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Royal Liverpool

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User
Posted 08 Jan 2024 at 09:36

Anyone here have any experience of the royal Liverpool hospital?  Shared experiences appreciated 

User
Posted 08 Jan 2024 at 11:29

I had my op there last Easter. I was diagnosed in the February and my op was 6 weeks later and bought forward.   It is now the new royal and all rooms are private. The team are excellent and are very supportive and straightforward. I had an issue with my catheter post op and it was dealt with promptly. I’ve had a couple of follow ups since the op. If you are Liverpool based then I suggest joining the local support group. 

User
Posted 08 Jan 2024 at 14:30

Check out my profile. I was Gleason 7 3+4 PSA 4.5. This was confirmed on my post op histology with clear margins. I was presented with a very appetising menu range of options to choose from! In the end I chose surgery 1) I wanted it out and 2) if things went wrong I could then go down the RT/HT route. When I asked the oncologist what they would do in my position they said surgery. Due to my age there was a risk of further issues later in life having RT 

User
Posted 08 Jan 2024 at 16:19

I’m on the mend. 9 months on and I use 1 pad per day for incontinence - initially I could not hold water and when I returned to work after 7 weeks I was on 4/5 pads a day. I keep squeezing.  ED is a work in progress. I was 50% nerve sparing.  There is no natural reaction at the moment but the pump gets results. Physically I walked up moel Fameau (if you are familiar with it) after 4 months and regularly walk 25,000 steps a day with no issue. I have issues lifting weights and am waiting for a scan on a possible hernia. Overall an improving position. Remember everyone is different. 


The menu of options was surgery, RT/ HT and Brac. HIFU and proton beam treatment were not recommended. Surveillance was also not recommended. 

User
Posted 19 Jan 2024 at 12:36
Sorry I'm a bit late to this thread but for what it's worth, I've heard good things about the Royal and the surgeons there.

I met with one of the surgeons who was instrumental in bringing RARP procedures to the region and I found him to be honest and impressive in equal measure. I actually ended up having Brachytherapy but had I decided on surgery, I would have been more than happy to have been under the care of the Royal. I also have a friend who had surgery under the same consultant I met and he's had very good results and couldn't speak highly enough about the after care and the specialist nurse team at the Royal.

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User
Posted 08 Jan 2024 at 11:29

I had my op there last Easter. I was diagnosed in the February and my op was 6 weeks later and bought forward.   It is now the new royal and all rooms are private. The team are excellent and are very supportive and straightforward. I had an issue with my catheter post op and it was dealt with promptly. I’ve had a couple of follow ups since the op. If you are Liverpool based then I suggest joining the local support group. 

User
Posted 08 Jan 2024 at 13:47

Thanks so much - could you tell me what was your gleeson etc and was surgery the only option offered?  If no why did you opt for that treatment 

User
Posted 08 Jan 2024 at 14:30

Check out my profile. I was Gleason 7 3+4 PSA 4.5. This was confirmed on my post op histology with clear margins. I was presented with a very appetising menu range of options to choose from! In the end I chose surgery 1) I wanted it out and 2) if things went wrong I could then go down the RT/HT route. When I asked the oncologist what they would do in my position they said surgery. Due to my age there was a risk of further issues later in life having RT 

User
Posted 08 Jan 2024 at 15:36

How are you feeling now, hopefully on the mend.  With regard to  your comment about ‘very appetising menu range of options’ - any chance you would mind elaborating as to what was available to you?  

User
Posted 08 Jan 2024 at 16:19

I’m on the mend. 9 months on and I use 1 pad per day for incontinence - initially I could not hold water and when I returned to work after 7 weeks I was on 4/5 pads a day. I keep squeezing.  ED is a work in progress. I was 50% nerve sparing.  There is no natural reaction at the moment but the pump gets results. Physically I walked up moel Fameau (if you are familiar with it) after 4 months and regularly walk 25,000 steps a day with no issue. I have issues lifting weights and am waiting for a scan on a possible hernia. Overall an improving position. Remember everyone is different. 


The menu of options was surgery, RT/ HT and Brac. HIFU and proton beam treatment were not recommended. Surveillance was also not recommended. 

User
Posted 08 Jan 2024 at 23:27

Thanks 😊. Have sent you a private message 

User
Posted 10 Jan 2024 at 10:02

I’ve replied to your PM

User
Posted 19 Jan 2024 at 12:36
Sorry I'm a bit late to this thread but for what it's worth, I've heard good things about the Royal and the surgeons there.

I met with one of the surgeons who was instrumental in bringing RARP procedures to the region and I found him to be honest and impressive in equal measure. I actually ended up having Brachytherapy but had I decided on surgery, I would have been more than happy to have been under the care of the Royal. I also have a friend who had surgery under the same consultant I met and he's had very good results and couldn't speak highly enough about the after care and the specialist nurse team at the Royal.

 
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