Hi all, need a bit of advice on treatment after ht starts to be less effective.
I’m on bicalutimde and zolodex but my PSA has risen to 8.1. It has risen by almost a full point for the last 3 PSA tests.
I’m concerned about the rise because my dad has just been fast tracked home from hospital as his PCa has spread to his spine, pelvis, left leg, liver and some lymph nodes. Basically he is dying!
We have help from district nurses, Macmillan, and carers,
I always think to a period in my dads treatment, were his psa went from 0.1 to 72.0 in an eighteen month period. In that time nothing much was done an then one were told that he was being passed over to encology. He was put on enzalutimide, but his psa kept rising until he was taken of it because it was no longer effective. After a quick blast of radiotherapy he was sent home, PSA335.
All staff etc were great, but I can’t help thinking about this 18 month when nothing was done. I do not want to be my route to the inevitable.
Can anyone tell me what I.should be asking at this point in my own treatment.