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Contradictory info from consultant

User
Posted 19 Feb 2023 at 12:30

About 10 days ago I got a telephone call from my GP saying that my routine PSA test (I'm 61 and hadn't had one for about 5 years) had come back with an abnormal score of 10. He said that the local NHS services were very good about investigating these things quickly. He was right, within a week I had had an MRI, a follow up blood test and a meeting with a consultant urologist. 

At that meeting he said that the MRI report has come back saying it showed nothing suspicious, that my prostate was not enlarged, and my second PSA test was 8.4. He said there were two options 1) to monitor the PSA with regular tests or 2) have a biopsy. He said both of these were appropriate in my circumstances and I could choose. Being naturally cautious, but at the same time very pleased that the MRI was clear, I decided to go for the biopsy. This has been scheduled for our return from holiday in about 4 weeks. 

Yesterday I received a copy of the letter from the consultant to my GP referring to my meeting with him. In this letter he for the first time referred to a very high PSAD (0.37) and that given this a biopsy was the best way forward and that I had agreed. This was not a conversation I had had with him and our initial sense of relief at the outcome of the MRI and PSA test has now been replaced by a lot more worry (We had never heard of PSAD before now). I have done some reading on high PSAD and it seems that high PSA combined with non-enlarged Prostate has a high risk of cancer. 

My initial feeling of being impressed with the NHS cancer fast track system has been somewhat undermined by the mixed messages I have received. 

This has all of course come as something of a shock.

Am I reading the PSAD score right? 

Edited by member 20 Feb 2023 at 13:35  | Reason: Typo

User
Posted 19 Feb 2023 at 13:30

He did tell you about the high PSAD, just not in those words I think. The PSAD is just saying that your PSA is not explained by having an enlarged prostate. A high PSAD can be indicative of cancer or of infection / inflammation; therefore another test in 3 months or going straight to biopsy are both reasonable ways forward. The MRI result and rapid fall in PSA are encouraging. Don't lose faith in your urologist, we have men on here who have been waiting months just to get the first MRI and biopsy.

Edited by member 19 Feb 2023 at 14:56  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Feb 2023 at 14:18
Thank you Lyn for your kind, quick and reassuring reply. I suppose he may well feel that he was making the point in laymans terms, however both my wife and I were shocked at the negative tone of the letter as compared to what we heard at the meeting (my wife was an NHS manager for some of her career so generally can judge these things, but not this time).

I am very pleased and impressed with all the other features of my care with the NHS.

User
Posted 19 Feb 2023 at 14:27

 Mixed Messaging is the worst thing you can get during diagnosis. I had this with my staging and it really caused me a lot of anxiety. I think in general the treatment I’ve had from the NHS has been very good, only let down on occasion by poor Communication. I’ve found the CNS much better at communicating than the consultants and also the specialist nurses you can phone on here…their number is at the top of the pages.

User
Posted 20 Feb 2023 at 13:33

Thanks Decho, reducing anxiety is really important. I am not sure what a CNS is, but thanks for pointing me toward the tel number at the top of the page. I will definitely use it if and probably when I have questions.
The communications I have had have been reasonably good, but why oh why don't they email these docs. I have had letters delayed, such as the one about my surgery preassessment booking that arrived three days after the preassessment. The delays could well be down to the unreliable mail service we now have though. However, the speed of the service provided in general has been admirable,
I have moved my biopsy as we didn't want to wait 5 weeks, so it's taking place tomorrow morning. It will be interesting to see how long the results take to get to me, but on the evidence so far it should be quick (fingers crossed).

Edited by member 20 Feb 2023 at 13:36  | Reason: Not specified

 
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