I'm interested in conversations about and I want to talk about

Know exactly what you want?

Show search

Notification

Error

My 3 men contd

Email this conversation Print this conversation

User

Posted 08 Feb 2017 at 23:30

The onco said "John, you are going to live to be an old man" .... he fails to account for the likelihood of me tucking John's results down his throat if he keeps leaving papers on the floor and crisp wrappers on the carpet.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 09 Feb 2017 at 05:57

Originally Posted by: Online Community Member

is it being deemed by some hospitals the sensitive test is resulting in treatment being given to those who may never need it. So as we can't predict who would benefit we stop it for all - saving money at a cost of shorter lives for some?

Ray

I am not sure whether other hospitals are taking the same stance as Leeds and stopping the US test. But NHS guidance is clear that biochemical recurrence after surgery is a PSA over 0.2 and/or 3 successive rises over 0.1 and/or doubling time under 6 months. So the unreliability of US testing under 0.1 should be irrelevant (Bri being an exception to normal practice and guidelines)

Not sure I am an exception Lyn. Perhaps my oncol is ahead of the game. I was classed as high risk. The Radicals trial is trying to determine if RP followed by RT is the approach that should be taken with high risk men. Smaller trials seem to indicate that it is.

On a personal note in my circumstances I would rather have the RT early rather than wait and give the PCa cells time to start moving or drifting off into the blood stream. With my post op histology I think it was fairly evident that I would need follow up treatment at some point

Bri

User

Posted 06 May 2017 at 22:11

Dad's latest PSA results:
Feb 2016 0.36
Jan 2017 0.65
April 2017 0.59

I did suggest tonight that a visit to the oncologist might be a good idea, we know that Mr B would offer IMRT despite dad's age, but no - he is going on a cruise in the morning and then to Canada for a month when he gets back from the cruise so he is "too busy" to arrange an appointment. That will occupy much of the 3 months until the next test!!!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 06 May 2017 at 22:46

Wow all I can say is what a guy your dad is Lyn . I am taking a guess he is also a fellow Saggy and I can see where you get your zest for life from .

Way to Go Lyns Dad ! Way to Go !

Life isn't a rehearsal! It's for living and oh boy your Dad is living it !

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 07 May 2017 at 01:09

It is 6 months today since Celia died and to be honest Julie, I think he simply can't bear to be at home. As much as I love him, I can't fill that empty space. But yes he is an amazing man even if he is an Aries (he was 80 last month) x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 07 May 2017 at 08:33

Lyn

Whatever the reason I like your dad's attitude to life. May it keep going long time.

Ray

User

Posted 07 May 2017 at 10:42

The perfect way to deal with this sh*t disease, hope he has a great time.

Si xx

Don't deny the diagnosis; try to defy the verdict

User

Posted 07 May 2017 at 10:50

Can't fault his decision. Enjoy the cruise and Canada

Bri

User

Posted 04 Jul 2017 at 23:10

After a small increase in PSA and a lot of back pain for which he was referred to the hospital, John had an unexpected MRI today!

Going to France tomorrow for 3 weeks - will worry about results when we get back.

Stay safe and well everyone xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 04 Jul 2017 at 23:17

I hope that you both have a lovely holiday as you deserve it.

I also hope that the results are good when you get back.

User

Posted 04 Jul 2017 at 23:18

Have a great trip Lyn..France in July will be fab.

Hope the holiday and sun helps with all

User

Posted 05 Jul 2017 at 04:37

Lyn. Slow dt. Still in decimals. Love and strength to you as you have ALWAYS been there for me.

Bazza

User

Posted 05 Jul 2017 at 05:45

Have a lovely time.
I'm up early too, looking for flights for next March. Couldn't sleep so putting the time to good use !

Stay safe and enjoy yourselves

We can't control the winds - but we can adjust our sails

User

Posted 05 Jul 2017 at 08:15

Lyn

Put the PCa etc concerns in a bag and leave it at home. Have France fun.

Ray

User

Posted 05 Jul 2017 at 08:44

Never good news, but hopefully you will both be able to relax and put this from your mind on your holiday, somehow we get used to doing that don't we? Have a fantastic time and make great memories.

Lots of love

Devonmaid xxxx

User

Posted 05 Jul 2017 at 08:50

Have a great time 😎

Bri x

User

Posted 05 Jul 2017 at 08:57

Have a great break Lyn & John

Don't deny the diagnosis; try to defy the verdict

User

Posted 05 Jul 2017 at 12:50

A well deserved break for you both. Get those batteries recharged.

xx Tom

User

Posted 05 Jul 2017 at 16:43

Have a great time in France Lyn we love it over there and hope to get back in September for our three month tour again and down to Spain as the weather cools.

Regards John.

User

Posted 05 Jul 2017 at 22:30

Have a fantastic time 😁😁

Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.