I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Hi fu good or bad

User
Posted 14 Feb 2018 at 14:49

Hi folks,

I need advice regarding the hi fu treatment. My consultant says there is no evidence it works and does not recommend it at all.

I was drawn to this treatment, as it seems a lot less intrusive with fewer side affects.

He says surgery is by far the best option, although being a surgeon, I suppose he would say that.

My job is very sporty and I fear the treatment effect on this. I am 56.

Thanks for any feedback you can give me. 

User
Posted 14 Feb 2018 at 16:19

Fred, you need your Oncologist's advice as well as that of a knife man! You can then balance the two or more options you may be given.

AC

User
Posted 14 Feb 2018 at 18:41

Ask for a referral to an oncologist - it is your right to do so.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Feb 2018 at 21:41

Hi there,

I see this is posted in localised cancer - what is your diagnosis in terms of Gleason number? Also it may be useful to know if you were diagnosed by the surgeon? Also was this an NHS or private diagnosis?

It's just useful to have some context. My husband is 54, but with an office job. Sorry for all the questions.

Kind Regards

Clare

User
Posted 14 Feb 2018 at 22:27

Snap (aside from the sporty job)! Age 59, recently diagnosed with very localised cancer — one core out of 49 samples from template biopsy Gleason 7=3+4, with 15% tumour volume and Gleason 4 10% of the adenosarcoma. One abnormal area on MRI, PSA 6.1 up from 4.0 four months ago. Nothing near nerves or capsule. Actually feels very frustrating to have found tumour in just one core, but on other hand shows how sensitive and accurate template biopsy is.

Consultant surgeon gave me the whole range of options including AS which I'm less keen on on account of the Gleason 4 component and rising PSA (at least between last two tests, prior to which it was always around 4), and that at this stage it's so localised.

Surgeon was also rather dubious about HIFU, but as previous poster said this is a natural attitude from any professional regarding 'their' discipline. I've done a lot more reading about it and it does have higher outright failure rate vs RP/RT, but it can be repeated on failure. It's also possible to opt for surgery if it fails, with nothing like the same difficulty for 'clean' surgery that is posed by trying radiotherapy first. There are no really good long term studies, but it does hold up very well in terms of recovery from treatment (not much worse than from biopsy so pretty trivial), and lower rates and shorter periods of UI/ED if at all, but you do need catheter in for couple of weeks while prostate calms down from the heat! Also read that HIFU treatment is being refined, as it becomes possible to image and target very well defined areas of disease.

But the consultant is not narrow-minded about surgery. He wants me to see an oncologist should I decide on treatment, though I imagine the conversation with oncologist will be much more about some kind of radiotherapy treatment than HIFU.

It's a dilemma isn't it. I did read that it's becoming a more common treatment in Europe now or at least more common as a primary rather than salvage treatment, along with more interest in very localised treatments where appropriate. What also makes decision hard is that being a surgeon made consultant lukewarm about HIFU, but as a surgeon has a fantastic reputation for robotic RP so thinking of going that way just as it seems so fortuitous to be in that consultant's hands (robotic or otherwise).

Sorry if this doesn't help your decision (or mine) at all, but that seems par for the course in opting for any prostate cancer treatment doesn't it unless things are more advanced. One good thing is that whatever you choose, the fact that HIFU is an option is good news at this stage.

Edited by member 14 Feb 2018 at 22:37  | Reason: Not specified

User
Posted 20 Feb 2018 at 20:00

Hi, Thank you for your input. I have just made an appointment to see an oncologist to help. 

User
Posted 20 Feb 2018 at 20:15

Thank you so much for such brilliant replies.

My gleason score is 7 and the cancer is contained within the prostate.

My consultant said if I go for surgery, he would guarantee that I would still be playing tennis at 78!

He said he has been using the robot since 2013 and performed 500+ operations.

I went in thinking surgery would be my last option and came out thinking it would be the first!

However, I have been in contact with a specialised nurse, who said that I should consider cyberknife.

On doing a bit of research, it seems a real option. Again has anybody got any views or experience of this treatment?

Thanks again for making the effort to reply.

User
Posted 20 Feb 2018 at 20:18

sorry, I forgot to add, I am an NHS patient.

User
Posted 21 Feb 2018 at 00:12

HIFU gives better results where the tumour is small and on one side only. I had it for failed RT to treat one small tumour found following a transperineal biopsy. It is a treatment that is being refined and one that can be repeated but very long term assessment is still awaited. From what I have read the most advanced HIFU uses 'Exablate' but I think it unlikely this is available in the UK yet.

Barry
User
Posted 28 Feb 2018 at 08:08

Thanks Barry, useful info

User
Posted 04 Mar 2018 at 19:55

Thank Barry, very useful info.

 

 
Forum Jump  
©2024 Prostate Cancer UK