuddle the stats and then Jamie would be in in a downward spiral and end up thoroughly confused , can you imagine if he was looking after both of you.. 😳

David yes please send the recipe I am stocking up on lamb and foil at this moment .

Love to you all X

BFN
Julie X


NEVER LAUGH AT A LIVE DRAGON
User
Posted 22 Sep 2017 at 02:30

Julie it is so good to see your post. When thinking about the future I think of you two & your boys & know we can kick ass too. You are such an inspiration. I'm sure there are whole days when you feel anything but & as Lyn said, I'm sure you give us the good bits with spin on the rest, but my God are you two awesome! Thank you for your honesty (strangely, considering the last sentence!) and your record of life with Trevor.
Mel x

User
Posted 24 Sep 2017 at 14:13

SLOW COOKED SHOULDER OF LAMB IN FOIL


Ingredients for 2 - 3
A lean half shoulder of lamb, preferably blade.
6 small – medium carrots, peeled and topped but left whole
2 medium leeks, peeled, darkest green removed and each cut into 3 pieces
2 – 4 cloves garlic, peeled and thinly sliced (optional)
Chopped herbs – any combination of thyme, mint, rosemary
500 ml chicken or lamb stock – from stock cube is fine as long as it’s low salt
e.g. Kallo
1 tablespoon oil
Seasoning



Method
Place a large piece of turkey foil in a roasting pan, long enough to make a not
too tight envelope around the lamb and vegetables. Take care not to tear or
puncture it.
Place the carrots and leeks in the foil.
Trim any excess fat from underneath the lamb and from the sides of the joint.
Heat the oil in a large frying pan and brown the lamb all over, particularly the
skin side. Drain the lamb of fat and place it on top of the vegetables. Sprinkle
over the herbs and the garlic slices, if using. Add about 100 ml liquid - red or
white wine, or sherry, or some of the stock. Season with a little salt (not too
much as the gravy is made by reduction) and fresh ground pepper. Bring two
edges of the foil together and fold them to make a seal. Now fold or scrunch
up the other two edges to make a seal each side. You should now have a not
too tight foil parcel in the roasting pan.
Place the pan in the oven an cook at 150 C (Fan 135 C) for 3½ hours.
Carfully open the foil and use a couple of forks to move the lamb to an
ovenproof dish. The lamb should be very soft and easy to pull away from the
bone. If you want to crisp the skin a bit, turn the oven up to 220 C (Fan 200 C)
and cook the lamb for about a further 15 mins. Otherwise just keep it warm.
Meanwhile, transfer the vegetables to a dish and keep warm. Pour the liquid
from the foil into a saucepan. Add the stock and boil rapidly to reduce and
create a nice gravy. Season to taste. If you want a minty gravy, add a
teaspoon or two of mint sauce.



Options
Whole shoulder can be cooked like this, but will probably take 4 –5 hours
depending on size. Most root vegetables including small potatoes can be
used. Peeled whole banana shallots are a nice alternative to leeks.
For a Spanish flavour use peppers cut into large chunks instead of leeks, add
a teaspoon or two of smoked paprika and some dry sherry to the foil parcel.
Curry spices can also be used for an Indian flavour.

User
Posted 28 Sep 2017 at 20:40
So the highs and the lows update also the ups and the downs.
Since the Sepsis and all of the lows that bought things have been generally on a high , Trevor has felt well and life had returned pretty much to normal ! Well our normal . Our crazy normal since this whole journey started.

So highs he survived the Sepsis .
The ups is as usual the PSA 3800
The low was how much the Sepsis took out of him

We have had 2 months of him feeling better and looking better another high.

Of course as with any high there has to be a low !
So in the last few weeks the bone pain has returned with a vengeance he is back on the higher dose morphine which is controlling the pain but the downside is he is much more sleepy.
New scans have been organised for next Thurs , he has extra pain in his back, shoulder and ribs.
Mobility is another low he is finding it difficult to walk or sit unaided .
Things seem to have progressed quickly, but hey we have been here before , we have beaten the odds so many times .
Can we turn this low into a high ! Watch this space .

BFN
Julie X
NEVER LAUGH AT A LIVE DRAGON
User
Posted 28 Sep 2017 at 21:00

Hugs from me Julie. XX

We can't control the winds - but we can adjust our sails
User
Posted 28 Sep 2017 at 21:03

And hugs and love and more hugs from me too.


Rxxx

User
Posted 29 Sep 2017 at 08:14

Sending hugs as well

User
Posted 29 Sep 2017 at 09:22

Tonnes of love to you both. You've been through so much. Xx

 
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