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New to Muse - any opinions please?

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User
Posted 21 May 2019 at 21:24

Mr L is now almost 6 months post RP, and has been taking Cialis twice weekly since February, also uses the pump for rehab.  Things have been pretty good with a little bit of life down there fairly regularly even on the days he doesn't take the Cialis, however the erection is rarely strong enough for penetration.  The ED nurse has prescribed him Muse today, I believe 500mg.  She had said to him that his nerves should have recovered enough by now so it's likely the Cialis isn't working for him.  I thought it could take up to 2 years or more for the nerves to recover?  Anyway, after a quick google of Muse I have read mixed reviews, so thought I'd ask you guys.  If Cialis didn't work for you what's the next thing you've tried and has it worked?  Mr L's nerves were saved also.

 

Thanks for any advice

User
Posted 22 May 2019 at 05:55
It’s one year now since my op, and there is no sign of life down there. Daily Cialis has had no effect, but I did try what I call ‘eye drops’ - administered to the one-eyed trouser snake. An alprostadil cream called Vitaros 3mg. It did eventually produce a lazy lob but also a nasty throb, and not the kind I used to get before my operation!

When I read the information leaflet, after the fact of course, as you do, it said one in ten men can experience pain and that was me. I can’t be bothered with anything more radical such as muse or injections so have given up on penetrative sex. I can still have a kind of orgasm though.

Cheers, John.

User
Posted 22 May 2019 at 07:54

Thanks for all the replies everyone.

 

I also thought Mr L would be offered Viagra before anything else, and I was a little surprised when he told me he has been given Muse as I've not read much about this despite reading loads about Pc.  I was not with him at the appointment yesterday so I'm giving him the benefit of the doubt about the nurse saying his nerves should have recovered enough by now.

The ED nurse has told him to stop taking the Cialis, I however am wondering if he should continue to take them for rehab purpose only?  Should he not use the Cialis on the same day as the Muse?

I am now going to google flaccid intercourse and Durex cock rings!!  I hope no one looks at my Google search at work 😲

User
Posted 22 May 2019 at 08:33
Close the windows Colwick Chris?? I hadn't realised a draught could be such a problem! May explain a lot in my old house!
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User
Posted 21 May 2019 at 23:20
I didn't find the Muse pellets any good and frankly I found shoving them down the end of my dick more discomforting than the injections - which definitely worked!

It took two years for me to recover enough for penetration without artificial assistance and even then he lacked "stamina". A cheap Durex cock ring sorted everything so I would be inclined to try that if you are getting some action as it's remarkable what it does for hardness and longevity.

Have fun!!

User
Posted 21 May 2019 at 23:47

search alprostadil 

ie

http://community.prostatecanceruk.org/posts/t12481-Anyone-tried-Vitaros--alprostadil--cream-for-ED

I had vitaros on nhs.  tried nearly everything in first 2 yrs post dx.

that is apart from direct injection. 

non nerve sparing however after about 3 yrs no ED thankfully.  see my profile.    obviously dry orgasm and no spontaneous erections.    ie needs continuous massage.    everythings worth a try.   Any pde5 I had headaches for hours after. 

I'm sure it will improve.  early days.. 

 

 

User
Posted 22 May 2019 at 00:52

Originally Posted by: Online Community Member

  She had said to him that his nerves should have recovered enough by now so it's likely the Cialis isn't working for him.  I thought it could take up to 2 years or more for the nerves to recover?  

 

Odd that she said that; it is the generally accepted position that whatever you've got at the 2 year point is as good as it's going to get but up to 2 years there is continuing chance of improvement. In our house we blew away the predicted gloom; John's biggest improvement came in years 2-3. 

Muse is not usually the first choice. Most ED nurses go through a cycle of Viagra, then Levitra followed by Caverject and only if those aren't suitable do they start talking about Muse and Vitaros. Perhaps there are still supply problems with the Caverject? Has he tried Viagra or Levitra? 

 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 May 2019 at 05:55
It’s one year now since my op, and there is no sign of life down there. Daily Cialis has had no effect, but I did try what I call ‘eye drops’ - administered to the one-eyed trouser snake. An alprostadil cream called Vitaros 3mg. It did eventually produce a lazy lob but also a nasty throb, and not the kind I used to get before my operation!

When I read the information leaflet, after the fact of course, as you do, it said one in ten men can experience pain and that was me. I can’t be bothered with anything more radical such as muse or injections so have given up on penetrative sex. I can still have a kind of orgasm though.

Cheers, John.

User
Posted 22 May 2019 at 06:20

6 months is not long for ed recovery. I had 50% nerve sparing. I am still recovering slowly after over two years. I tried MUSE 500 mlg with no effect. Caverject works well with the minimum dose of 250 mcg giving me a two hour erection. I tried 500 mcg and had a painful six and half hour erection which was most unpleasant. Anything more than four hours should be sorted at A&E.
Also on 5mlg daily Tadalafil (Cialis) with a top up of Sildenafil (Viagra) when required. Remember not to use MUSE or Caverject on the same day as Pde5 inhibitors.

Good Luck

Cheers

Edited by member 22 May 2019 at 06:22  | Reason: Typo

User
Posted 22 May 2019 at 07:08

We have tried muse which is inserted about 50mm down the penis with an applicator, it is not as bad as it sounds, I urinate just before inserting the applicator, it help it slide in and less chance of expelling the muse. We have tried it  a few times;  1st and 2nd time, rock hard full erection that lasted about 40 minutes and I finished up pouring cold water on the penis to reduce the erection, everyone one was happy.  3rd time not as good, we were not as focussed as it needed. 4th time not as good as 1st and 2nd but think we understood why, avoid distractions and switch the phone off. We have experimented with different doses and more does not always mean better.

 

Read the instructions fully for muse if you get it, insert the pellet /cream, roll penis between hands for ten seconds, walk around and keep stimulating for the next ten minutes and it should then be working, the man should avoid lying on his back.  Making love with the man standing also seems to give better erections. Don't rush things we thought the effect would quickly wear off but although the penis may go flaccid further stimulation may make it hard again.

Indulge in some intimate foreplay, stimulation is the key, if it goes soft go back to some more foreplay. They do advise using a condom to prevent the stinging for the woman slight stinging for the man but not painful.

I am just waiting for an appointment to see about getting the injections. Google flaccid intercourse, if you can master the technique it is well worth it, you might need to keep the windows shut.

Thanks Chris

User
Posted 22 May 2019 at 07:54

Thanks for all the replies everyone.

 

I also thought Mr L would be offered Viagra before anything else, and I was a little surprised when he told me he has been given Muse as I've not read much about this despite reading loads about Pc.  I was not with him at the appointment yesterday so I'm giving him the benefit of the doubt about the nurse saying his nerves should have recovered enough by now.

The ED nurse has told him to stop taking the Cialis, I however am wondering if he should continue to take them for rehab purpose only?  Should he not use the Cialis on the same day as the Muse?

I am now going to google flaccid intercourse and Durex cock rings!!  I hope no one looks at my Google search at work 😲

User
Posted 22 May 2019 at 08:33
Close the windows Colwick Chris?? I hadn't realised a draught could be such a problem! May explain a lot in my old house!
 
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