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My 3 men contd

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User
Posted 08 Dec 2016 at 11:38

Thanks guys xxx

I have no wobbles at all about the decision to turn off the machines - if anything, we allowed it to go on a bit too long because dad was struggling to accept everything. To go from diagnosis to ICU in 4 days and then in 2 days to this!

It seems that some forms of lymphoma are extremely aggressive - I only picked them up from the airport last Tuesday so in hindsight quite how she survived the flight is beyond me although it seems the altitude probably speeded it all up. I wonder if that is something men with lymph node involvement need to be aware of when deciding whether to travel with PCa excluded?

Johsan, let's hope that stress does not increase PSA!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 Dec 2016 at 12:59

Apart from anything else it must have been such a shock for this to happen so quickly :-(  You have given such amazing care to so many people I hope you get a least a moment to have a belated birthday celebration.  x

User
Posted 08 Dec 2016 at 13:13

Xx :-(( xX

User
Posted 08 Dec 2016 at 18:38
Hi Lyn

I am so sorry to hear you news, Life really can be a right b****

Hope John gets some good results

Si xx

Don't deny the diagnosis; try to defy the verdict
User
Posted 08 Dec 2016 at 18:51

Adding my love and thoughts. A tough experience to go through but you made the right call. If I were in that situation I sincerely hope someone would make that decision for me. Hope you get some good nights sleep. x

 

Fiona.

User
Posted 08 Dec 2016 at 20:21

Hi Lyn
So very sorry to hear you are going through such a sad time, please take care
Viv xxx

The only time you should look back is to see how far you have come
User
Posted 08 Dec 2016 at 21:37
Sad times indeed, so sorry for life's difficulties that you are experiencing. Good music, great chocolates and lovely scented candles can do the trick instead of a stiff drink! Fingers crossed for the PSA result tomorrow but take time to care for yourself, is there a good spa in your area? A nice bath with Jo Malone(the candles, not the person ) can do wonders, take care
User
Posted 08 Dec 2016 at 22:41
Lyn

You have been a great support to others. Over the past few weeks, it has become evident to me just how valuable your contributions are to all of us. Thank you. I hope you get some rest.

Walter

User
Posted 09 Dec 2016 at 06:43
Lyn

Sorry to hear of your loss. I hope John's PSA result is okay.

Thanks Chris

User
Posted 09 Dec 2016 at 12:12

Dear Lyn,

You amaze me. You have so many of your relations who you are supporting and yet you still have time to offer advice, guidance, support and detailed medical knowledge to the rest of us on this forum. Your current post count is 5,325!!!

You are an incredible, wonderful, person and I admire you so much.

Thank you.

David

User
Posted 09 Dec 2016 at 12:14

and so say all of us!

x

User
Posted 14 Dec 2016 at 23:55

B****r

PSA is 0.1 .... darned receptionist says brightly "oh it's fine" and has to be forced to provide the actual number.

In other news, Dad has seen his GP today and expressed some concern about his PCa progression. GP looks at his recent scores and says "your PSA is really low - nothing to worry about." I asked him, "Dad did you check that she knew you don't have a prostate?" Of course he didn't - he is grieving.

Aaaaaaagggggghhh!

Thank you everyone for your sanity x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Dec 2016 at 07:20
Lyn

Just got this.

You are so supportive of me and countless others.

Much love to you.

Bazza (Barry) XXX

User
Posted 15 Dec 2016 at 08:39

Typical GP surgery responses

How's John? From my recollection he will process this and deal with it.

Still very low Lyn and his PSA has a habit of going up and down. I suppose it's now a case of waiting to see what happens with the next test which may well go back down knowing his history

Take care

Bri x

User
Posted 15 Dec 2016 at 10:50

Lyn, hope you are ok. Lot to deal with and everyone expects you to be the one providing the care. No doubt you will but care for yourself too.

User
Posted 15 Dec 2016 at 15:45

Hi Lyn

Sorry to hear this but agree with Bri, Johns PSA does bounce about a bit.

Hope it settles down next time

Si xx

Don't deny the diagnosis; try to defy the verdict
User
Posted 15 Dec 2016 at 16:49

I have good feelings about this result , whether mis-guided or not Lyn. Johns results have been messing about a bit , but most importantly nothing dramatic is happening which I know would bother you both terribly. You are still at a " maybe " point , which is far better than the alternative. !! Have as lovely a Christmas as you all can x

User
Posted 15 Dec 2016 at 17:39

Lyn yes a damn but strip out the 3 monthly testing and 0.02 increase over a year plus 4 years post RT is not bad. Nevertheless looking at the long term a short spell of HT?.

Ray

User
Posted 15 Dec 2016 at 19:52
Lyn

Sending you all my best wishes.

Walter

User
Posted 15 Dec 2016 at 21:13
Well I can't offer Sanity that would just be CRAZY, and I certainly have no advise on men without a prostate and a PSA reading of 0.02 (is that even a real number)😉

What I do have is a brand new line in comfort blankets ( don't let everyone know though ) there might be a huge influx of orders.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
 
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