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Advanced prostat cancer part 2

User
Posted 25 Oct 2017 at 21:48
Sorry I can't help but sending every good vibe I have, thinking of you both
Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 25 Oct 2017 at 22:50

Like Ruth, I went direct to our local hospice. Of course, on another day, I kidnapped mum and took her home so that she could be cared for properly ... not to be taken lightly but always a potential plan C

You are a funny lady and as brave as a lion. Dig deep my lovely friend and bare your teeth to get him out of that awful ward and somewhere more nurturing.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 26 Oct 2017 at 09:17

I am so sad to see your latest update Julie.

As usual you are in my thoughts and I'm willing you to succeed XXXX

We can't control the winds - but we can adjust our sails
User
Posted 26 Oct 2017 at 11:31

Thinking of you both.

User
Posted 26 Oct 2017 at 18:27

Sorry to hear of the current situation Julie. keep banging on their day. Whats the saying the squeakiest wheel gets the oil

Thinking of both of you

Bri xx

User
Posted 27 Oct 2017 at 19:06
A very quick update,

Got a call this morning from the hospital ( after yesterday when he seemed much improved although very confused). To come ASAP he had been sick in the night and aspirated.
He has a lung infection and is now on IV Aunty Bs and it seems we are pretty much back to the situation we where in a few weeks ago . Albeit he is now much weaker ,
I have to be honest and the situation looks pretty grim he has been placed back on the Amber Pathway ( ie no improvement in the next 24/48hrs and they will withdraw treatment).

The Wiz has visited and as you know she is a no nonesence Gal and said even if he pulls through this episode and that’s a big IF then we are looking at maximum 8 weeks .
She said today that she would have stopped Abbi at the next visit ( I had already guessed this ) . Chemo has always been to risky and he is know way to weak to cope .
At the moment he is to weak to be transferred to a hospice so I will leave that for another day.
They are going to deactivate his defibrillator because if he goes into cardiac arrest it will fire automatically and cause him more distress.

At the moment there is only one phrase that springs to mind and that is

It’s Goodnight from Him and it’s Goodnight from Me.

BFN
Julie X

Edited by member 27 Oct 2017 at 19:17  | Reason: Not specified

NEVER LAUGH AT A LIVE DRAGON
User
Posted 27 Oct 2017 at 19:24

Don’t know what to send Julie. Love and strength and hope and little pain. X

User
Posted 27 Oct 2017 at 19:25

I'm crying for you my friend. I hope that they are managing Trevor's pain and that he is not too distressed. And I hope that you have people to call on who can support you while you are there for him (as ever). All my love and strength to you Julie. 


Ruth


xxx

User
Posted 27 Oct 2017 at 19:30

God Bless
This is not a good time

Barry x

User
Posted 27 Oct 2017 at 20:17

Every fibre of my body wants to be there to take some of the strain. Every bit of my heart is crying for you, for T and for the boys. The best anyone can hope for is that the pain is managed and T doesn't fight so hard that he ends up battling against himself.

Is there someone that can stay with the boys if you need to be at the hospital? Are you okay with getting taxis or does the forum emergency 🚒 🚨team need to step in? You know that we would do anything we could to ease this for you xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 27 Oct 2017 at 22:56

Sending my love and hugs to you and your boys


Rosy xxx

User
Posted 28 Oct 2017 at 00:49

I hope they do everything they possibly can to keep Trevor comfortable and peaceful Julie. I'm thinking of you and your boys - I don't know how you keep so strong x

User
Posted 28 Oct 2017 at 01:27
Always thinking of you both and wishing the best. I know that they are only my wishes and thoughts but it's all I can do. I am an agnostic so I can't say god. I put my most positive hope that the spirits be with you now and forever.
Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 28 Oct 2017 at 08:03

Hugs

User
Posted 28 Oct 2017 at 08:28

Xxxxxx

User
Posted 28 Oct 2017 at 08:53
Kind thoughts and wishing for strength and peace at this difficult time
User
Posted 28 Oct 2017 at 09:00

I can't put my thoughts into words.

I can only imagine what you and the boys are feeling now and it doesn't bear thinking about.

if the A team is needed I hope you will ask for their help and not struggle on alone.

Most of all, I hope for peace for Trevor, peace and acceptance for you and for your sons and also that you will remember that you too need looking after or you will not be of use to any of them.

Thinking of you all.

With my love and best wishes
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 28 Oct 2017 at 18:04

Sending loving, hopeful and peaceful thoughts to you all,


Take care
Viv
X

The only time you should look back is to see how far you have come
User
Posted 28 Oct 2017 at 18:28

It seems so very inadequate just to say truly thinking of you both. I hope whatever happens in the time ahead it's as peaceful for you all as it can be.

Ray x

User
Posted 28 Oct 2017 at 18:37
Can only imagine how you are feeling right now julie. Just to say you and Trevor and your boys are in our thoughts. Xxx
Debbie and Steve
 
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