Cancer gone to Spine

You had RP Sept 2014, RT May 15 and have been on hormones since.

You want to know if anyone had Canabis Oll or if they know about the latest chemo.

 Also how to deal with hot flushes.

I'm sorry I can't help except to say that whatever you believe in can have beneficial results so if it was me I'd have a go although I'd want to take the prescribed route as well. 

I'd think American sites would be very useful for advanced research as many of their hospitals seem to have expense unspared and not be hindered by NICE cost restraints.

Hi Peter ,

         here here ! Thankfully we have Chris Woollams and the huge effort he has put in to his site . There are other sites with folks working hard to support Cancer Patients and giving them alternative support. Bless them all . Best Wishes . I'll keep moving in a positive direction as long as I can . 

Bill&Ben67

As indeed, I have, in his stead for the last year. He is in touch with men who have had ‘miraculous’ remission stories with the use of cannabis oil, or CBD, or whatever it’s called.

Of course, I am personally sceptical about its efficacy - maybe as a placebo effect - but the last time I was up the Amazon in Manaus there were teams of botanists from major pharma firms scouring the rain forest to find the latest plant-derived wonder-drug.

Don’t dismiss snake oil out of hand - except if it comes from snakes.......

Cheers, John.

A long departed work friend was a big fan of Ayurvedic medicine including travelling to India to have molten butter eye washes??  Anyway the "stomach upset" they were treating him for turned out to be stomach cancer. So do whatever makes you feel better but make sure you use "normal" medicine too!! 

Hi John ,

              anyone worth their salt knows how drug companies develop synthetic drugs and why ? The reasons are not all negative or about money ..... However the same folks ( worth their salt ) know about herbal products . I follow Mr Chris Woollams approach , as Chris is science based and checks his stuff out . He always recommends working with your oncologist and supporting what they do . I stopped everything , mid 2016 , foolish I know but I was that fed up and going slowly mad with the insomnia I had . To be honest I also listen to my body . For me I have three things that indicate my Cancer getting worse . Pain , Sleep and most of all FATIGUE . Also I can tell when something is supporting MY BODY , as those areas improve . Especially the Fatigue . I am not saying this is an indicator for everyone but it is for me. When I started on the Cannabis Oil I noticed an improvement after two weeks , I also know now from my PSA ... I am not taking enough ... I cannot afford to take more than what I am ..... So now I am in discussion with my Oncologist about Chemo . I am just trying my best , trying to buy more quality of life and support my family . I know I am my own worst enemy as I am not a super disciplined athlete. So I can make even more improvements , just in the area of discipline and routine . I am certainly glad I came across Chris Woollams and I need to re-read his book again to re-enthuse myself after all the crap of the last few years . Fingers crossed and best wishes to all .

Bill&Ben67

Hi Francij1 ,

                    I am afraid I should have made my original post clearer . I had the Operation , I had Radiotherapy and Hormone Treatment . I continue to have Hormone Treatment , Bicultamide rather than Zoladex . I also take cannabis oil to assist the hormone treatment . Chemo is a personal choice for me . However I am in discussion about it with my Oncologist not just dismissing it altogether. The Ayurvedic medicine was not for my Cancer but Insomnia and Hot Flushes which neither my Oncologist or doctor could help me with . Well My Dr prescribed me Zolpidem but whilst I was on Zoladex it did nothing where as the Ayurvedic medicine at least helped. 

                                                          With my Cancer treatment I only use or concentrate on things that are proven or well documented . Mostly I go by the mainstream sites such as this one and Chris Woollams . Sorry I should have made myself much clearer . I will bear that in mind for the future . To be honest considering the documented evidence about Aggressive Prostate Cancer ( which I have ) , Cancer Research UK etc .... I am doing ok.... However I feel I could do much better , refer to my other reply to Bollinge / John . As in my original post , I am really looking for folks with experience about Hot Flushes , especially at night , Insomnia and also Chemo for Advanced Prostate Cancer , especially individuals like myself with Aggressive Advanced Prosate Cancer . Although all helpful tips are welcome , as I never assume I know everything there is to know about my Cancer. Although I have done quite a bit of homework , 2015 /2016 . I may well do seperate posts , regarding these three things on the site . Best wishes to all . I know it can be tough . 

Bill&Ben67

Hi Angry,

Just sayin’.

I in no way advocate any such “quack” remedies, and I completely agree with you that desperate people will grasp at straws. It’s just that my mate is in contact with CBD users who seem to have been the subject of ‘so-called’ miracles.

My old mate Barry Sheene went for something like a cabbage smoothie diet rather than medical treatment for his cancer and that didn’t end well for him!

If I can only get back on Facebook Messenger on this bloody new iPad, I will copy and paste the ‘miraculous’ testimonials there. Whether they are genuine or sales promotion by a drug peddler selling CBD oil, we will probably never know.

It is intriguing though, that following the recent media furore when that mother tried to import cannabis oil for her kid for some complaint or other into UK, that it was initially banned, but then allowed in under licence.

Cheers, John.

Edited by member 19 Nov 2018 at 17:10  | Reason: Not specified

I was on zoladex for 3 years, finished June this year. I had acupuncture to help with the hot flushes and it worked really well for me and, for a while after the acupuncture finished, kept the hot flushes 'comfortable' and were less frequent. The hot flushes have returned with a bit of a vengeance now, but are likely to ease seeing as treatment now finished. I would certainly have acupuncture again, it also helped with the aches/pains and sleep. Although, naturally enough, aches/pains returned and having trouble getting to sleep, since ending Zoladex etc.

Peter

Not on the site much but came across your thread. Iam glad I didn’t read it earlier on during my treatment as it seems very confusing with all the alternatives that everyone has. I guess different things work for different people so can only give my experience.

I was dx 3.5 years ago. No real signs but irregular peeing during watch a rugby match started it (to many pints). My treatment has been HT and then early chemo. PSA 394 Gleason 9 with mets spread. During my first HT and chemo I had lots of hot flushes during the day and night,.l,d wake up with a damp pillow through the sweat along with disturbed sleep. I did take sage tablets along with cranberry tablets and used “itworks sleep plus”. Looking back it make have helped. PSA was knocked right down for a few months but began to rise and was on baluculmide and then abbri. This year I cracked and compressed my L5, which. Any have had something to do with the mets and now back on chem (going in this morning for 5th of 10) so almost back to beginning, however I don’t have flushes any more and sleep is pretty good. I’ve kept working all the way through and only close family know about it, although someone said I seem to be enjoying life as I’ve got abit heavier round the stomach! I’ve just kept a balanced diet, plenty of veg and white meat, the odd steak. Kept up exercise walking,which also clears to head.

Whatever works for you is best, it’s just trying to find it.my brother in law who is retired GP said you can try anything you want but in any illness a positive attitude is a bonus, which is right although I can be a misery git! I also found a nice wee single malt a hour before bed helps every so often, but that just me.

Good luck

Steven

I frist had cabataxal, six rounds every 3 weeks about 3 years ago. I was generally fine throughoutuntil last 2 when tiredness begun to effect me. I took every Friday off work during that time. Other SE was loss of body hair (except head, due to cold cap), ridging of finger nails and wight gain around face etc. This time it’s the same cabataxal except it seems to have dropped from 1.25hrs duration to 1 hr. Again at this time 5 out of 10 same SE but with sickness first few days afterwards and some tingling of toes and fingers. Getting more exhausted now. I’ll look at Chris woollams book!

Hope all goes well.Steven