Newly diagnosed 06062022

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User

Posted 06 Jun 2022 at 09:51

Just had the phone call. Told I had a Gleason score of 7 and they would send me a pack of leaflets explaining my treatment options. Doctor said I would get an appointment but not how long it would be. Anyone got advice on side effects and which treatment is most suitable?

User

Posted 06 Jun 2022 at 10:37

Hello, sorry you've got that news, and not good that it was delivered this way. Can I ask which hospital?

We would need more details on your diagnosis and treatment options before we can give you useful things to think about which are relevant to your case. It's useful to fill in your bio so people can read that before replying.

You'll get lots of advice here, but another thing I would suggest is to look for a local support group, because they'll know your hospital, clinicians, and how treatments are offered, which can be very useful too. https://prostatecanceruk.org/get-support/find-local-support

User

Posted 06 Jun 2022 at 11:42

My diagnosis (June 2020) was done by phone but was handled with great sensitivity and I'd had a lot of 'the conversation' during earlier F2F consultations.

Clearly, COVID limited the amount of personal interaction that could happen at the time but I really don't think that being told in person would have made things any better.

User

Posted 06 Jun 2022 at 18:36

Husband had the same call today - told Gleason score was 9 - out of the blue as PSA only 7.2. Was not impressed that it was by phone with no warning or suggestion he needed anyone there - I was there but might not have been. Again they sent links to various websites and explained briefly two main choices but it is interesting to see that this is not the usual way of meeting. No able to provide any real help on treatments but wanted you to know you are not alone in the method of delivery.

Edited by member 06 Jun 2022 at 19:00 | Reason: Not specified

"Time is like a drug. Too much of it kills you." - Terry Pratchett

User

Posted 07 Jun 2022 at 08:38

In my opinion, absolutely disgraceful and without empathy. I was advised by a consultant urologist with a specialist nurse in attendance following which I had a long question and answer session with the nurse. Before I left I was given my appointment for the PCa clinic at which I would see both a surgeon and radiologist. No doubt you will eventually get to see the right people and remember, there is normally no mad rush with PCa, but so sorry for your initial experience. If you need immediate support, the PCUK nurses are wonderful. Give them a call. Number on website.

User

Posted 07 Jun 2022 at 10:17

Ok - this shows that not everyone feels the same. OH says he did not really mind being told by phone. I was upset but he wasn't and that is the most important thing really. He also emailed the nurse with a follow up question yesterday evening and the reply pinged into his box at 9.30 this morning so a usefully quick response there.

"Time is like a drug. Too much of it kills you." - Terry Pratchett

User

Posted 10 Jun 2022 at 01:35

I was given the option of either phone or face to face post-biopsy. I opted for phone as I was expecting to hear those words. We’re all different so choice is always the best thing they could’ve provided. Mine was at Queen Elizabeth Woolwich.

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