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A wife and support after 8 years

User
Posted 31 Jan 2023 at 11:03

First posted in 2015 after my husband recieved Bracatherapy for localised prostrate cancer. Spent nearly 8 years sleeping alone,which i have found difficult as up until the diagnosis we were happy and life was normal,my husband changed and became totally distant,i was supporting him but sadly found out i had bowel cancer but thankfully recovered. My issue is i have tried everything from trying to get my husband to see g.p for depression,reminding him to get his psa done as he wouldn't bother,to engage with Macmillan,searching for anything that would help him but its so difficult when he keeps telling me for 8 years he will get help but doesn't,if i try to talk to him about how he feels he packs his bags and leaves for days or sometime weeks.Just cry constantly and feel helpless no idea what to say or do anymore,lonely and feel so unloved,hes asked to live with me as a friend which breaks my heart,i know there is no magic wand but got no idea what to do anymore,he throws the cancer at me constantly,im starting to feel slightly bitter because he is depressed constantly and aggressive over the least thing,walking on egg shells,any suggestions please,just wish i could have just a hug from him.

User
Posted 31 Jan 2023 at 16:46
Snowflake, this is possibly not what you want to read but sometimes, a person needs to know when to call it a day. Yes it is traumatic being diagnosed with prostate cancer and can leave some men with physical and emotional side effects but having cancer does not allow anyone to be aggressive or abusive towards their wife / partner. You have also had your brush with cancer - he doesn't seem to be offering you the support that you long to offer him. There comes a point where you have to think about how to live your best life, rather than live the rest of your life with someone who will not / cannot meet your needs.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Jan 2023 at 12:46
So sorry to read this truly. Just how good was your marriage before ? Not just physical but were you able to talk openly and discuss issues ?

Many many men feel becoming impotent is the utter end of the world. They just can’t find a way out. I’ve just celebrated 13 years of marriage but the only way we got this far was by total honesty and frank open communication.

My advice would be to hand-write a long letter expressing all your feelings and hurt and love and sadness. Leave it somewhere he will find it whilst you go for a coffee. He will read it and it can’t turn into a row. And you will have done everything you can to resolve it. And what’s more it will release the burden on your broken heart.

Good luck x

User
Posted 31 Jan 2023 at 13:19

I feel so sorry for you, you have tried everything you can to support and help your husband through this, and it looks as if he is rejecting you and everything you try to do for him. Maybe HE should join this forum? But he probably wont, he would rather shut himself away and ALL the help that is available. He obviously has never come to terms with the PCa? I know it is very hard, it took me many months to come to terms with it - the turning point for me was when my wife and I visited our local Maggies Centre. We had a long chat with the Specialist Support person and it was so helpful. She suggested going along to the Mens Cancer Support group which meets once a week. This was the turning point for me and I am now happy to talk about my PCa with anyone.

Have YOU thought about contacting Maggies or MacMillan for advice? I assume they are willing to speak to wives / partners and they might be able to give you some advice. It’s such a shame he will not go and see his GP as there are drugs such as SSRIs which could completely change his mood, Sertraline did for me and it has made such a difference without any unpleasant side effects.

Good Luck and I hope you can resolve the situation.

Derek

User
Posted 31 Jan 2023 at 21:27

Originally Posted by: Online Community Member

Sorry but he messaged a short while ago and said he no longer feels like a man so it is the prostrate cancer,friends and family no longer recognise him since his diagnosis...

Ok well this moves prostate cancer up the list as the cause of his problem. And the fact it has changed his relationship with friends and family means it is more likely a him problem than a you problem. But after eight years he still has this problem and I can't see how you can help him, if he won't engage. That's why I thing some relationship counselling is a good place to start because if you can get him to talk to you, you might be able to help him.

If he started engaging in this forum, he might see that men can cope with life after treatment, even though very few are as potent as they were pre treatment.

Dave

User
Posted 31 Jan 2023 at 22:13
There is a prostate cancer wives group on Facebook - j am not a member but hopefully someone else here can tell you how to join. I think being able to rank yo other wives and partners will help you to make sense of this and work out whether there is anything you can do
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Jan 2023 at 23:15

Snowflake.

Link to Facebook ladies group

https://www.facebook.com/groups/381118649132363/?ref=share 

Thanks Chris 

 

User
Posted 01 Feb 2023 at 00:57

Originally Posted by: Online Community Member
,if i try to talk to him about how he feels he packs his bags and leaves for days or sometime weeks.Just cry constantly and feel helpless no idea what to say or do anymore,lonely and feel so unloved,hes asked to live with me as a friend which breaks my heart,i know there is no magic wand but got no idea what to do anymore,he throws the cancer at me constantly,im starting to feel slightly bitter because he is depressed constantly and aggressive over the least thing,walking on egg shells

Your husband is not being honest either with you, or perhaps more importantly, himself. Having cancer is one thing but using it as a weapon is quite another. Throwing cancer at you and leaving you for days or weeks is manipulative. Well done snowflake, you have obviously done your best but nothing has changed over the last eight years. You cannot rescue your husband and you most certainly should not have to walk on eggshells in constant fear of aggression directed at you.

It might be up to you to make the big decision here.

Jules

Edited by member 01 Feb 2023 at 01:17  | Reason: Not specified

User
Posted 01 Feb 2023 at 07:58
Snowflake, you have done your best both people in a relationship deserve some happiness and comfort.

Do you know where he is going when he moves out? Are you sure?

I know personally of a couple in their late 50s, she had been in a loveless relationship for a while, he kept "disappearing with a male friend" turned out he had been living a double life with his mistress.

Just saying maybe time to move on

User
Posted 01 Feb 2023 at 18:39

So sad to read your posts snowflake. I can’t even imagine how difficult it must be him leaving for days and weeks at a time.

You have obviously done everything you can to support him and can do no more, he’s really not being fair on you at all.

My husband has been through the operation too and suffers with ED. I’m really lucky that we do talk about it though and although things will never be as they were we are still really close and he thinks about me and appreciates all my support. I know all men can react differently but 8 years is a long time for you to live like this.

I really wish you all the very best going forward and hope that you can find happiness x

User
Posted 01 Feb 2023 at 20:52

Originally Posted by: Online Community Member
he is still telling me its not over im being silly

It's not ok for your husband to tell you you're silly, ever.  From everything you've said, you've tried very hard and been treated badly in return.

I wish you all the best for your break and hope that you can be with friends while you re-adjust.

Jules

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User
Posted 31 Jan 2023 at 12:42

I feel for you as others here will. It's been a long time since his radical treatment and I wonder whether your husband is on any medication that could at least possibly explain his attitude, such as being on Hormone treatment for example. Where is he on his cancer journey that he often refers to it? I doubt we could find answer that would change things when you who know him best and professionals from whom advice has been sought have not been able to help. We have had several partners in a somewhat situation to yourself and unfortunately PCa does affect some men and their partners like you, leading to marriage break up in some cases, Do you know what motivates your husband to go away for breaks? Being forthright here and not wishing to offend, does he feel the need to get away from you for awhile? Does he just want to spend time by himself or does he follow any sporting events for example. Sometimes a holiday or change of scene can help but it sounds like your problem is deep rooted.

You are doing what you can and have sought professional help and clearly there is no easy answer. Superficially, it seems either you accept life continuing as it is or perhaps try a trial separation if you re prepared for the prospect of a permanent break up and all that this might entail.

You don't mention whether you have grown up children and if so whether any of them have sensed or are aware of your unhappiness.. It may be the time to weigh things up but you have to think of your own health and welfare and whether you can go on like this or need to force a change.

Edited by member 31 Jan 2023 at 19:19  | Reason: spelling

Barry
User
Posted 31 Jan 2023 at 12:46
So sorry to read this truly. Just how good was your marriage before ? Not just physical but were you able to talk openly and discuss issues ?

Many many men feel becoming impotent is the utter end of the world. They just can’t find a way out. I’ve just celebrated 13 years of marriage but the only way we got this far was by total honesty and frank open communication.

My advice would be to hand-write a long letter expressing all your feelings and hurt and love and sadness. Leave it somewhere he will find it whilst you go for a coffee. He will read it and it can’t turn into a row. And you will have done everything you can to resolve it. And what’s more it will release the burden on your broken heart.

Good luck x

User
Posted 31 Jan 2023 at 13:05

Hi Barry,been married 20 years he as always run off since the start of the relationship so I'm used to that,he refuses to discuss anything,we have a lovely home,pets we adore and i think he as struggles from childhood with his mum passing when he was 13,he never had any counselling,anyone that says something he doesn't agree with and he becomes aggressive and lashes out its not just with me.He had the Bracatherapy and refused to engage with g.p any further appointments,the hospital would send appointments,he wouldn't go for psa to be done either. Try to choose my words carefully and encourage him to continue with any treatments,he did have one hormone injection but refused anything else,he tells me he is fine and nothing to worry about but i do worry although keep it to myself,we tried 2 months apart and missed him very much but sadly we are no further on,not being one for giving up easy but it's really difficult what else i can do at the moment just looking for further suggestions thankyou for your reply.

User
Posted 31 Jan 2023 at 13:19

I feel so sorry for you, you have tried everything you can to support and help your husband through this, and it looks as if he is rejecting you and everything you try to do for him. Maybe HE should join this forum? But he probably wont, he would rather shut himself away and ALL the help that is available. He obviously has never come to terms with the PCa? I know it is very hard, it took me many months to come to terms with it - the turning point for me was when my wife and I visited our local Maggies Centre. We had a long chat with the Specialist Support person and it was so helpful. She suggested going along to the Mens Cancer Support group which meets once a week. This was the turning point for me and I am now happy to talk about my PCa with anyone.

Have YOU thought about contacting Maggies or MacMillan for advice? I assume they are willing to speak to wives / partners and they might be able to give you some advice. It’s such a shame he will not go and see his GP as there are drugs such as SSRIs which could completely change his mood, Sertraline did for me and it has made such a difference without any unpleasant side effects.

Good Luck and I hope you can resolve the situation.

Derek

User
Posted 31 Jan 2023 at 16:46
Snowflake, this is possibly not what you want to read but sometimes, a person needs to know when to call it a day. Yes it is traumatic being diagnosed with prostate cancer and can leave some men with physical and emotional side effects but having cancer does not allow anyone to be aggressive or abusive towards their wife / partner. You have also had your brush with cancer - he doesn't seem to be offering you the support that you long to offer him. There comes a point where you have to think about how to live your best life, rather than live the rest of your life with someone who will not / cannot meet your needs.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Jan 2023 at 17:28

Hi and thankyou for taking the time to answer its much appreciated. Messaged him today and no reply so won't even come home this evening or reply,its extremely lonely living this way,he keeps saying he will sort himself out but doing nothing told me last night to find another man,that's not what i wanted to hear,because he refuses to talk its been really difficult,it is impacting on me more than i realised,he goes to stay with friends,its not like its discussed very much about trying to go forward with the correct help for fear of causing him any stress,i think this site was my last hope,really trying not to give up on him.

User
Posted 31 Jan 2023 at 20:15

This is a very sad thread. I don't think the prostate cancer is the problem. I don't know what is.

You are welcome to post on here we are quite sympathetic and not afraid of adversity, some of us might be able to offer something from our life experience, but what you need is advice on relationships, and possibly when to end them. The forum members here have a lot of collective knowledge on cancer, but no more knowledge on relationships than anyone else in the world.

I have to say any internet forum on relationship breakdowns is not likely to be offering impartial healthy advice, there will be people with an axe to grind. Probably a counselling service like Relate might be a better place to go; almost certainly on your own at first, as it is unlikely your OH will engage.

So feel free to post if you want a sympathetic ear, but if you want to make progress with your life, get advice from an organisation that knows about relationships.

 

Dave

User
Posted 31 Jan 2023 at 20:30

Sorry but he messaged a short while ago and said he no longer feels like a man so it is the prostrate cancer,friends and family no longer recognise him since his diagnosis,this is not about Relate and marriage guidance its about someone not coping with the issues relating to the issues he as mind wise and incontinence,in his words people cope in different ways,he can't muster up the courage to engage with anyone medically trained,maybe fearful as his mother died of cancer at 41 and he as a faulty gene,his son will under go screening too eventually,same as my father who had bowel cancer and myself too.

User
Posted 31 Jan 2023 at 20:51

Snowflake 

your posts are full of pain and if I am honest desperation.

have you spoken to the nurses available on this forum? Or MacMillan team?

I think many many people here feel your pain but feel unable to advise helpfully. have you spoken to your own GP about how this situation is effecting you?  
maybe to help your partner you need to be in place where you can?

N

User
Posted 31 Jan 2023 at 21:27

Originally Posted by: Online Community Member

Sorry but he messaged a short while ago and said he no longer feels like a man so it is the prostrate cancer,friends and family no longer recognise him since his diagnosis...

Ok well this moves prostate cancer up the list as the cause of his problem. And the fact it has changed his relationship with friends and family means it is more likely a him problem than a you problem. But after eight years he still has this problem and I can't see how you can help him, if he won't engage. That's why I thing some relationship counselling is a good place to start because if you can get him to talk to you, you might be able to help him.

If he started engaging in this forum, he might see that men can cope with life after treatment, even though very few are as potent as they were pre treatment.

Dave

User
Posted 31 Jan 2023 at 22:13
There is a prostate cancer wives group on Facebook - j am not a member but hopefully someone else here can tell you how to join. I think being able to rank yo other wives and partners will help you to make sense of this and work out whether there is anything you can do
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Jan 2023 at 23:04
We can emphasise with a man who through treatment of PCa "is no longer a man" as he now considers himself. But surely a man in this position who cares for his wife would do all he could to seek to improve his condition and take advice, explore other ways if he is impotent, not just say he will do something but then not follow it through. I think snowflake would think much better of him if he tried but his attempt in the bedroom was not great. There are a number of men who are impotent but they explore other ways of showing their love. Even if the husband doesn't get much out of it, you would have thought he would want to make an effort for the sake of his wife but is not thinking about her feelings. It is possible that he has a mental condition affecting his thinking and if this is the case he needs, special professional help.

Snowflake has tolerated the situation for a long time and it seems her husband is prepared to continue in the same way. So unless her husband's attitude can change, she has to decide whether she is prepared to experience more of the same. It's possible that Snowflake has fears of being alone and maybe starting a new relationship and there could be other reasons why she would want to avoid a break up as well as still loving her husband.

(Sorry Snowflake, I have slipped into the 3rd person instead of speaking to you direct).

Barry
User
Posted 31 Jan 2023 at 23:15

Snowflake.

Link to Facebook ladies group

https://www.facebook.com/groups/381118649132363/?ref=share 

Thanks Chris 

 

User
Posted 01 Feb 2023 at 00:57

Originally Posted by: Online Community Member
,if i try to talk to him about how he feels he packs his bags and leaves for days or sometime weeks.Just cry constantly and feel helpless no idea what to say or do anymore,lonely and feel so unloved,hes asked to live with me as a friend which breaks my heart,i know there is no magic wand but got no idea what to do anymore,he throws the cancer at me constantly,im starting to feel slightly bitter because he is depressed constantly and aggressive over the least thing,walking on egg shells

Your husband is not being honest either with you, or perhaps more importantly, himself. Having cancer is one thing but using it as a weapon is quite another. Throwing cancer at you and leaving you for days or weeks is manipulative. Well done snowflake, you have obviously done your best but nothing has changed over the last eight years. You cannot rescue your husband and you most certainly should not have to walk on eggshells in constant fear of aggression directed at you.

It might be up to you to make the big decision here.

Jules

Edited by member 01 Feb 2023 at 01:17  | Reason: Not specified

User
Posted 01 Feb 2023 at 07:58
Snowflake, you have done your best both people in a relationship deserve some happiness and comfort.

Do you know where he is going when he moves out? Are you sure?

I know personally of a couple in their late 50s, she had been in a loveless relationship for a while, he kept "disappearing with a male friend" turned out he had been living a double life with his mistress.

Just saying maybe time to move on

User
Posted 01 Feb 2023 at 08:31

Thankyou for your reply and thoughts,feel that i can't do anymore and realise that with the best will in the world you cannot force someone to seek help,but felt coming back on here after so many years,others may be able to guide me incase I've missed an opportunity to try another way,but today feel defeated after not seeing him for days,he did message but was not willing to discuss the issue with receiving help with professionals so no more i can do,always will feel regret that he sadly got such a diagnosis and not accepted it and my heart does go out to all those affected by prostrate cancer.Time to consider my own feelings now.

User
Posted 01 Feb 2023 at 14:19

It's fine,you have all helped me so very much,im very tearful because i feel I failed him somehow,but as everyone knows especially the gentlemen this is a couples disease and you are on a journey with the person diagnosed,i feel the last 8 years as been a battle and are overcome with deep sadness that my husband just switched off he no longer on being diagnosed looked at me the same,so spent so many years trying to speak with him and encouraging him but to no avail.His reply was always everyone handles this differently and i took that on board,today he is still telling me its not over im being silly but for me im drained so just taking each day as it comes now and will leave him wherever he is at present and hope he will one day seek help.Best wishes to all and thankyou.

User
Posted 01 Feb 2023 at 18:39

So sad to read your posts snowflake. I can’t even imagine how difficult it must be him leaving for days and weeks at a time.

You have obviously done everything you can to support him and can do no more, he’s really not being fair on you at all.

My husband has been through the operation too and suffers with ED. I’m really lucky that we do talk about it though and although things will never be as they were we are still really close and he thinks about me and appreciates all my support. I know all men can react differently but 8 years is a long time for you to live like this.

I really wish you all the very best going forward and hope that you can find happiness x

User
Posted 01 Feb 2023 at 20:46

Thankyou for such a lovely message and yes its been really difficult,i had no idea like most of us how to deal with things at the beginning its all new to us and the journey begins,but made more difficult when the person with the prostrate cancer refuses to engage as a couple on how we go forward and rejects all help and support,there as never been a time that i thought oh forget it then,it as not been nice watching someone fall apart but at the end of the day i have feelings too and dealing with everyday life been so lonely and difficult,so decided to take a break for the first time in ages and have some me time and take myself out of this situation sadly for good with the hope he will one day seek the help he needs eventually.

User
Posted 01 Feb 2023 at 20:52

Originally Posted by: Online Community Member
he is still telling me its not over im being silly

It's not ok for your husband to tell you you're silly, ever.  From everything you've said, you've tried very hard and been treated badly in return.

I wish you all the best for your break and hope that you can be with friends while you re-adjust.

Jules

 
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