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Micro metastatic disease

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User
Posted 04 Dec 2023 at 19:12

Has anyone on here got micro metastatic disease, or suspected of having it?

User
Posted 05 Dec 2023 at 07:16
If you read my profile , I had surgery at 48 and awful post surgery results with much lymph involvement. I had scan after scan but no disease seen anywhere so I opted out of SRT and early HT. It took 5yrs before it all showed up in spine and distant lymphs. I’m now on HT and am 8 1/2 yrs since surgery
User
Posted 05 Dec 2023 at 17:54

Mine was 252.5 but it’s 0.2 at the moment. The bone scan and whole body MRI were clear but I probably have micro metastatic disease.

User
Posted 05 Dec 2023 at 18:48
My psa was 45 at surgery , and 1.5 after , quickly rising. It was over 1000 before I got my head together and reacted properly. Still here 81/2 years later probably by luck
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User
Posted 05 Dec 2023 at 07:16
If you read my profile , I had surgery at 48 and awful post surgery results with much lymph involvement. I had scan after scan but no disease seen anywhere so I opted out of SRT and early HT. It took 5yrs before it all showed up in spine and distant lymphs. I’m now on HT and am 8 1/2 yrs since surgery
User
Posted 05 Dec 2023 at 09:12

Thanks for that Chris.

User
Posted 05 Dec 2023 at 16:05
My OH had micro mets in para aorta nodes ,on HT and early chemo .went on stampede trial arm J and luckily treatment has kept it at bay . He was 55 at diagnosis,that was 8 yrs ago .

User
Posted 05 Dec 2023 at 17:31

That’s encouraging but what was his PSA?

User
Posted 05 Dec 2023 at 17:36

Originally Posted by: Online Community Member

That’s encouraging but what was his PSA?

23 

User
Posted 05 Dec 2023 at 17:54

Mine was 252.5 but it’s 0.2 at the moment. The bone scan and whole body MRI were clear but I probably have micro metastatic disease.

User
Posted 05 Dec 2023 at 18:48
My psa was 45 at surgery , and 1.5 after , quickly rising. It was over 1000 before I got my head together and reacted properly. Still here 81/2 years later probably by luck
User
Posted 05 Dec 2023 at 18:56

I hope you are still here in another 8 years!

User
Posted 05 Dec 2023 at 22:00

Originally Posted by: Online Community Member

I hope you are still here in another 8 years.

I had chemotherapy , whole pelvic radiation and hormone therapy from the outset.

 
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