Hi all,
I was diagnosed just over 3 years ago psa 162 Gleason 4+5=9 spread to lymph nodes ,after 38 radiotherapy and 3years hormones psa went down to 0.2. All treatment now finished and feeling fine.
Have just had my first psa check since finishing and it rose to 0.5 not sure if this is good or bad,is anybody in similar position
Pungle
Thanks Derek,
I feel fine so I will keep my fingers crossed as well
Had a psma pet scan after a rise in psa and it has shown cancer in prostate and also on spine,waiting for a meeting with oncologist on the 9th November.
Hi Pungle,
Really sorry to hear that, it must be hard to accept that after 3 years of this gruelling treatment it has come back. It worries me too and is made even worse by the fact that those of us on HT/RT have to wait well beyond the end of HT to find out if cancer is still there.
I wish you all the best for the future and hope that your meeting with the Oncologist results i a new treatment path which will keep it at bay for many years to come.
Derek
Psma scan showed bright spot on spine,small shadow on pelvis and small shadow on prostate.
So back on to hormone treatment and also apalutamide, not sure how this going to go after a year off treatment
You've seen a rise of more than 2.0, so you need to be referred back to your oncologist to investigate further. Hopefully they'll schedule you for a PSMA PET scan to find where any active cancer is. They might do a bone scan first as that's likely to have a shorter waiting time. If there are one or two hot spots outside the treated area, they might be able to offer you SABR radiotherapy on them.
Thought I was doing great but fingers crossed
Sorry Pungle, that's not what you want to hear just when you are hoping treatment is finished. I would guess they will put you on hormone therapy again, and maybe suggest some other treatments too.
Thanks for letting us know and I’m so sorry that it has spread. I can’t offer any advice on the treatment you’ve been given but I will keep my fingers crossed for you that it keeps it under control and hopefully with minimal side effects.
All the best,
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