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NHS vs PP

User
Posted 26 Oct 2019 at 18:26

My MDT form has boxes to tick for the above.

i’m wondering whether private care might have significant advantages over NHS. Especially perhaps the time oncologists take to explain treatment options.

User
Posted 26 Oct 2019 at 20:10

I don't know if this helps but both my older brother and myself are "living with prostate cancer" as the phrase goes. I was treated at the Clatterbridge Cancer Centre on the Wirral under the NHS and my brother was treated at the Christie in Manchester under his private medical insurance. In terms of the guidance we both received I would say it was identical. At Clatterbridge I saw the surgeon who explained what he could do for me and then he left the room and the oncologist came in to explain her options (Hormone Therapy to start with radiotherapy being the main treatment). This pretty much mirrors what my brother received at the Christie.

Now, when it came to the treatment itself, my brother's was slightly different. He had high dose brachytherapy and this was carried out by the main consultant. In subsequent visits, he always saw the consultant. In my case I would often see one of the oncologists working to the lead consultant. My brother's treatment required an overnight stay and this was, being private, in his own room with a TV and decent food. My treatment didn't require an overnight stay being External Beam Radiotherapy delivered over 20 sessions.

At Clatterbridge they also do private patients. In the case of External Beam Radiotherapy there is a separate facility which is a bit more luxurious and there seems to be greater flexibility in terms of timing your treatment. This could be valuable to some people.

So, here in the North West, I don't think there is any difference in the quality of the advice you receive and neither should there be. The main differences are as I outlined above.

User
Posted 26 Oct 2019 at 21:44
We didn't have private health cover but self-financed the surgery to get the urologist that was already looking after my dad, John's dad and my mother-in-law - it seemed sensible to keep it in the family! What we didn't appreciate was the difference it made to aftercare - the decision to go private meant that John lost access to the urology nurse specialist, any ED support, district nursing support, etc. We had to fight to get him a referral to the ED clinic on the NHS. That is how it works in our area - I am aware that not all men have had the same problem. A member here (from another part of the country) went private for his op, never saw the surgeon again after they got to theatre and when he was left with serious side effects, the consultant refused to see him and the local CCG also denied him any service.

When it came to the salvage RT, we were able to mix private and public because our hospital trust offers a private-ish RT service which ploughs the money back into cancer research. It made no difference to the machines, the timing of sessions or the treatment at all but it did mean that he always saw the onco rather than a trainee. We have continued to pay for private consultations with the urologist and oncologist, even all these years later, so that we can be sure of seeing the consultant and we don't have to wait in a waiting room for 3 hours.

As Pete says, private won't get you a better treatment path or even necessarily a faster treatment path - it just means that you see the top dog, don't have to queue with hundreds of others at clinics and possibly get a nicer room. But if seriously considering it, check the situation with aftercare in your area.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Oct 2019 at 22:56

Under NHS rules for mixing NHS and private procedures, clinicians are never permitted to suggest private procedures during an NHS consultation, unless you have previously asked them to do so, in which case they must do as you request and let you know if they know of any appropriate procedure which is only available privately.

I guess what you've seen is a formal way to make a request that they let you know about appropriate private procedures.

There was no such formal process where I was treated, but I let the MDT know on a couple of occasions that I wanted to also consider both diagnostic procedures and treatments which were only available privately, and I offered to have a PSMA PET scan done privately if it would help them with the diagnosis. (They offered me a full body MRI scan on the NHS instead which they said was better, so I went for that.) As it happened, there were no better private-only treatments, but they did then let me know I could have my treatments privately or on the NHS. Private meant I could chose when and where and have a private room, but the treatment was identical. I like being with other patients, so I stuck with the NHS.

User
Posted 26 Oct 2019 at 23:11

Originally Posted by: Online Community Member
A member here (from another part of the country) went private for his op, never saw the surgeon again after they got to theatre and when he was left with serious side effects, the consultant refused to see him and the local CCG also denied him any service. When it came to the salvage RT, we were able to mix private and public because our hospital trust offers a private-ish RT service which ploughs the money back into cancer research.

This could depend on timing, and it changed around 2009. Prior to the change, once you had any private procedure in a given diagnosis or treatment path, the NHS wouldn't touch you again.

Then the rules were completely flipped so the NHS has to work with any private procedures you have, and share prior NHS diagnosis and test result data.

The reason for the change is that many people stopped having any private procedures for fear they would lose access to the NHS for anything further relating to that diagnosis and treatment. This put a lot of extra load on the NHS, and stopped the revenue generation that comes from private procedures undertaken in NHS facilities. Flipping this around to the current rules took load off the NHS, and enabled it to generate revenue by undertaking private procedures again.

User
Posted 27 Oct 2019 at 07:58

I saw one of the top prostate cancer urologists in Britain privately in London (£250 for a twenty minute consultation) who offered me a prostatectomy at a London clinic for £19,950.

I said ‘As you are an NHS consultant, can you put me on your NHS list?’

‘Sure, no problem’.

And so it was that I had my surgery by the same consultant and his pet robot Da Vinci, at his NHS hospital in Guldford (I live in Coventry), which was only marred by a weird Catweazle-type character in the bed opposite, who kept his curtains drawn all the time and had his telly on, full-blast, at 3am.

In my experience of private hospitals, the wine list there is better than the NHS where it is non-existent, and I found the food at Guilford surprisingly palatable. Not that you feel like eating much anyway, post-op. The medical care is just as good in both.

A potential bonus of private is if you go to a top hospital e.g., The Royal London, they conduct biopsy during surgery, called Neurosafe, so it gives the surgeon more idea of what is cancer and what is safe to leave alone. Not sure if any NHS hospitals offer this currently, although there have been trials which were successful.

Private or NHS, go for a well-reputed, high-volume surgeon where you are less likely to suffer incontinence and erectile dysfunction afterwards. My surgeon said he wouldn’t send any family or friend to a surgeon who does less than 100 prostatectomies a year.

Intriguingly, he said if he had to have the op., he’d go to some klinik in Germany! Forgot where he said.

Best of luck,

Cheers, John.

Edited by member 24 Dec 2019 at 16:16  | Reason: Not specified

User
Posted 27 Oct 2019 at 14:56

I had mine done privately, mainly for the guarantee that the specific surgeon would definitely do it in the specified time.

Even if listed for the specific surgeon, this can be guaranteed in NHS setting. However, I feel the MDT etc is more robust in NHS setting and the after care wasn't brilliant either with a very junior being a RMO and bank nurses to look after. This was in London.

The wait should not be an issue, any cancer would be dealt within weeks although cancellation can occur if emergencies come up.

User
Posted 27 Oct 2019 at 17:30
My surgeon told someone here he no longer can be sure he will be the NHS surgeon on the day anymore, due to NHS procedural changes.

So a couple here paid twenty grand privately, instead, to have him, of which they were hoping to get about fifteen grand rebate back off the NHS. Don’t know if they ever did. Will have to get in touch and ask.

Cheers, John.

User
Posted 27 Oct 2019 at 20:50

Consultant appointments can be slower than you want and I recall considering private treatment.  

I only met a consultant once during my diagnosis and he passed me to a surgeon.   Then I met the surgeon once and have never seen him since, except when I saw him pop out of his office at a clinic.

I was able to speak to Macmillan nurses whenever I wanted to.   But in general my treatment dates were more important to me than who I met.

I got my scan results but it took another 17 days to meet the consultant which I wasn't happy about.  He gave me as long as I wanted which was 25 minutes.  Although it was mainly him telling me the options even though I knew I wanted the op.

He referred me to the surgeon who saw me 11 days later.  He offered me an op 4 weeks later, but then gave me a date 10 days later which was almost faster than the system.

The only reason to go private for me was time.  The private hospitals near us are small and located near the big NHS hospital which to me sums up where you might end up if anything happens.

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User
Posted 26 Oct 2019 at 19:09
What is an MDT form?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Oct 2019 at 19:49

It’s the form recording findings from the multidisciplinary team review of a case. 

As with much else at my cancer hospital I had to ask for it.

User
Posted 26 Oct 2019 at 20:10

I don't know if this helps but both my older brother and myself are "living with prostate cancer" as the phrase goes. I was treated at the Clatterbridge Cancer Centre on the Wirral under the NHS and my brother was treated at the Christie in Manchester under his private medical insurance. In terms of the guidance we both received I would say it was identical. At Clatterbridge I saw the surgeon who explained what he could do for me and then he left the room and the oncologist came in to explain her options (Hormone Therapy to start with radiotherapy being the main treatment). This pretty much mirrors what my brother received at the Christie.

Now, when it came to the treatment itself, my brother's was slightly different. He had high dose brachytherapy and this was carried out by the main consultant. In subsequent visits, he always saw the consultant. In my case I would often see one of the oncologists working to the lead consultant. My brother's treatment required an overnight stay and this was, being private, in his own room with a TV and decent food. My treatment didn't require an overnight stay being External Beam Radiotherapy delivered over 20 sessions.

At Clatterbridge they also do private patients. In the case of External Beam Radiotherapy there is a separate facility which is a bit more luxurious and there seems to be greater flexibility in terms of timing your treatment. This could be valuable to some people.

So, here in the North West, I don't think there is any difference in the quality of the advice you receive and neither should there be. The main differences are as I outlined above.

User
Posted 26 Oct 2019 at 21:44
We didn't have private health cover but self-financed the surgery to get the urologist that was already looking after my dad, John's dad and my mother-in-law - it seemed sensible to keep it in the family! What we didn't appreciate was the difference it made to aftercare - the decision to go private meant that John lost access to the urology nurse specialist, any ED support, district nursing support, etc. We had to fight to get him a referral to the ED clinic on the NHS. That is how it works in our area - I am aware that not all men have had the same problem. A member here (from another part of the country) went private for his op, never saw the surgeon again after they got to theatre and when he was left with serious side effects, the consultant refused to see him and the local CCG also denied him any service.

When it came to the salvage RT, we were able to mix private and public because our hospital trust offers a private-ish RT service which ploughs the money back into cancer research. It made no difference to the machines, the timing of sessions or the treatment at all but it did mean that he always saw the onco rather than a trainee. We have continued to pay for private consultations with the urologist and oncologist, even all these years later, so that we can be sure of seeing the consultant and we don't have to wait in a waiting room for 3 hours.

As Pete says, private won't get you a better treatment path or even necessarily a faster treatment path - it just means that you see the top dog, don't have to queue with hundreds of others at clinics and possibly get a nicer room. But if seriously considering it, check the situation with aftercare in your area.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Oct 2019 at 22:56

Under NHS rules for mixing NHS and private procedures, clinicians are never permitted to suggest private procedures during an NHS consultation, unless you have previously asked them to do so, in which case they must do as you request and let you know if they know of any appropriate procedure which is only available privately.

I guess what you've seen is a formal way to make a request that they let you know about appropriate private procedures.

There was no such formal process where I was treated, but I let the MDT know on a couple of occasions that I wanted to also consider both diagnostic procedures and treatments which were only available privately, and I offered to have a PSMA PET scan done privately if it would help them with the diagnosis. (They offered me a full body MRI scan on the NHS instead which they said was better, so I went for that.) As it happened, there were no better private-only treatments, but they did then let me know I could have my treatments privately or on the NHS. Private meant I could chose when and where and have a private room, but the treatment was identical. I like being with other patients, so I stuck with the NHS.

User
Posted 26 Oct 2019 at 23:11

Originally Posted by: Online Community Member
A member here (from another part of the country) went private for his op, never saw the surgeon again after they got to theatre and when he was left with serious side effects, the consultant refused to see him and the local CCG also denied him any service. When it came to the salvage RT, we were able to mix private and public because our hospital trust offers a private-ish RT service which ploughs the money back into cancer research.

This could depend on timing, and it changed around 2009. Prior to the change, once you had any private procedure in a given diagnosis or treatment path, the NHS wouldn't touch you again.

Then the rules were completely flipped so the NHS has to work with any private procedures you have, and share prior NHS diagnosis and test result data.

The reason for the change is that many people stopped having any private procedures for fear they would lose access to the NHS for anything further relating to that diagnosis and treatment. This put a lot of extra load on the NHS, and stopped the revenue generation that comes from private procedures undertaken in NHS facilities. Flipping this around to the current rules took load off the NHS, and enabled it to generate revenue by undertaking private procedures again.

User
Posted 27 Oct 2019 at 07:58

I saw one of the top prostate cancer urologists in Britain privately in London (£250 for a twenty minute consultation) who offered me a prostatectomy at a London clinic for £19,950.

I said ‘As you are an NHS consultant, can you put me on your NHS list?’

‘Sure, no problem’.

And so it was that I had my surgery by the same consultant and his pet robot Da Vinci, at his NHS hospital in Guldford (I live in Coventry), which was only marred by a weird Catweazle-type character in the bed opposite, who kept his curtains drawn all the time and had his telly on, full-blast, at 3am.

In my experience of private hospitals, the wine list there is better than the NHS where it is non-existent, and I found the food at Guilford surprisingly palatable. Not that you feel like eating much anyway, post-op. The medical care is just as good in both.

A potential bonus of private is if you go to a top hospital e.g., The Royal London, they conduct biopsy during surgery, called Neurosafe, so it gives the surgeon more idea of what is cancer and what is safe to leave alone. Not sure if any NHS hospitals offer this currently, although there have been trials which were successful.

Private or NHS, go for a well-reputed, high-volume surgeon where you are less likely to suffer incontinence and erectile dysfunction afterwards. My surgeon said he wouldn’t send any family or friend to a surgeon who does less than 100 prostatectomies a year.

Intriguingly, he said if he had to have the op., he’d go to some klinik in Germany! Forgot where he said.

Best of luck,

Cheers, John.

Edited by member 24 Dec 2019 at 16:16  | Reason: Not specified

User
Posted 27 Oct 2019 at 11:15
I just checked back through previous posts Andy; it was 2014
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 27 Oct 2019 at 14:56

I had mine done privately, mainly for the guarantee that the specific surgeon would definitely do it in the specified time.

Even if listed for the specific surgeon, this can be guaranteed in NHS setting. However, I feel the MDT etc is more robust in NHS setting and the after care wasn't brilliant either with a very junior being a RMO and bank nurses to look after. This was in London.

The wait should not be an issue, any cancer would be dealt within weeks although cancellation can occur if emergencies come up.

User
Posted 27 Oct 2019 at 17:30
My surgeon told someone here he no longer can be sure he will be the NHS surgeon on the day anymore, due to NHS procedural changes.

So a couple here paid twenty grand privately, instead, to have him, of which they were hoping to get about fifteen grand rebate back off the NHS. Don’t know if they ever did. Will have to get in touch and ask.

Cheers, John.

User
Posted 27 Oct 2019 at 20:50

Consultant appointments can be slower than you want and I recall considering private treatment.  

I only met a consultant once during my diagnosis and he passed me to a surgeon.   Then I met the surgeon once and have never seen him since, except when I saw him pop out of his office at a clinic.

I was able to speak to Macmillan nurses whenever I wanted to.   But in general my treatment dates were more important to me than who I met.

I got my scan results but it took another 17 days to meet the consultant which I wasn't happy about.  He gave me as long as I wanted which was 25 minutes.  Although it was mainly him telling me the options even though I knew I wanted the op.

He referred me to the surgeon who saw me 11 days later.  He offered me an op 4 weeks later, but then gave me a date 10 days later which was almost faster than the system.

The only reason to go private for me was time.  The private hospitals near us are small and located near the big NHS hospital which to me sums up where you might end up if anything happens.

User
Posted 29 Oct 2019 at 16:05

Originally Posted by: Online Community Member

At Clatterbridge they also do private patients. In the case of External Beam Radiotherapy there is a separate facility which is a bit more luxurious and there seems to be greater flexibility in terms of timing your treatment. This could be valuable to some people.

The actual treatment machines at Clatterbridge are used by both NHS and private patients, Pete (I had my RT privately there). The EBRT treatment room has two entrances: one from the comfy private waiting room where there are nice leather armchairs and the nurses bring you your water to drink, and the other from the NHS waiting room - plastic chairs and you get your own water. The medical treatment, though, is identical for NHS and private patients. 

Best wishes,

Chris

 

User
Posted 29 Oct 2019 at 17:29

Interesting Chris. I'd got it fixed in my mind that they had a separate machine (they were all named after trees) but clearly not. I remember the plastic chairs though!

User
Posted 29 Oct 2019 at 20:07

I think it's just the one machine that's normally shared, Pete; the others are normally NHS only. A couple of times during my treatment it was out of action and I was taken through the NHS clinic to use a different machine. The shared machine is definitely used by both NHS and private patients, although I suspect that the private patients do probably get priority. 

Cheers,

Chris

Edited by member 29 Oct 2019 at 20:10  | Reason: Not specified

 
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