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HIFU, my experience

User
Posted 01 Aug 2015 at 02:18

HIFU (High Intensity Focused Ultrasound), is a treatment which can be used as a primary one for Prostate Cancer as an alternative to the more usual ones of surgery or various ways of delivering radiation. It is not usually given if the cancer has left the capsule.  It is also used as a salvage treatment where primary Radiotherapy has failed. It is in this latter context that I was referred by the Royal Marsden to University College London Hospital to see whether I would be a suitable patient for HIFU as my low but persistently rising PSA and preliminary scan at the Marsden indicated recurrent cancer in the Prostate.  After comprehensive scans and a template biopsy at UCLH I was told that I could be treated by HIFU within their 'FORECAST' trial.  

On 28th July I had the HIFU which took nearly 2 hours and the lady surgeon told me it went well.  After a further hour or so I was able to walk to the nearby hotel where UCLH had reserved a room for me because their 'Cotton Room' accommodation was fully booked.  I had a bag for urine strapped to my leg and a larger overflow night bag was provided as was a course of antibiotics, pain killers and laxative.  There was some pain in my penis which smarted as when you get soap in your eye but not quite so intense if more persistent.  Since then the penis has become more sore no doubt due to bruising coming out and now feels like it's been put on a slab and hit with a mallet!  The catheter is due to come out in another 4 or so days and hopefully things will be easier by then.  So far there has been no blood in my urine but some burnt tissue is likely to pass with urine in due course.  I am to be regularly monitored for a year and have a final scan in twelve months.  I will update this from time to time.

 

Edited by member 22 Aug 2015 at 00:49  | Reason: Not specified

Barry
User
Posted 02 Aug 2015 at 21:33

Hi Barry

Pleased to read you should soon be over the worst of HIFU surgery.

Good luck with obtaining Nanoknife treatment.

Ray

Edited by member 02 Aug 2015 at 21:35  | Reason: Not specified

User
Posted 25 Jul 2018 at 01:57

Hi Rick,

As I said when I started this thread, HIFU can be given (to suitable men) as original radical treatment or as a salvage treatment for failed RT. (again for suitable men). In both situations the cancer should still be contained within the Prostate. Results are better if there is only a small amount of cancer and on one side only. Very few hospitals/medical facilities offer HIFU in the UK, although more are introducing it.

If a man decides to have HIFU as a primary treatment he makes the decision in preference to having a traditional treatment such as a form of surgery,radiation or even other forms of lesser established treatment such as Cryotherapy, Nanoknife IRE or FLA for example.The advantages of having this as a first line treatment are that the procedure is quickly performed with generally lesser side effects, particularly where only a small part of the Prostate, which must be accessible for the HIFU probe to focus on, needs to be ablated. It is also possible in need to repeat the HIFU. (It may be possible to have salvage Brachytherapy following failed HIFU, I didn't research this as HIFU was not my first line treatment.) Certainly, HIFU has improved over recent years but long term results are not yet well known. I believe that Brachytherapy is a more proven treatment and where appropriate can be augmented by EBRT as part of the treatment.

HIFU as salvage treatment for failed RT is a quite different situation. Usually, the man has had his full dose of RT largely to his Prostate and Prostatectomy thereafter is very difficult with high risk of incontinence and ED to boot. Therefore, if the cancer is still within the radiated Prostate, HIFU or another way of treating the Prostate with focal treatment means that it is possible to avoid HT, Chemo and other down the line treatments that work systemically, when only really the Prostate needs to be treated.

I have not added to this thread for some time now as I have posted my situation elsewhere. However, as it has now been referred to I will update. HIFU was administered where one only core of a template biopsy showed a tumour. There was some doubt about another area within the Prostate that might have cancer but this was not ablated. There was also doubt about cancer being in an iliac node. I think the operation went well in treating what was intended, However, my PSA continues to rise, albeit slowly, and a private PSMA scan has confirmed that there is a small tumour in another part of my Prostate. which I am hoping will be treated with further HIFU or if this is too difficult with Cryotherapy. UCLH are reluctant to repeat HIFU saying my Prostate has already been subjected to two radical treatments. I have a telephone appointment with them on 31st July to hopefully get a final decision on this as otherwise I will look to get this done privately---ouch! The PSMA scan showed no pelvic involvement or anywhere else outside the Prostate so why settle for HT or any other systemic treatment at this stage I argue? 

My urinary function remains as pre HIFU and nothing else has changed so far, nearly 3 years on.

Newspapers often dramatise but if correctly reported, the Professor quoted in this article and the lady doctor C M who administered my HIFU are upbeat on the subject of HIFU (High Intensity Focal Ultrasound) http://www.dailymail.co.uk/health/article-5921047/Ultrasound-just-effective-surgery-radiotherapy-prostate-cancer.html

 

Edited by member 25 Jul 2018 at 02:14  | Reason: Can't get link to highlight without editing - always the same

Barry
User
Posted 03 Aug 2018 at 08:06

My husband had HIFU in 2006 as a secondary form of treatment. He had RT in 2000 and the cancer recurred in 2004.

He paid for it privately as the PCT would not fund further treatment. ********. It failed as it was subsequently discovered, by MRI, that the recurrence was in the seminal vesicle. As I understand it, cancer in this area cannot be treated.

In my area of East Surrey, HIFU is not recommended as a primary course of treatment.  It is alleged that many men have died as a consequence of having primary HIFU instead of the conventional RT. This has been widely reported in newspapers.

Edited by moderator 03 Aug 2018 at 19:46  | Reason: Named Consultant

Show Most Thanked Posts
User
Posted 02 Aug 2015 at 18:29

Hi Barry,

I am so glad you're now through that procedure.

It does sound like you're going to have some painful days (your eye watering description of the pain now.." feels like it's been put on a slab and hit with a mallet!" had me wincing here).http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

Here's wishing you a quick and full recovery with the best of all outcomes.

All the very best,


George

 

Edited by member 02 Aug 2015 at 18:30  | Reason: Not specified

User
Posted 02 Aug 2015 at 19:01
Brilliant post Barry, I'm sure this thread will become one of those referred to regularly. You are quite the pioneer!!

Xx

Mo

User
Posted 02 Aug 2015 at 21:33

Hi Barry

Pleased to read you should soon be over the worst of HIFU surgery.

Good luck with obtaining Nanoknife treatment.

Ray

Edited by member 02 Aug 2015 at 21:35  | Reason: Not specified

User
Posted 02 Aug 2015 at 21:43

Hi Barry,

Good luck, sounds like it all went well

Barry

User
Posted 03 Aug 2015 at 07:33

Hi Barry

Wishing you a speedy recovery

Colin

User
Posted 03 Aug 2015 at 07:35

Hi Barry

It is good to hear that you have now completed your HIFU treatment. I am sure your usual comprehensive updates will be useful for everyone who has an interest in the HIFU option. I hope everything goes well over the next few days.

Regards

Alan 

User
Posted 03 Aug 2015 at 09:32

Thanks Barry for sharing, very informative, hope all goes well Andy

User
Posted 03 Aug 2015 at 18:36
Hi Barry - a very informative and detailed write up which I feel sure will be of great benefit to many others. So sorry that you have needed to go through all of this and I wish you all the very best as your recovery progresses.

Kevan

Life doesn't have to be perfect to be wonderful 

User
Posted 04 Aug 2015 at 01:00

Thank you for your thoughts and good wishes.

My urethral catheter was causing me a lot of discomfort - I think walking quite a way very soon after the HIFU may have contributed to this. I saw my GP yesterday morning and he took the catheter out. He said I must pass water by 4pm otherwise contact the duty doctor and have a new catheter fitted. Fortunately, by 2pm I was able to pass urine. It had a very small amount of blood in it when the flow first started but no evidence thereafter. Having had the catheter removed has made it vastly more comfortable and I have been able to start light work again.

 

Edited by member 22 Aug 2015 at 00:51  | Reason: Not specified

Barry
User
Posted 06 Aug 2015 at 00:13
Thanks for all the information. So pleased that it sounds to be going well. I may very well be in a similar situation myself depending on the latest tests from the Marsden !
User
Posted 22 Aug 2015 at 01:10

Thank you for your good wishes. I decided to delete references to other treatments (on which I will start a new thread), so I can keep this only on HIFU.

There is not much to say at present. I am continent and my urinary function is as pre HIFU. I have not experienced any pain for about 2 weeks now and it is as if I had not had this treatment. So in the short term I am well pleased I had it. I will comment further in a month or two or if any adverse effects are experienced in the interim.

Barry
User
Posted 04 Sep 2015 at 23:35

An update.

Immediately before having salvage HIFU on 28th July 2015 for failed RT, my PSA was 1.99. Four weeks post HIFU it was 0.42 so has achieved a marked lowering. HT has not been started (yet). Clearly, one would not expect HIFU to treat for up to 2 years like RT but I am hopeful a further fall will follow for another month or so. I will ask about this aspect when I next have a consultation. If I can get the PCa affected iliac lymph node specifically treated with RT or by surgery, this could further lower the PSA. However, if this does not prove possible I will start HT which might also help further reduce PSA.

(Some may be surprised that with 3+4 PCa in a Prostate and in a Lymph Node prior to HIFU, my PSA was only 1.99. It just goes to show that you can have PCa with a low PSA.)
.

Edited by member 04 Sep 2015 at 23:57  | Reason: Not specified

Barry
User
Posted 05 Sep 2015 at 10:42
Barry

well that is a great start I am so pleased to hear this.

As for low PSA still equating to PCa yes it does seem a little ironic, I know of at least 2 men who have advanced PCa with extensive mets and through the whole time of their cancer from diagnosis to date and through all treatments their PSA has remained below 5. Others are surviving and in some cases thriving with PSA levels in the 100s or even 1000s

Roll on the x factor (no not the thing on TV) but the yet to be discovered test that added to the PSA test gives PSA + XXX = pussy cat or tiger PCa depending on the values and how the cancer is behaving at that moment in time. I am sure that is over simplified but it is just a thought.

best wishes as always

xx

Mo

User
Posted 05 Sep 2015 at 14:05
Great news Barry, one down one to go, keep kicking its A**

Roy

User
Posted 05 Sep 2015 at 14:38

Barry,

 

That's an excellent outcome so far. As Roy says, keep kicking its ass!

 

Great to read such good news.

 

 

 

George

User
Posted 03 Nov 2015 at 22:47

PSA test on 27th October shows fall from 0.42 to 0.39. I don't expect much more of a fall from the HIFU as it does not continue to work over many months like radiotherapy. It may be that the suspicious iliac node is producing small amounts of PSA and this is under review.

My levels of continence and bowel function etc., are as if I never had the HIFU so I am thankful for this. Can't comment on whether HIFU would have adversely affected erections as EBRT stopped these back in 2008.

Barry
User
Posted 03 Nov 2015 at 23:11

Really pleased for you, my friend x (for the results, not for the loss of erections all those years ago!!!)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 Feb 2016 at 10:39

Hi again Barry,

Sorry that I've been so very long in catching up with your 'new' thread - sounds like at minimum no harm done (despite the eyewatering stuff!) and hopefully the fact that you are by now well skilled in staying on top of the information flow between medics will ensure that they keep your condition in the spotlight and react promptly if/when required. Remaining in control is definitely name of the game.

I enquired about HIFU trials some years back but they wouldn't then admit a 'complex case' which might muddy their carefully managed research endeavours - but perhaps I should now try again. Presently awaiting further mri results and scheduled saturation biopsy no.5 but after total 90 cores so far in what was 130ml prostate , can't say I'm too keen whatever the MDT's inevitable (serial) recommendation - still get gushing episodes almost certainly resulting from previous biopsy wounds.

They've long acknowledged that any more conventional radical treatments would imply especially drastic outcomes in this case, so perhaps pushing for a long range HIFU referral is now a very serious option to broach with the oncos up here. May well be coming back to you pleading for advice !

Sincerely / David

'It couldn't possibly happen to me....'
User
Posted 10 Feb 2016 at 00:40

Hi David,

Sorry you are suffering.

It seems to be the case that prior to having HIFU you have to have a template biospy but I am not aware whether this is the case with Cryotherapy.

Unfortunately 3 months on and my PSA has risen to 0.49. Whether this is because some cancer cells remain in my Prostate or are from elsewhere I hope will be determined when opportunely I participate in an imaging trial at UCLH in May. I have posted separately on this under LOCATE trial.

Barry
User
Posted 10 Feb 2016 at 16:25

Hi again David,

It seems the HIFU is more precisely focused whereas the ice ball formed in Cryotherapy destroys a wider area, so it MAY not require another biopsy. If you click on this link there is an interesting story by a patient who had this Cryotherapy and is prepared to be contacted if you feel this is something that might be of interest to you. http://www.ahamm.co.uk/prostate/blogdetails.htm#why-emberton

If you want to skip the videos that have been posted previously, there is more of personal experience of the blogger from Dry Climax onwards

 

Edited by member 10 Feb 2016 at 16:37  | Reason: Not specified

Barry
User
Posted 20 Aug 2016 at 01:10

Had a rather overdue telephone consultation with my urologist at UCLH yesterday morning. It seems from the recent scans that it is thought the HIFU was successful in destroying the previously found tumour within the Prostate. Also, apart from the short term discomfort of the catheter, the HIFU has had no adverse side effects. However, there is a very tiny area in the prostate that is suspicious and it is possible that a highly targeted template biopsy might be done under a local anaesthetic to check this out. I also asked the consultant if a core could be taken from the suspect node and he said he would take advice on this. The node is suspicious due to the uptake of Choline but the shape and size is the same as shown on scans going back to 2007/8. My PSA nadir post HIFU was 0.39 but this has since risen to 0.73 at the end of July 2016, so there must be some cancer cells somewhere.

Edited by member 20 Aug 2016 at 01:31  | Reason: Not specified

Barry
User
Posted 20 Aug 2016 at 13:26

Thanks for the update, Barry.

I'm not likely to ever be in the HIFU camp but it's most useful knowledge and I'm also interested in your diagnostic experiences.

Last time my onco indicated that if my next PSA rose (result will be known on 2nd Sep), he will consider another scan. He didn't say what sort and I didn't ask but I'm happy that there is some momentum.

Dave

Not "Why Me?" but "Why Not Me"?
User
Posted 20 Aug 2016 at 15:26

Hi Barry,

I'm so glad to see this update. It does look like the HIFU has been a success, although I know you'll be worried the about the PSA rise  and those remaining cancer cells.

It seems to me that we're never free of those damn cells.

Maybe (and hopefully), we'll die with those cells NOT because of them.

 

Last time I saw my oncologist, I asked a question that I'd been meaning to ask for years.

I said 'Why is it that when I come off treatment (HT) my PSA inevitably rises, sometimes over a year or 2 years to over 20.0, yet every time you put me back on treatment, it's always after thorough scans, where nothing is ever seen? Just where ARE those cancer cells hiding?'

He said he's 99% sure that they're micro-mets somewhere in my lymphatic system.

Since Zoladex hammers them down each time I return to it, it seems more and more likely that is intermittent treatment will continue doing the job for quite a few more years yet.

 

I'm convinced we both have many more years ahead of us.

 

Stay well my old friend,

And never lose your amazing pro-active attitude.

 

Love to Barbara,

 

George

User
Posted 20 Aug 2016 at 23:52

Good to hear from you George and to know that your Intermittent HT regime is still working well. It may be something I will adopt at some point but having had 8 months of Zoladex in 2007/8 and side effects, I hope to avoid returning to it for as long as possible. My consultant at UCLH said he thought I had done well to refuse it after HIFU so far and to do so for as long as I reasonably can.

Dave, hope you are given good news on 2nd September.

Barry
User
Posted 21 Aug 2016 at 10:15

I smile on reading these posts as they're like garden weeds. George's approach is like weeds on the drive every now and then out comes the Pathclear (other products are avaliable -:) .) and all is pretty much clear for a awhile - just got to keep hanging in there until a new improved product comes on-line. Whilst Barry's approach is seek out weeds wherever they hide and hit them hard with the latest products he can - may that continue until they all throw their hand in. For me I've no idea if I've got weeds but if I have provided they don't start spreading I let them be - I'm a laid back gardener.

Good luck to all

Ray

User
Posted 21 Aug 2016 at 12:28

That's a great anology, Ray.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

 

Yes it's just like dealing with weeds (nasty ones at that!).

 

I opt for the cheaper 1950s weedkiller because I know it will work for a year or so for me.

Barry is more your cutting edge' man and will go to infinity and beyond to find a 'state of the art' weedkiller. We need men like Barry to show us new approaches.

As has often been said, there's only one rule with PCa  - 'There are no rules'.

While Prostap is like the Gold Standard HT for some guys, it didn't agree with me at all, so it was back to the Zoly after three months.

When I once tried Casodex 150 as my HT, PSA plummeted like a stone, but the SEs were awful and I asked to come off it after 6 months.

We can only continue with what works for us as individuals, and pray that those weeds don't find a way to overcome the drugs.

 

Dave, good luck for Sept 2nd.

No matter how many years we've fought these weeds, we still worry about that next PSA result.

Just tell yourself it will be a good one.

 

All the best,

 

 

George

 

 

 

 

User
Posted 02 May 2017 at 01:25

As I have not given an udate on my HIFU since August, I thought I would do so now. In truth there is little to say. My PSA has ranged from 0.49 shortly after HIFU to 0.64 at the most recent test in February this year. There is no discernable change in my urinary frequency or urgency, although I feel the 'stream' is not quite as strong as it was in the past but probably due to weaker bladder/muscles as part of the ageing process rather than caused by the HIFU. I can say that in my case the HIFU has not added to the side effects caused by RT back in 2008 or resulted in any complication (at least so far), which I would have expected to have experienced by now if It was to happen. The procedure was a quick, easy and the pain was not for long but done by the leading team of HIFU surgeons in the UK which may have helped. How well it works in the medium to long term only time will tell but at least in the short to medium term it has certainly caused the cancer a set back!

Scans have showed there remains a suspicious area in my Prostate and possibly also in one iliac node but UCLH will neither do a further biopsy nor further radical treatment including further HIFU. (They say 2 major treatments on my Prostate in enough). Should my PSA double to 1.28 They will just put me on HT. ......... I might have other ideas about that!!!

Edited by member 25 Jul 2018 at 02:07  | Reason: Not specified

Barry
User
Posted 24 Jul 2018 at 18:36

Barry - I have recently been diagnosed with prostate cancer (Gleason 3+4) and am considering HIFU as a treatment. I've just found this very useful thread and wonder if you had any advice for someone in my position. I am also looking at radiotherapy and brachytherapy, so would be interested to hear your views on how you felt, after this time, the treatment went, side effects and so forth.

Thanks for any help you can give.

Rick

User
Posted 25 Jul 2018 at 01:57

Hi Rick,

As I said when I started this thread, HIFU can be given (to suitable men) as original radical treatment or as a salvage treatment for failed RT. (again for suitable men). In both situations the cancer should still be contained within the Prostate. Results are better if there is only a small amount of cancer and on one side only. Very few hospitals/medical facilities offer HIFU in the UK, although more are introducing it.

If a man decides to have HIFU as a primary treatment he makes the decision in preference to having a traditional treatment such as a form of surgery,radiation or even other forms of lesser established treatment such as Cryotherapy, Nanoknife IRE or FLA for example.The advantages of having this as a first line treatment are that the procedure is quickly performed with generally lesser side effects, particularly where only a small part of the Prostate, which must be accessible for the HIFU probe to focus on, needs to be ablated. It is also possible in need to repeat the HIFU. (It may be possible to have salvage Brachytherapy following failed HIFU, I didn't research this as HIFU was not my first line treatment.) Certainly, HIFU has improved over recent years but long term results are not yet well known. I believe that Brachytherapy is a more proven treatment and where appropriate can be augmented by EBRT as part of the treatment.

HIFU as salvage treatment for failed RT is a quite different situation. Usually, the man has had his full dose of RT largely to his Prostate and Prostatectomy thereafter is very difficult with high risk of incontinence and ED to boot. Therefore, if the cancer is still within the radiated Prostate, HIFU or another way of treating the Prostate with focal treatment means that it is possible to avoid HT, Chemo and other down the line treatments that work systemically, when only really the Prostate needs to be treated.

I have not added to this thread for some time now as I have posted my situation elsewhere. However, as it has now been referred to I will update. HIFU was administered where one only core of a template biopsy showed a tumour. There was some doubt about another area within the Prostate that might have cancer but this was not ablated. There was also doubt about cancer being in an iliac node. I think the operation went well in treating what was intended, However, my PSA continues to rise, albeit slowly, and a private PSMA scan has confirmed that there is a small tumour in another part of my Prostate. which I am hoping will be treated with further HIFU or if this is too difficult with Cryotherapy. UCLH are reluctant to repeat HIFU saying my Prostate has already been subjected to two radical treatments. I have a telephone appointment with them on 31st July to hopefully get a final decision on this as otherwise I will look to get this done privately---ouch! The PSMA scan showed no pelvic involvement or anywhere else outside the Prostate so why settle for HT or any other systemic treatment at this stage I argue? 

My urinary function remains as pre HIFU and nothing else has changed so far, nearly 3 years on.

Newspapers often dramatise but if correctly reported, the Professor quoted in this article and the lady doctor C M who administered my HIFU are upbeat on the subject of HIFU (High Intensity Focal Ultrasound) http://www.dailymail.co.uk/health/article-5921047/Ultrasound-just-effective-surgery-radiotherapy-prostate-cancer.html

 

Edited by member 25 Jul 2018 at 02:14  | Reason: Can't get link to highlight without editing - always the same

Barry
User
Posted 25 Jul 2018 at 07:53

Thanks Barry, this is very helpful - and thanks for the link to the article. Lots to think about ...

Rick

User
Posted 03 Aug 2018 at 08:06

My husband had HIFU in 2006 as a secondary form of treatment. He had RT in 2000 and the cancer recurred in 2004.

He paid for it privately as the PCT would not fund further treatment. ********. It failed as it was subsequently discovered, by MRI, that the recurrence was in the seminal vesicle. As I understand it, cancer in this area cannot be treated.

In my area of East Surrey, HIFU is not recommended as a primary course of treatment.  It is alleged that many men have died as a consequence of having primary HIFU instead of the conventional RT. This has been widely reported in newspapers.

Edited by moderator 03 Aug 2018 at 19:46  | Reason: Named Consultant

User
Posted 03 Aug 2018 at 20:16

Hello Marianne,

It is sad that the treatment your husband had did not work for him and highly suspicious that records were not properly kept. It is also appreciated that you added to this thread in your circumstances.

It is a fact that HIFU for PCa will not treat areas beyond the Prostate. This is also true of surgery where it is often found that if the cancer has gone beyond where the knife can cut, some other form of treatment will be needed. So this does not necessarily mean that surgery or as in your husband's case HIFU was a failure if his cancer had in fact spread beyond the prostate, perhaps this because previous diagnostic scans did not show it (It has to be remembered that scans have improved greatly over recent years but still do not always show the full or possible extent of PCa even now).

I did quite a bit of research on HIFU among other treatments in 2007/8 when I was first diagnosed with PCa. I also discussed the possibility with my Consultant at the Royal Marsden, who said he would arrange an appointment for me to see the widely acknowledged expert for HIFU in the UK. However, with my initial staging from T2A upgraded to T3A after MRI, it was agreed it would not be appropriate to further consider HIFU.* It is strange that as an assiduous follower of developments in PCa and a regular newspaper reader, I have not seen allegations that men have died because they had HIFU instead of conventional RT. I would be interested to be directed to any authoritative links/studies that show this. I do recall one American surgeon saying HIFU only blistered the tumour in one patient but how well was the HIFU done and was it appropriate in that case? It should also be noted that considerable advances have taken place in recent years in the way the procedure is done and in the actual equipment.

Using an unapproved procedure is of course another matter. There was a time when HIFU could be done generally, then it was subsequently only allowed for NHS patients within studies but allowed to be done privately.

* It is ironic that due to failed RT, I was referred in 2015 to the same expert at UCLH for salvage HIFU that I would have seen in 2007. This I believe was successful in what it set out to achieve. What was NOT done as I understand it, was to treat a different area of my Prostate where cancer was suspected. I am now pressing to have this other area treated with HIFU or Cryotherapy as appropriate because my PSA continues to rise and a PSMA scan failed to show any cancer outside my Prostate but some within it.

UCLH intended to palm me off with just HT under the aegis of an oncologist in Devon. I reverted to my consultant at the Marsden and pressed by me with the Marsden's support, UCLH have arranged (eventually), to give me another MRI. Following this I was told a MDT will look at the scan and decide if they will give me further focal treatment. If they decide not to treat, I will find somewhere privately that will.

I asked the Doctor I spoke with at UCLH why when a recent PSMA scan which I sent to them, showed cancer in my Prostate they needed a follow up MRI. I was told the MRI would show the cancer more accurately.....hmmmmm.

So, the battle continues ........

Just to confirm what I have always said which is I would not try to push a man towards any particular treatment. I am only seeking further salvage treatment applicable to my own circumstances which preclude further RT to the Prostate and surgery. HIFU as a primary treatment is less well proven than RT or Brachytherapy which can extend further, even if side effects are not so severe generally with HIFU.

 

Edited by member 03 Aug 2018 at 22:18  | Reason: Not specified

Barry
User
Posted 03 Aug 2018 at 20:51

Hello Marianne,

I hope you are coping 

 

Regards Barry

 
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