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Regaining Erections

User
Posted 09 May 2015 at 12:20

Well goodness gracious me - I joined my OH in the shower - no pump, no tablet - and lo and behold a significant rise in the old man!!! First sign of an unaided erection 13 months post op. Hopefully, her retirement will lead to some more promising entertainment sooner rather than later!

Stay Calm And Carry On.
User
Posted 09 May 2015 at 17:25

Great news SF2. Long may it continue. Best Wishes Sandra

We can't control the winds - but we can adjust our sails
User
Posted 10 May 2015 at 02:30
Hi Paul,

That's really great news. Well done you. Enjoy every moment.

Steve
User
Posted 10 May 2015 at 18:42
Paul
your post made me smile, I am sure things are going to get so much better for you.

xx
Mo
User
Posted 10 May 2015 at 20:17

It must be a bloody big shower

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 10 May 2015 at 22:46

It's a tight fit!


 


I've had 2 great weekends.  The day after my OH retired, we went to Sweden to stay with my younger daughter's boyfriend's mother and had a fabulous time.


Today I finished 5/129 in my club's comp.  Feeling pretty pleased with myself!

Edited by member 10 May 2015 at 22:50  | Reason: Not specified

Stay Calm And Carry On.
User
Posted 11 May 2015 at 17:26

So, how are you going to celebrate then !!! ??????
Happy Days.

We can't control the winds - but we can adjust our sails
User
Posted 02 Jun 2015 at 23:49

I tried a different approach today. After I came home from golf, having eaten nothing since breakfast, I took a sidenafil tablet, had a shower, and we engaged in some fun.

I still can't manage enough of a stir for intercourse, but the most embarrassing thing is the uncontrolable although relatively small amount of leakage that occurs. My OH, and I can understand why, finds it a real turn off, although if things keep improving, maybe we'll accomplish something more worthwhile, wearing a condom.

I am finding it harder to climax as well, so my OH has suggested the shower in the morning again, especially as there was a significant response with no tablet the last time. The other advantage is, of course, we'd both be less aware of unwanted leakages.


We'll keep trying - we're only just over a year post op and in a good place.

Paul

Stay Calm And Carry On.
User
Posted 03 Jun 2015 at 08:04
I hope to be where you both are soon. If only my OH could move past the leakage thing, we might be able to try. I keep trying to tell him, and I tell you, that there's not that much difference in messiness between a squirt of semen and s squirt of urine. We need a shower after both!!
L
User
Posted 03 Jun 2015 at 08:23
I find it very strange,that Sean isnt dry in the day ,but in bed no matter what position he is in,he doesn't leak .That includes during and after sex.Wierd!
User
Posted 03 Jun 2015 at 10:01
Paul
Progress for you and great that you share your experiences it really helps others I am sure.
As for leakage as Louise says "what's the difference" in general I think I would agree but can empathise with your wife too. I can think of one scenario where it might be a bit awkward.
When you think of the journey that semen or urine have, then for men who have dry orgasms I wonder if the muscular spasm/activity that builds causes that involuntary squirtlet?
There is also that running water thing I know some men and women find it quite hard to not pee in the shower most make sure they go before getting in, I wonder if that contributes too?
I guess it is all just about finding your mutual comfort zone. It sounds like you are doing that happily so good for you.

Best wishes
Xx
Mo
User
Posted 03 Jun 2015 at 10:20

Can't speak for everyone else, or anyone else as we all seem to make a different recovery, and with different issues to overcome, but regarding the involuntary "squirtlet", referred to above, when you orgasm, in my experience this may not happen every time or any time, and if it is happening currently, it may stop.

Progress re urinary incontinence was slow but steady and generally for the better. For example, for some time post op when I woke up I would need to go for a wee fairly promptly. This then became not so urgent and I could wake up and lie in bed awhile. If I got up I would need a wee promptly, then this need too abated and I could walk about or make a coffee. Before I engaged in any sexual activity I would need a wee, not so now, although I do usually go before JIC, but having gone I manage without leaking, and can achieve an orgasm without a "squirtlet" usually.

The point is the recovery is slower than it is for some, quicker for others. The important thing to focus on is the fact that there is improvement and with that there is hope.

atb

dave

All we can do - is do all that we can.


So, do all you can to help yourself, then make the best of your time. :-)


I am the statistic.

User
Posted 03 Jun 2015 at 16:01
Hi Dave

The squirts are before orgasm! Not good when it's unexpected, you're standing up and it lands on the bedroom carpet!

Paul
Stay Calm And Carry On.
User
Posted 03 Jun 2015 at 20:13

As I understand it you are making progress? The final control will probably come when having standing sex last, as that is when gravity rules and your sub-bliminal control kicks in, that last natural ability to not wee that you had from around the age of 2, 3, 4, whenever you were nappy free.

In the meantime make do with intercourse while prone or on your back. Or, tense up when standing. You may not be able to relax and orgasm when tense but you should be able to keep leaks at bay.

Just keep trying, and don't give up hope.

dave

All we can do - is do all that we can.


So, do all you can to help yourself, then make the best of your time. :-)


I am the statistic.

User
Posted 03 Jun 2015 at 20:37
Standing sex ?? Come on guys you're showing off now.

Especially if you're six foot two !
User
Posted 04 Jun 2015 at 01:23

Is there any other way???????

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 04 Jun 2015 at 08:30

Glad to be providing a bit of banter on the site, as we all know so well, so much is serious.

If only I were 2f2. Unfortunately, only 5f8 - I did explain once where the name came from - it was a chant to do with my favourite all time Man Utd player.

As for intercourse, if only, not there yet, but hopefully not too long.

Hilary - does Sean have natural erections, or are they aided. I hate the feel of the ring on the pump, so only use it to exercise.

Paul

Stay Calm And Carry On.
User
Posted 04 Jun 2015 at 08:45
He has natural ones.We have never used the pump other than to get the circulation going after the op.
He never wakes up with one,but with persuasion there has always been response.Mostly I would say 80%,sometimes more.On one occasion it was just like old times😊They are always useable.Just wish the continence was as good!!
Never mind we have an appointment to see surgeon in july.
User
Posted 04 Jun 2015 at 21:40

Hilary

Sean is obviously doing well. I hope to be catching him up pretty soon. The incontinence has hardly changed for me in the last few months - only 1 pad per day, dry at night, but some way to go for total control.. At least I get my pads on the NHS.

Paul

PS .On one occasion it was just like old times.

I wish I could remember!

Stay Calm And Carry On.
User
Posted 03 Jul 2015 at 21:12
Hi Paul. I'm post op my first year 27 June. I've tried every pills you can get from doctors or Internet. None have and don't work on me .The only thing that's helps is the vacuum pump but still lose it so have to be qwick .I do get depressed at times and wondered if I'm ever going to get something back with out the pump.Even if the tablets would work would be a real help for my physical well being.mike

Edited by member 03 Jul 2015 at 21:13  | Reason: Not specified

User
Posted 03 Jul 2015 at 21:34

Mike,


You may get more responses to assist you if you start another thread about your issues.


Otherwise your issues are mixed and mired with others?


atb 


dave


 

All we can do - is do all that we can.


So, do all you can to help yourself, then make the best of your time. :-)


I am the statistic.

User
Posted 03 Jul 2015 at 22:15
Thanks Dave.As new to the site Im not to sure how to start a new thread.
User
Posted 03 Jul 2015 at 22:25

Michael,

Just go to the top of this page, and you will see "start a conversation" as an option.

Good luck.

dave

All we can do - is do all that we can.


So, do all you can to help yourself, then make the best of your time. :-)


I am the statistic.

User
Posted 06 Jul 2015 at 13:38

I would be interested in other peoples experience with a vacuum (penile) pump. Ive been using one every day for two weeks, which is now 4 months after prostatectomy. No sign of any hardness, which I would define as an erection, but there is an increase in size in a floppy penis with increased redness, which I would think is increased blood flow. Should I keep on going with this or give up?. Im also taking 10mg cialis twice a week. My consultant says it is all necessary to prevent damage to the penile tissue. No sign of rising to the occasion any time

User
Posted 06 Jul 2015 at 14:43

I don't think you can be using it correctly - there should be no problem getting engorgement in the tube and the problem then tends to be keeping it engorged once the tube is removed.

There are slight differences depending on which make of pump you have but the general rules are:
- trim your pubic hair as close to the skin as you can
- smear inside of tube AND your skin where the tube meets your pubic bone with plenty of KY jelly or ehatever was provided with the pump (this is to help get a good seal to create the vacuum
- ensure the tube is pressed closely against the skin
- pump a few times and pause to allow the blood to flow in, then pump a few times and pause, pump a few times and pause
- release the vacuum by easing tube end away from your skin and then start again
- ideally you should be doing this 3 times a day with 3 - 5 reps ... it is hard work at first but does get easier with practice
- once you have the technique right, start to set yourself goals - using the Erecaid Esteem, John could only get the tip of his penis to the first E but with practice he made it to the T and then eventually the third E
- once you have the technique and are getting good engorgement in the tube, THEN try using the rings and removing the tube

It is slightly different if you have a different make to the Osbon Erecaid - I think the Farnhurst requires you to use the rings even when practising. Also, if you have the electric model that is much eaier on your wrists than the manual versions.

Let me know which make & model you are using

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 06 Jul 2015 at 14:45

PS - if I were you, I would be cutting the Cialis in half and taking a half tablet every two days OR asking for the once-a-day version of Cialis which comes in 2.5mg or 5mg versions

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 06 Jul 2015 at 14:54

Device is SomaCorrect XtraTM manual, which I got on an NHS proscription. It is a manual device. I have trimmed my hairs and with the lubricant I easily get a vacuum with several presses of the handle. The penis expands in response, but there is no sign of hardness immediately after releasing the vacuum.

User
Posted 06 Jul 2015 at 16:00

No, it doesn't leave you with any hardness when you release the vacuum - that isn't how it works. Once you are getting erections in the tube, then you need to play about with the constriction rings to find which one is tight enough to hold the blood in place. If the ring is too slack, the blood seeps back out of the penis into your body. If the ring isn't close enough to your body, the blood seeps out. Men who use a vacuum pump to enable penetrative sex do so with the constriction rings in position. Sometimes a combination of two rings is needed.

It is important not to have the rings on for more than 20-30 minutes as you are in effect placing a tourniquet on your old man :-0

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 06 Jul 2015 at 17:54

Oh I see . I must try that. But I guess for therapeutic purposes, I just hold the vacuum for a bit, then repeat.

User
Posted 06 Jul 2015 at 18:00

Yep - repeating as often as you can. Ideally, you will do this in the morning when you wake, sometime during the day and then in the evening / bedtime. This goes some way towards replicating the numerous erections that you would have had each day prior to your op

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 06 Jul 2015 at 18:02

If you do it right, you should be able to get back to almost normal size erect - maybe an inch or so shorter and a little smaller in girth than you were before

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 06 Jul 2015 at 18:27

Thanks as well Lyn -- Ive just read all this with great interest and appreciated it all without asking it myself later . But its at least 4 weeks down the road for me yet I suppose . I understand the length loss but was kinda hoping the girth thing wouldn't be compromised ( forgive me im an engineer and understand fluid dynamics ) . Anyway no rush , feel like ive been hit by a train today and god the bruising . Best luck SGH

User
Posted 06 Jul 2015 at 21:41

Maintaining girth depends on how soon after treatment you can get the fella engorged - the longer it is flaccid the less likely you are to keep the spongy tissue healthy - and unfortunately, the cells of spongy tissue do not repair. So atrophy - aka 'use it or lose it' - affects girth as well as length.

Get stimulating Chris :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 06 Jul 2015 at 21:46

I was prescriped a Rapport premier pump. I only use it to encourage blood supply. I hate the tightness of the rings - maybe others cope better.

I have noticed a slight increase in length recently - and boy do I need it!!!!

Paul

Stay Calm And Carry On.
User
Posted 06 Jul 2015 at 21:48

SGHK, ypu might find this report from another Soma user helpful - he obviously found the instructions provided with the pump less than satisfactory!


http://rpcsg.org.uk/reading/follow-up/vacuum.pdf

Edited by member 06 Jul 2015 at 21:49  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 06 Jul 2015 at 22:05

Desperately want to "get going " , but am gonna leave it till the 6 wks review as advised. After that my pump-wrist will be thicker than Arnies

User
Posted 06 Jul 2015 at 22:53

lyn


You mean these pumps come with instructions !!, being male I did not read the instructions which may explain why I got a testicle inside the ring and finished up with the OH cutting the ring off with a very steady hand and a pair of scissors.


Good tip about the gel inside the tube, it stops the penis sticking to the side. I found not rushing and taking a relaxed approach got the best results, I pump and release quite a few times pausing when engorged then release and pump up again, our pump has a release button.  I can achieve full size erections but sadly there is no strength were the penis meets the body. I never had a problem with the pubic hair, just kept the tube firmly against the body until the vacuum caused the seal.


Thanks Chris 


 


 

User
Posted 06 Jul 2015 at 23:11

No, no firmness near the body which makes it hard to point in the right direction. But a guiding hand and the right position works wonders .....

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 07 Jul 2015 at 01:02
I've not had any luck with any strength of pills.None work for me.However the pump I've had post 7 months and worked right away for me.I do still lose the hardness and tend to rush myself so I can to my aim.I now use two rings and seem to be lasting longer and to be honest I'm still the same size and thickness .I'm now in my 13th month and still no signs of anything happening by them self's.
User
Posted 07 Jul 2015 at 10:40

All this talk got me trying this morning . I hope you don't mind me using your post Paul . Im not sure of the etiquette ! I have a pump that is great which I used for ED when I had to go on Testosterone replacement therapy . Wow it worked a treat haha , but yes trying to keep that erection with the rings was a nightmare .
Im EXACTLY 3 weeks post op and have had 2 small tries with the pump ( not wanting to hurt myself ) but absolutely nothing at all which is disheartening . Just too soon or still too bruised etc , or genuine reason for concern . He looks absolutely pre-op but is cold all the time and pinker ( less blood flow ) . Im keeping him warm in tight pants with pad liner .
The pump easily sucks up flesh in the area , but however gently steadily I take it , he just will NOT engorge at all or stand up . Making me sad . I know none of you are doctors , but should I just leave it till the 6 weeks review
Chris

User
Posted 07 Jul 2015 at 11:15
Omg.can't believe your using a pump so early after surgery. I had to wait 7 months before they would even consider me.To be honest I would ask your doctor before you use again.You be careful
User
Posted 07 Jul 2015 at 11:19
I agree.Think Sean was 8 weeks post op.
User
Posted 07 Jul 2015 at 11:35
Chris, I'm sure Paul won't mind you posting on his thread. I also know how keen you are to get your kit fully operational pronto, however you may be rushing things using the pump so soon and I would hate you to cause yourself any harm. I believe that during surgery bits have to be physically cut and re-attached like your urethra and I would think 6 weeks recovery for that alone sounds about the norm.Hopefully one of the guys or Lyn will come back to you on that so you can either do other things or carry on as is... not a subject I know anything much about so I hope someone pops up soon (no pun intended there).
I would have thought just some gentle stimulation would be less risky and something you and El can both be involved in.

As there are several men out there in early recovery and ladies trying to help who may need to compare notes (so to speak) maybe Paul would be happy for this to be the common link.

Best wishes
Xx
Mo

User
Posted 07 Jul 2015 at 11:37
In the time it took for me to post you have two answers confirming my worries for you.
Xxx
Mo
User
Posted 07 Jul 2015 at 11:39

Thanks . I totally get your point guys . I have been really really gentle I promise , but nobody has really offered advice professionally at the hospital . Me rushing . i'll stop and stick to smiling at him and patting him on the head occasionally.
Elaine twitches awfully in her sleep , so maybe if I just leave her hand on him ................;-))

User
Posted 07 Jul 2015 at 11:53

Hi,


I'm on hormone therapy for another 18 months.  When I started HT last year I was so concerned about dealing with the cancer that the fact that I lost the ability to have an erection within several days didn't bother me too much.  I lost my libido so it made things easier to accept.


Only problem is now is that now things are far more settled with my cancer, even though I don't have any desire to have sex, I feel really sad that I can't.  I really miss the fun I had.  I always found it was a great way of relieving stress too.


I have been in a really low mood in recent weeks and things like this make me feel even worse.  I wish I could do it again but I really don't think anything would help me.


Steve

Edited by member 07 Jul 2015 at 13:30  | Reason: Not specified

User
Posted 07 Jul 2015 at 21:04

Intriguing subject!, I tried the most flexible ring and found I could mount it on the Soma C cylinder, and get it on the penis very quickly. There is certainly more firmness there than without the ring, whether it quite could be described as an erection, Im not sure; depends on definition I guess. The user who posted a leaflet describing someone's use of the Soma pump was very helpful. Getting the ring off, is somewhat painful, and I dont think Ill be moving to a harder ring just yet.Lyn above suggests I should be getting as many erections per day as before the cancer. Think Ill have to go back to when I was at school, to make that a reasonable number. 

User
Posted 07 Jul 2015 at 21:08

You mean to your wife being 170 miles away. Probably the garlic.

User
Posted 07 Jul 2015 at 22:23

Chris

You definitely need healing time. Don't worry about erections yet. You should ask for Ciallis at 6 weeks to start the healing process. For me, you also should ask to be assigned an ED nurse to guide and encourage you.

Paul

Stay Calm And Carry On.
User
Posted 07 Jul 2015 at 23:33

SGHK, there is a knack to getting the ring off. You grasp the two flaps or nobbles and pull out to the sides - this allows the blood to escape from the penis which makes the penis small - the ring then slides off easily. This is the other benefit of lubing all the way up the shaft, helps with the sliding off as well as stopping your skin from dragging inside the tube as you pump.

When I referred to the multiple erections, I was thinking of the 'wake up in the morning' one that most men get, and the one in the shower and the lazy lob that occurs when you are watching TV etc etc. A healthy man (who doesn't have PCa induced ED) has an average of 3-5 erections each night while asleep, each lasting for about 30 minutes. That is what you are trying to replicate to keep the spongy tissue healthy.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
 
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